Want to support employees with ME/CFS? ME Support's Practical Considerations for Employers helps to identify reasonable adjustments you can make to help employees manage their illness better. Read more here mesupport.im/wp-content/upl… #LearnFromME #WorldMEDay

Global advocacy leaders speak out on post-exertional malaise for #WorldMEDay, discussing the impact of the disease where pushing harder can make you sicker… #LearnFromME #MyalgicE #LongCovid buff.ly/3LSo3Om

A worldwide narrative on #WorldMEDay reflected in our story #MECFS #MECFSAwarenessDay #PostViral

Juan Corlett stresses the importance of tailored support, saying that 'the nature of the condition means every individual’s experience is different, with varying degrees of severity when it comes to presentation of symptoms. Support for each individual needs to be tailored'.

Disappointed that the lives of young people were forgotten in the Isle of Man's #LongCovid response. “There was no guidance about Long Covid for schools”😞 The combined adult #LongCovid & #MECFS adult service is celebrated. #IsleofMan #covidreview covidreview.im/wp-content/upl…

Disappointed doesn't come close. More like heartbroken. More like angry. More like devastated. Our charity has been ran by parents of young people living with post viral illnesses for most of its 35 year history. This failure is too close to the bone 😔 #mecfs

The Isle of Man Covid review concluded that the lasting effects of #LongCovid were not considered. Pauline was one of the first to get Covid on the island and never revovered. Full report (3 mins) fb.watch/pwLk7wz3Mi/

"When there is a pandemic of this nature, a post-viral effect is entirely predictable." - Kate Brunner KC. Manx Radio report on the Isle of Man's Covid Review findings, with a particular focus on #LongCovid and #MyalgicE in young people from ME Support (IOM). buff.ly/3Ho3xmX

On May 12th 2024, we will stand together for #WorldMEDay, marking 55 years since WHO recognized #MyalgicEncephalomyelitis. #COVID-19 has worsened this global health crisis, now affecting over 55million worldwide. With no cure, it's past time for change! Become a #GlobalVoiceForME

For #WorldMEDay 2024, a big focus will be building relationships with health ministries of different nations in order to advocate with the World Health Organization. Countries must unite as a #GlobalVoiceForME to address this global health crisis. buff.ly/487nvgv

Today, on International #LongCOVIDAwarenessDay, we emphasize our commitment to #ConfrontLongCovid, in solidarity with the millions of lives devastated by #LongCovid, many of whom are now being diagnosed with #MyalgicEncephalomyelitis. buff.ly/48TVdXu