Did you know? During #BAMonth2025 we're raising funds & awareness for #fibromyalgia & related illnesses. Fibro is a common but often-misunderstood condition that affects many people (including members of our own team & community). Learn more from ME|FM Society of BC: mefm.bc.ca/what-is-fm

Today's the #May12th Awareness Day for #MECFS, #Fibro & other chronic neuro-immune diseases. Today we're grateful to the artists, advocates, orgs & community members joining us to raise awareness for these illnesses - and to everyone who turns awareness into action year round.

Today and throughout the month, we're particularly honoured to spotlight so many incredible #ChronicallyIll creatives. Discover their work through our #BAMonth2025 event hub at benefit.operamariposa.com, and find their artist profiles at operamariposa.com/artists/.

Thanks you so much for joining us for today's #BlueSunday2025 #TeaPartyForME2025. However you participated - whether you joined the Zoom, hung out in blue PJs, or treated yourself to a nice cuppa tea - we hope you've felt the strength &joy of being in community today 💙 ME|FM Society of BC

Did you know? Our charitable partner ME|FM Society of BC is run by & for people with #MECFS, #Fibromyalgia, & now #LongCovid as well. Long Covid is an umbrella term for the complex suites of symptoms that can persist or develop after a Covid infection. Learn more: mefm.bc.ca/what-is-me-wha…

ME|FM Society of BC If you haven’t checked it out yet, don’t miss your chance to enter to win over $3k in prizes for a great cause! Head over to PrizeDraw.OperaMariposa.com today - then be sure to check out all the other music, art, merch and more in support of the chronic illness community!

Edited Clip from The Golden Girls (1989): Dorothy finally sees a doctor who diagnoses her with Chronic Fatigue Syndrome, he explains that some doctors aren’t aware or don’t believe in it so they tend to blame the victim. #MECFS Note: Some medical details are outdated

After recent and harmful policy directives targeting Vancouver’s unhoused, Council must support this motion as a signal that they actually do care about people living in poverty. Housing is a human right.

For ME Awareness Week 2025, we shared infographics raising awareness about the debilitating nature of ME/CFS, but also about the research being conducted to tackle the symptoms associated with the disease. For ease of access, we have collated: bit.ly/mesymptomsandr…

350,000 people currently live with Me/Fm and Long-COVID ME , they collectively represent a major public health burden in BC but have almost zero resources. Josie Osborne 🇨🇦 we look forward to speaking to the budget next week. (Dr Anna Kindy )

#MECFS is a severely debilitating illness that leaves about 25% of the patients housebound. Did you know that the illness does not only affect the lives of the patients, but that the quality of life of partners and other family members also is severely impaired? #MEAwarenessHour

The Navigating Summer toolkit is LIVE! It includes strategies for surviving summer with chronic illness: ✅ Heat management & emergency protocols ✅ Energy conservation guides ✅ Social navigation scripts ✅ Travel planning worksheets Register 2 DL- mefm.bc.ca/toolkits

For our community, navigating summer can be a struggle.Basic home modifications can drop your indoor temp by 5-10 degrees: Close curtains during peak🌞,10 AM-4 PM Strategic fan placement for cross-ventilation DIY swamp cooler = bowl of ice + fan #MEFMNavigatingSummer

PHASE 2 of #MEFMSummerTogether starts now! We've mastered heat management-now let's tackle social navigation.Summer brings increased social expectations when chronic illness symptoms may be most challenging.➡️4 wks: boundaries, gatherings, communication, workplace accommodations

We are excited to share the initial findings from Decode ME that people's genes contribute to their chances of developing ME/CFS. Read more here: decodeme.org.uk/initial-dna-re… #DecodeME #MyalgicEncephalomyelitis #MEAwareness

In honor of #SevereMEDay, we’re launching #UnitedForME, a shared hashtag to amplify stories, art & education from the Severe ME community. Join us in uplifting voices that need to be heard. 💙 #SevereME @openmedf @plzsolvecfs @meactnet

What if your body couldn’t bear light, sound, movement — or even touch? Today, #SevereMEDay, we ask you to imagine living that way not just for a day… but for years. For people living with Very Severe ME, this isn’t a metaphor — it’s reality. 🧵

As Severe ME Day comes to a close, we light a candle to remember those we have lost. We send our love to all who are grieving. We hold each other in our hearts as we each have a list of names that goes through our minds as we light our candle. #SevereMEday #UnitedforME

🔥Mount Sinai launched a clinical manual for treating Infection Associated Chronic Illnesses #LongCovid #MECFS #Lyme Patients can download as well. Great resource made by great people. Loving the transparency as always! Putrino Lab Amy Proal, PhD Dr. Raven the Science Maven

Join Open Medicine Foundation for a webinar: OMF’s Research Portfolio 📅 October 30 | 🕙 1 PM PT Hear from Linda Tannenbaum, OMF Founder & CEO, and Danielle Meadows, VP of Research Programs, about OMF Global & OMF Canada’s research progress, with live Q&A. 👉 Register: ow.ly/WyYp50X6rVV