#als #caregiver #uncrushablespirit

NEW EPISODE! Brady, 11 & Brooklyn, 8 lost their dad to ALS this year. I chat with them about their father, Chris Yozwiak & what they’re doing to help End ALS. Listen in: podcasts.apple.com/us/podcast/im-… ALS TDI

People from different cultures process and handle illnesses such as #ALS differently. Learn more by attending the "Impact of Cultural Beliefs & Acceptance in ALS and Terminal Diseases" discussion brought to you by the #ManyShadesofALS team on Dec. 10. bit.ly/410Xek9

When Doug's wife, Shadene, was diagnosed with #ALS in 2017, Doug stepped up to provide her with steady support and care. Thank you, caregivers! 💙 During #NationalCaregiversMonth, we are honored to highlight some of the many terrific caregivers in the #LiveLikeLou community.

The Elizabeth Dole bill has passed in the House -- now all that's left is the Senate! Use this action to contact your Senators and encourage them to support this bill that will allow more Veterans living with ALS to continue receiving care in their homes. iamals.org/action/elizabe…

NeuroSense Therapeutics Enters Binding Term Sheet to Advance PrimeC for ALS 💫 "Take-Home Message": 1. This is yet another strong validation of our groundbreaking science and clinical trial, highlighting the immense promise PrimeC holds. 🧠 2. $NRSN is in a solid financial

You can help I AM ALS go further this year by donating your @United Airlines miles. It's so easy -- just follow this link to our Miles on a Mission page! donate.mileageplus.com/Charity/Detail…

📣We welcome you to join Center for Medicare Advocacy attorneys for our upcoming free live webinar! Learn about Medicare Appeals 101 Wed, 4/2 at 2:00 PM ET Register today⬇️ medicareadvocacy.org/webinars/

Urgent action! The House has released a continuing resolution bill to fund 2025 with dramatic cuts to the Department of Defenses’s CDMRP, which funds ALS research. We cannot allow this. Ask your legislators to continue to fund this critical program: iamals.org/cdmrp2025/

As ALS progresses, you may experience muscle tightness and joint stiffness due to lack of movement. Range of motion exercises can help improve flexibility and reduce discomfort. #als #alsandexercise #rangeofmotion

Happening today! Office hours at 4:30pm ET/ 1:30pm PT. Join & ask any question on ALS, communication challenges, your communication device/apps/software & new technology. All are welcome! airtable.com/appmv67LH3qRov…

Technology In The Home | Hope & Housing | ALS Home Renovation Series youtu.be/xoVkudh6TS8?si… via YouTube #accessible #enable #gaming #als

Thank you ⁦Senator Dick Durbin⁩ for you continued support of the ALS community thank you Robert Spivey for listening to our group. ⁦I AM ALS⁩ ⁦Les Turner ALS Foundation⁩ #ENDALS

Curious about how genetics play a role in ALS when there is no family history? Join us on Tuesday, May 27th at 5pm EST for a free one-hour webinar led by Ms. Laynie Dratch, a licensed, certified genetic counselor at Penn Medicine. iamals.org/genetics-of-al…

Thank you for your ALS leadership Senator Dick Durbin and for sharing Brian Wallach & Sandra Abrevaya's story with Secretary Kennedy. ALS is urgent with no time to waste. We look forward to advancing research & access to promising treatments with Sec. Kennedy, Jay Bhattacharya DrOzCMS Dr. Marty Makary

The Clinical Trials Team hosted a fantastic webinar last week on Genetics and ALS. If you missed it, never fear—the full recording is available on our YouTube channel! Watch it here: youtube.com/watch?v=grUn2E…

Join I AM ALS, Lorenzo's House, and Global Neuro Ycare on Thursday, June 13 for a virtual event designed for children and families to raise awareness about ALS, other motor neuron diseases (MNDs), and younger-onset dementia. Learn more & sign up: bit.ly/4kMmDEX

Great to see I AM ALS’s Brian Wallach and Sandra Abrevaya today—even if virtually. The best hope for an ALS cure or treatment is NIH. I will do everything I can to fight back against the Trump Admin’s medical research cuts—for Brian and others like him.

We are deeply saddened by the passing of our dear friend Phil Green, a fierce advocate for the ALS community.  Phil was one of the forces behind the founding and shaping of #LouGehrigDay across MLB. We send our deepest condolences to Phil’s wife Jennifer, their four children,

Help me grow the movement to end ALS by asking your representative and senators to join the ALS Caucus. iamals.org/build-congress…