Rachel Brown (@mnd_commsaids) 's Twitter Profile
Rachel Brown

@mnd_commsaids

MND Association Communication Aids Coordinator. All views are my own

ID: 1535330238435033089

calendar_today10-06-2022 18:37:31

291 Tweet

243 Followers

216 Following

Communication Matters (@comm_matters) 's Twitter Profile Photo

We want to hear from you! šŸ“ Please complete our survey about the future priorities of CM and ensure we take account of the diverse and developing opportunities that are happening in the #AAC world. Please sharešŸ” communicationmatters.org.uk/news/cm-survey…

We want to hear from you! šŸ“ Please complete our survey about the future priorities of CM and ensure we take account of the diverse and developing opportunities that are happening in the #AAC world. Please sharešŸ”
communicationmatters.org.uk/news/cm-survey…
Rachel Brown (@mnd_commsaids) 's Twitter Profile Photo

All set up for our 3rd annual Community of Practice event. Meeting HSCPs to tell them more about #mnd #aac & the MND Association Communication Aids Service

All set up for our 3rd annual Community of Practice event. Meeting HSCPs to tell them more about #mnd #aac &amp; the <a href="/mndassoc/">MND Association</a> Communication Aids Service
MND Association (@mndassoc) 's Twitter Profile Photo

Watch our BBC Lifeline Appeal live right now on BBC One and BBC iPlayer. MND Association patron, Charlotte Hawkins, presents the appeal featuring Eoin, James and Maggie who all share their stories of living with #MND. Click below to watch and support.

MND Association (@mndassoc) 's Twitter Profile Photo

Tofersen is an effective new treatment for those with the SOD1 genetic variant of motor neurone disease. It works. It can slow progression of their #MND. Join the community and call for NICE to make an exception to its normal criteria. Sign our petition below. #PrescribeLife

MND Education (@mndeducation) 's Twitter Profile Photo

Access to CHC funding can make a huge difference to people with #MND who are eligible for this support. Find out more in our webinar recording, featuring Hayley Koumas, CHC Improvement Co-ordinator. Find it in the "Types of support" drop-down menu. mndassociation.org/webinars

MND Association (@mndassoc) 's Twitter Profile Photo

"Because of generous people like you, I can now ā€˜say’ an infinite number of words and sentences." In 2023, 664 people with MND banked their voice. This was possible because of people like you. Please donate today to help those with MND continue to communicate. ⭐ #GivingTuesday

MND Education (@mndeducation) 's Twitter Profile Photo

We are excited to announce Jennifer Benson Richard Cave šŸ‡ŗšŸ‡¦ Rhiannon Evans & Victoria Edwards will facilitate our first online Competency Builder event on effective management of communication difficulties in #MND Book bit.ly/competency-bui… Visit our website for further dates and

MND Education (@mndeducation) 's Twitter Profile Photo

Join SLTs Jennifer Benson Victoria Edwards & Rhiannon Evans to our upcoming workshop in Manchester on 30/04 Through discussions and case studies, they will introduce HSCP to how to effectively assess and manage communication to maintain quality of life in people with #MND Book here

Join SLTs <a href="/JBSLT/">Jennifer Benson</a> Victoria Edwards &amp; Rhiannon Evans to our upcoming workshop in Manchester on 30/04

Through discussions and case studies, they will introduce HSCP to how to effectively assess and manage communication to maintain quality of life in people with #MND

Book here
MND Education (@mndeducation) 's Twitter Profile Photo

After the success of the last Competency Builder session, we are excited to announce a new event on 13 May This event is designed to help HSCPs build their practical skills in managing the effects of communication difficulties in people with #MND Book here

After the success of the last Competency Builder session, we are excited to announce a new event on 13 May

This event is designed to help HSCPs build their practical skills in managing the effects of communication difficulties in people with #MND

Book here
MND Education (@mndeducation) 's Twitter Profile Photo

It's World Voice Day! People with #MND often experience speech issues and use Augmentative and alternative communication (AAC) Some may bank their voice for future use with AAC systems. This is an important intervention for their quality of life and care Learn more on

It's World Voice Day! People with #MND often experience speech issues and use Augmentative and alternative communication (AAC)

Some may bank their voice for future use with AAC systems. This is an important intervention for their quality of life and care

Learn more on
MND Education (@mndeducation) 's Twitter Profile Photo

It's critical for the care team to regularly assess & review communication and speech of a person with #MND HSCPs should offer ongoing support, training and management solutions to people in their care, their families and carers Learn more on mndassociation.org/dysarthria

It's critical for the care team to regularly assess &amp; review communication and speech of a person with #MND

HSCPs should offer ongoing support, training and management solutions to people in their care, their families and carers

Learn more on mndassociation.org/dysarthria
MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

This June, we're holding an event in Parliament for #GlobalMNDAwarenessDay with the theme: 'The Hidden Realities of MND'. šŸ“… Invite your MP to attend using our email template below: act.mndassociation.org/invite-your-mp…

This June, we're holding an event in Parliament for #GlobalMNDAwarenessDay with the theme: 'The Hidden Realities of MND'. šŸ“…

Invite your MP to attend using our email template below: act.mndassociation.org/invite-your-mp…
MND Education (@mndeducation) 's Twitter Profile Photo

It's the last week to sign up to our final Competency Building workshop Effective management of communication difficulties! It will be delivered online on 13 May by expert SLTs See the full programme below and book your spot: bit.ly/competency-bui…

MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

To mark #GlobalMNDAwarenessDay in June, we're holding an event in Parliament with the theme: 'The Hidden Realities of MND'. MPs will hear directly about the real issues facing people with #MND—and how they can make a difference. Take 30 seconds to invite yours:

To mark #GlobalMNDAwarenessDay in June, we're holding an event in Parliament with the theme: 'The Hidden Realities of MND'. 

MPs will hear directly about the real issues facing people with #MND—and how they can make a difference.

Take 30 seconds to invite yours:
MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

ā€œI watch my symptoms worsening week by week, month by month. It’s devastating to know that a treatment exists that could stop this, but I just can’t access it.ā€ For some people living with #MND, tofersen can be life-changing. However, tofersen isn’t being made available to

ā€œI watch my symptoms worsening week by week, month by month. It’s devastating to know that a treatment exists that could stop this, but I just can’t access it.ā€

For some people living with #MND, tofersen can be life-changing. 

However, tofersen isn’t being made available to
MND Association (@mndassoc) 's Twitter Profile Photo

Our partnership with Omaze UK is more than a prize draw, it’s a chance to make a real difference. Money raised will contribute to our Research Nurse Network - aiming to give those with #MND a chance to take part in vital research. Backed by Eddie Redmayne. Powered by you.

Ace Centre (@acecentre) 's Twitter Profile Photo

Trying to find out who provides AAC/AT services in your area? Our handy service finder is a great tool to get a quick and easy view of your local AAC, Wheelchair and EC services (UK only) Try it here šŸ‘‰ buff.ly/3RwqGsI buff.ly/4iKqPow #aac #aacpeeps #altcomm

Trying to find out who provides AAC/AT services in your area?

Our handy service finder is a great tool to get a quick and easy view of your local AAC, Wheelchair and EC services (UK only)

Try it here šŸ‘‰ buff.ly/3RwqGsI

buff.ly/4iKqPow

#aac #aacpeeps #altcomm
MND Campaigns (@mndcampaigns) 's Twitter Profile Photo

We are almost 1 week away from our #GlobalMNDAwarenessDay Parliamentary event. If you haven't done so already, please invite your MP to attend using the email template below act.mndassociation.org/invite-your-mp…

We are almost 1 week away from our #GlobalMNDAwarenessDay Parliamentary event. 

If you haven't done so already, please invite your MP to attend using the email template below act.mndassociation.org/invite-your-mp…