🩸 Connecting with #MDS patient orgs benefits both patients & caregivers. They offer counseling, advocacy, access to clinical trials, legal advice, long-term survivorship planning, amongst others. Engaging them early can greatly improve your MDS experience #United4MDS #ThinkMDS

💭 Gereon Mänzel from LHRM-MDS Patienten-Interessen Gemeinschaft on how #MDS patient orgs can be vital, offering easy-to-understand info and connecting patients with experienced peers. Find support: buff.ly/3TbJxtX #United4MDS #ThinkMDS

🩸Prof. Dr. Uwe Platzbecker, Dir. of the Clinic & Polyclinic for Hematology, Cell Therapy and Hemostaseology at Leipzig University Hospital highlights the strength in collaboration. Together, patients, patient orgs, and healthcare pros can enhance MDS care. #United4MDS #ThinkMDS

🩸 As Blood Cancer Awareness Month 2024 ends, thanks for helping to raise awareness about #MDS! Connecting with patient orgs is vital for better outcomes. Explore resources at buff.ly/3Xn7WPE & buff.ly/3TbJxtX #United4MDS #ThinkMDS

📆 Mark your calendars for 𝐌𝐃𝐒 𝐖𝐨𝐫𝐥𝐝 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐃𝐚𝐲 𝐨𝐧 𝟐𝟓𝐭𝐡 𝐎𝐜𝐭𝐨𝐛𝐞𝐫! With Blood Cancer Awareness Month 2024 behind us, let’s keep raising awareness & advocating for those living with #MDS. Stay tuned for #MDSWAD2024 updates. #United4MDS #ThinkMDS

📅 Countdown to #MDSWAD2024 25 Oct: Patient Organisations 👈 This year, the spotlight is on the role of patient organisations in the #MDS community. Dr. Brett Houston of CancerCare Manitoba emphasises their impact on support, research & advocacy. #United4MDS! #ThinkMDS

📅 Countdown to #MDSWAD2024 25 Oct: Addressing MDS Challenges Together 🤝 MDS impacts every aspect of life, from symptoms to emotional & financial strain. Ken Yanko from AAMAC1989 highlights how patient orgs can help. Join us to raise awareness on MDS! #United4MDS #ThinkMDS!

📅 #MDSWAD2024 is this week on 25 Oct! Early detection is 🔑 for MDS. It's often diagnosed through low blood counts, with bone marrow tests to confirm abnormal cells. For useful info and resources, patient orgs can help patients on their journey! #United4MDS #ThinkMDS

💬 Dr. Heather Leitch, St. Paul’s Hospital, highlights that patient orgs aren’t always covered in medical training. HCPs can enhance MDS care working with these groups as they offer education and support, improving patient outcomes 🩸Join us for #MDSWAD2024! #United4MDS #ThinkMDS

👏 A massive 𝐓𝐇𝐀𝐍𝐊 𝐘𝐎𝐔 to our sponsor, Bristol Myers Squibb! With your support, MDS World Awareness Day 2024 was a success! 🩸 #MDSWAD2024 #United4MDS #ThinkMDS

🚨 Just one more day to #MDSWAD2024! Connecting with MDS patient organisations offers less-known benefits, like access to critical info that can save time and energy. As caregiver Diane Coyne shared, it could ease both time and financial burdens. #United4MDS #ThinkMDS

🩸 #𝐌𝐃𝐒𝐖𝐀𝐃𝟐𝟎𝟐𝟒 𝐢𝐬 𝐡𝐞𝐫𝐞! #MDS is a rare blood cancer where the bone marrow doesn’t produce enough healthy cells. Its life-impacting symptoms include fatigue, breathlessness, and infections. For info: buff.ly/4eguIPv #MDSWAD2024 #United4MDS #ThinkMDS

🩸 #MDSWAD2024: Healthcare professionals play a crucial role in supporting #MDS patients. As Jill Dolgin from the @mdsfoundation notes, recommending patient orgs isn’t always top of mind. By linking patients to support groups, care can be more well-rounded. #United4MDS #ThinkMDS

🩸 #MDSWAD2024: Gereon Mänzel from LHRM-MDS Patienten-Interessen Gemeinschaft share his thoughts on the benefits of connecting with MDS patient orgs. Become part of a supportive community today! Find out more at buff.ly/3Xn7WPE #United4MDS #ThinkMDS

🩸 THANK YOU to members, friends, supporters & advocates for your incredible commitment to raising awareness for myelodysplastic syndromes (#MDS) this #MDSWAD2024. Together, let's remain #United4MDS to continuously address the needs & challenges of the MDS community. #ThinkMDS

📢 Last week, MDS Alliance members met in person, coinciding with #MDSWAD2024, for a powerful session of learning, collaboration, and future planning! We focused on advocacy skills, research updates, and strengthening connections. Huge thanks to everyone who joined! 🌍💪#Advocacy

Your voice matters! The #MDS Alliance global survey is live! If you're an MDS patient or carer, your experiences can shape the future of care. Help us advocate for better treatments and support. Take the survey: bit.ly/2024MDSGlobalS… #Survey2024 #MDSAwareness

#MDS Patients & caregivers: Share your experiences with healthcare access, services, and medications in our 20-30 minute survey—available in 11 languages! Your insights drive real change in healthcare. Make your voice heard! 🗣 bit.ly/2024MDSGlobalS… #Survey2024 #PatientSurvey