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Here's what people will be hearing around Westminster today, thanks to Billboards for LC/MECFS Digivan that is currently circling around DWP, parliament and SW1 generally!#LongCovidAwarenessDay

Maureen Hanson, PhD, and I have written an op-ed for The Hill, a non-partisan Washington DC news publication with 31 million online views per month, about the seriousness of ME and the need for equally serious funding by Congress. thehill.com/opinion/461560…

Today, we hear Nevra's story, as she perseveres through #SevereME in Pakistan. "I can’t keep up with hygiene due to PEM and keep getting infections. My care is so neglected." Thank you Nevra, for sharing your story as a #GlobalVoiceForME. #WorldMEDay buff.ly/3UwyLQd

Squeeze Liberals on disability benefit, advocates tell NDP thestar.com/politics/feder…

We are excited to show you the first video of our campaign. This video will air on Austrian television over the next few weeks. Please help us raise awareness by sharing this tweet. More info: weandmecfs.org/awareness Donations help us liberate those affected. 🙏 #MECFS 💙

We're thrilled to announce our #WorldMEDay event Bridging Borders – Global Voices from the World ME Alliance on May 10th! We will showcase the committed work of non-profit organisations from across the globe, all building a #GlobalVoiceForME! Register: buff.ly/4b30ugO

Become a #GlobalVoiceForME Contact Canada's WHO National Counterpart PAHO/WHO to demand Recognition, Research and Respect from the world’s largest intergovernmental health organization! #MyalgicEncephalomyelitis #WorldMEDay #ChangeTheFuture4ME #pwME worldmealliance.org/global-voice-f…

"Without our memories, who are we? This has probably been my greatest loss." Una shares her experiences of deteriorating ME, and the compounding losses that come with it. #GlobalVoiceForME #WorldMEAlliance #SouthAfrica Read her story, hear her voice: buff.ly/3Upj8sE

We're thrilled to see Robin Swann, Northern Ireland's Minister for Health Department of Health, stepping up as a #GlobalVoiceForME for #WorldMEDay. Thanks to Hope 4 ME & Fibro NI for developing the #DiscoverME virtual reality experience and medical education that led to this! #MECFS #LongCovid

Lives on Hold... Lives Interrupted... Lives in Limbo. Indefinitely. #MEAwareness Profile Frame: bit.ly/2QgwpGj #MyalgicEncephalomyelitis #LongCovid #HealthEquity #MillionsMissing #ChangeTheFuture4ME #GlobalVoiceForME

Incredible #LiegendDemo actions across Germany today! So powerful to see so many lying down in resistence! As our colleagues from South Africa proclaimed yesterday, persistence is resistence, and the scenes from Germany demonstrate how true this is! #WorldMEDay #MyalgicE

On #WorldMEDay, we come together as a #GlobalVoiceForME. Millions more are developing #MECFS triggered by #COVID. This is a global health crisis. We demand: Recognition Research Respect Take action to call on your country to become a #GlobalVoiceForME at worldmeday.org

The CDB, as proposed in Budget 2024 is entirely insufficient. People with disabilities deserve better. If you agree, help amplify the voices of the disability community by signing and sharing the petition at mikemorricemp.ca/fixtheCDB

If people with disabilities can access the Canadian Dental Care in 2025 without the Disability Tax Credit, why can’t they access the Canada Disability Benefit in 2025 without the Disability Tax Credit?

#SevereMEDay 2024 The #MaeveInquest highlights the urgent need for safer hospital care for people with #Severe #MyalgicEncephalomyelitis. Learn more about #SevereME: buff.ly/46wv5lD

Today, #SevereMEDay 8th August, we highlight the mistreatment of people with #SevereME in hospitals across the globe. Read their testimony now: worldmealliance.org/2024/08/hospit… #MyalgicEncephalomyelitis #MECFS #EMSFC

There’s a vast difference between those with #MEcfs who live with or are cared for by loving, understanding people. Those who may live alone dependent on unskilled strangers for care. Those who live in unsafe situations. All are ill but will have a very different Christmas.

Byron M. Hyde, MD Aug. 8, 1936 to Nov. 17, 2024 Sad news... And a beautiful tribute on the Nightingale Research Foundation FB page. #ME Champion facebook.com/groups/1063785…