From Ron Davis: Stanford ME/CFS Collaborative Research Center Community Symposium on the Molecular Basis of ME/CFS Agenda September 5, 2025 8:00am - 2:30pm Register: stanford.zoom.us/webinar/regist…

Extremely happy to see more ME/CFS awareness. In the 1980s, patients with debilitating fatigue were dismissed. Now, two new studies are bringing long-overdue credibility to ME/CFS. Published by Smithsonian Magazine: bit.ly/3UNqUNy

Starting Sept 30, 2025, the govt will stop mailing paper checks for Social Security, SSDI & SSI. ME/CFS patients must switch to direct deposit or Direct Express to keep benefits. Call SSA: 1-800-772-1213 or visit ssa.gov. Please share widely!

New study: fragments of Borrelia burgdorferi (Lyme bacteria) can linger in the liver for weeks, triggering immune and metabolic issues. May explain persistent symptoms after treatment (PTLDS). Similar mechanisms may apply to ME/CFS and Long COVID. the-scientist.com/fragments-of-l…

ProPublica’s deep dive into the SSA highlights decades of legacy systems, recent management upheaval, & ongoing modernization struggles, issues that affect disabled people who depend on timely and reliable benefits. propublica.org/article/inside…

ME Research UK & ME Association have funded the next phase of a study at Brunel University exploring electrical differences in blood cells to develop a reliable, low-cost ME/CFS diagnostic test. Learn more: bit.ly/4pu2qXM

Every U.S. state has a Protection & Advocacy (P&A) agency that defends the rights of people with disabilities: free, independent, and federally authorized. Find yours: acl.gov/programs/find-…

Fall 2025 COVID-19 & Flu vaccines are here. This guide, created for the ME/CFS community, outlines current access issues: state rules, insurance basics, pharmacy limits, and key resources. reddit.com/r/mecfsSD/comm…

Sept 25 at 3PM ET: Join the #NotJustFatigue ME/CFS livestream briefing. 30 mins of research, lived experience & policy: featuring Dr. Lipkin, Ryan Prior, Elizabeth Ansell & more. Premieres video on Dr. Maureen Hanson's work. Register: notjustfatiguelivestream.org

Join the NASEM virtual workshop Oct 22-23, 11am-3pm ET, on brain-body interactions & advancing brain health. Explore how brain-immune, brain-heart, & gut-brain links impact neurological & psychiatric diseases. Details: nationalacademies.org/event/45148_10…

TOMORROW! Join Scripps Research Dr. Benjamin Cravatt on Sept 17 for a free online talk on turning “undruggable” disease targets into treatments. Discover how chemistry is reshaping drug discovery. 4PM PT | 7PM ET frontrow.scripps.edu/lectures/benja…

ME/CFS Patients, families, providers, and researchers are invited to take part in a global survey on case definitions and core symptoms. Help inform research and build consensus. May take ~10-30 mins. Survey: redcap.is.depaul.edu/surveys/?s=PY7…

New Dr. Alain Moreau study, with collaborators from Montreal, Uppsala & Open Medicine Foundation computational biology team, finds haptoglobin (Hp) drops after exertion in ME/CFS, linked to worse PEM & cognitive issues. Genetic Hp variants influence symptom severity. …nslational-medicine.biomedcentral.com/articles/10.11…

ME/CFS patients face rising barriers: ACA subsidies expire in 2025, research funding reduced, Medicaid cuts loom. Urge Congress to act now: extend subsidies, protect care access, fund research. Find your reps: congress.gov/members/find-y…

This year has been especially hard for our ME/CFS San Diego team. Like many in our community, I’ve had worsening symptoms and limited capacity. So we’re keeping our annual fundraiser simple. If you’re able, please support: mecfssandiego.com/support-mecfs-…

Today’s the LAST DAY of ME/CFS San Diego’s Days of Giving 2025 💙 We fundraise once a year to power awareness, education & advocacy for ME/CFS. Every share or dollar helps. Give: mecfssandiego.com/support-mecfs-… Watch: youtube.com/@mecfssd

Coffee with a Clinician: new free series from Bateman Horne Center Next session: Navigating Clinical Uncertainty Oct 8, 10 AM MDT For ME/CFS, Long COVID, IACCs Register: batemanhornecenter.zoom.us/meeting/regist… Will be recorded

October Support Groups from @BatemanHorneCenter for ME/CFS, Long COVID, and related conditions Oct 14 1pm MDT Navigating the Complex Healthcare Industry Register: batemanhornecenter.zoom.us/meeting/regist… Oct 21 1pm MDT Parenting with Chronic Illness Register: batemanhornecenter.zoom.us/meeting/regist…

Researchers at UEA & Oxford BioDynamics have developed a potential blood test for #MECFS with 96% diagnostic accuracy (92% sensitivity, 98% specificity). Early days, but could be a breakthrough. More validation needed. uea.ac.uk/about/news/art…

DePaul University is running a second survey to help develop a tool to assess Post-Exertional Malaise (PEM) in ME/CFS. Open to adults 18+ globally both those with PEM AND healthy controls. Takes ~10–15 mins. dsqpem2.com