Thanks The National Lottery Community Fund for donating £19K so we can provide mental health support. “Identifying positive aspects of my life, together with recognising the barriers that were preventing access to that positivity was a very real skill that I learned thanks to the MPS Society’s support.”

Each case our support team works on is needs-led and different every time. Putting people at the centre of what we do is how we make the most difference to those we support. #wearehere #TeamMPS #Together Read our 2023 impact report now: buff.ly/45HySw7

On #fundraisingfriday we're saying thanks to Sheena Bagnall and the Inner Wheel Club of Clevedon and Gran to Ada who has an MPS condition, who received a cheque for £692.00! This was raised by The Vibe and Generation Vibe, Rock and Pop choir. Thanks for your amazing fundraising!

Are you an independent adult (over 18) living with MPS, Fabry or a related condition? Are you interested in socialising with other independent adults (over 18) living with MPS, Fabry or a related condition? Well then this is the event for you! Join us: buff.ly/3WWfjNO

We had a great time at Legoland last weekend catching up with everyone and meeting new faces too. Thank you all for joining us and wasn't the weather just perfect?! 🌞 If you're happy to, share your pictures and feedback with us via [email protected]

Thank you to Snugburys Ice Cream in Nantwitch for choosing to support the MPS Society this year in honour of one of our families and congratulations to everyone involved in creating such an amazing Paddington! 🍦🍦🍦🧸🧸🧸 #Paddington #WearitBlue #icecream

Well done to Richard Cooling who won a cash prize in our Lotto. He said: 'The MPS Society and the work they do means so much to me and my family as my brother Jonathan suffers from the condition'. Follow the link to play: buff.ly/3v9m18g. Ts&Cs apply & you must be 18+.

We're delighted to introduce Lindsay, our new member of the Support & Advocacy Team. "I'm excited to have joined such a dedicated team of experts and I'm hoping to learn from the people we serve. I've experience in advocating for people’s rights, helping people to have a voice."

Thank you to everyone who was involved in Hari's charity football match. Organised by Hari's Dad Gavin and Uncle Shaun for Hari, they raised an incredible £1,305.25! Thanks for raising awareness and funds for families affected by rare genetic conditions 💙 💙 💙

Northern Ireland members, save Saturday 7 Dec in your diaries as we look forward to celebrating the festive season with you at one of the most popular Christmas experiences at Glenarm Castle 🌟 Keep an eye on our event calendar as bookings will open soon buff.ly/3AF2gYo

The summer holidays are always such an exciting time of the year, but they can also be the gateway from the familiar to the unknown. You are not alone, hear from some of our members who are facing new beginnings just like you in our latest blog post: buff.ly/3Xe5r27

In August #Spotlightonrare focuses on Metachromatic leukodystrophy (MLD) which is an inherited lysosomal storage condition that progressively destroys nerve cells in the brain and spinal cord. Find more information about this rare condition on our website: buff.ly/4fShBVA

60 miles in September starts this Sunday, so hurry and sign up to get fit and fundraise: buff.ly/3Xk6LR1 🙌 It's so easy, set up your fundraiser, share it with your connections and walk, wheel, jog, cycle or swim your way to 60 miles by the end of the month. Let’s go!

Join the virtual Clinical Scientific Advisory Committee (CSAC) open day on Tues 8 Oct at 7pm to discover more about the research we fund for the best interests of our community and receive updates from some of the projects we have supported. To register: buff.ly/3T82pKl

Photos, updates and more in this month's e-news. Read about new beginnings for our community and find out what's happened this month in our latest newsletter: buff.ly/3TbiTl4

Go Myles and thank you so much for your support! 🙌

The new Great Run September ballot is now open until Friday 13 Sept! Apply and you could secure your entry for 2025. Please consider running for #TeamMPS to help us support people and families living with MPS, Fabry or a related decision: buff.ly/3n11Nq6

Northern Ireland members, you can now book to join us and other families for a festive afternoon at one of the most popular Christmas experiences at Glenarm Castle on Saturday 7 December. For all the details and registration, visit buff.ly/3TigkxB

More holly jolly event news are coming your way as we are inviting you to a special panto performance of Dick Whittington on Saturday 7 December, especially designed to enthuse children and draw them into the story. Book your tickets: buff.ly/4gg6XZ2

The LSD Collaborative community survey is open until the end of this month. Make your voice heard and share your views about the services you receive, including clinical care, home care, social care and patient advocacy, anonymously and in confidence: buff.ly/45MxE2E