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The approval allows the DMD gene therapy to be sold in Japan for up to seven years, but more trials will be needed for full approval. bit.ly/3FeD2mt #MuscularDystrophyNews #MuscularDystrophy

New data demonstrated the benefits of Elevidys, a gene therapy for multiple Duchenne muscular dystrophy, in different age groups. bit.ly/4jaoQso #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

There isn’t a road map to navigate raising a child with DMD, but words of wisdom from others who have faced a similar journey may help. bit.ly/43eBbpy #duchennemusculardystrophy #DMD #caregiver

Columnist Shalom Lim stood up for his right to inclusive access to a major sporting event — and a local soccer club responded. bit.ly/43nqrFx #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

Aging with FSHD brings many challenges, columnist Robin Stemple says, but he works hard to maintain an attitude of gratitude. bit.ly/3HkwNOs #MuscularDystrophyNews #MuscularDystrophy

Exon-skipping therapies work by removing certain exons in the DMD gene sequence to create a better fit with remaining exons. Learn more here: bit.ly/43iGF2F #MuscularDystrophy #MDCommunity #LivingWithMD

Long-term data from Genethon’s GNT0004 Phase 1/2 trial reveal sustained motor function in boys with Duchenne muscular dystrophy. buff.ly/irXQpLq #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

A couple of speeches recently helped columnist Betty Vertin newly appreciate how much motherhood has been her life purpose. buff.ly/Gndm3hR #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

Here is this week's most-read article featured on our website. Are you caught up? buff.ly/Xxa7qPR #MuscularDystrophyNews #MuscularDystrophy

Long-term data from Genethon’s GNT0004 Phase 1/2 trial reveal sustained motor function in boys with Duchenne muscular dystrophy. buff.ly/O7gvVfx #MuscularDystrophyNews #MuscularDystrophy

DMD treatment SAT-3247 was safe and well-tolerated, and showed signs of increasing muscle strength in five adults, Satellos said. buff.ly/dFXzBMA #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

A couple of speeches recently helped columnist Betty Vertin newly appreciate how much motherhood has been her life purpose. buff.ly/hgRhFny #MuscularDystrophyNews #MuscularDystrophy

CureDuchenne is investing $1 million in Entos Pharmaceuticals to support the development of a new DMD gene therapy. buff.ly/ZsD9NPM #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

After taking a day for reflection on her sons' lives with DMD, columnist Betty Vertin says she feels more on top of their care. buff.ly/mpd4QBp #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

Here is this week's most-read article featured on our website. Are you caught up? buff.ly/8YTRcud #MuscularDystrophyNews #MuscularDystrophy

With FSHD, the need to adapt seems never-ending, which is why columnist Robin Stemple and others feel like they're constantly in transition. buff.ly/JhQ6ZcP #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

Pepgen will stop development of its Duchenne MD exon-skipping therapy PGN-ED051 after increases in dystrophin levels proved disappointing. buff.ly/usQtqRt #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

Building empathy and having clear communication are key to improving patient outcomes in DMD, writes columnist Shalom Lim. buff.ly/oduG72f #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

The FDA has awarded orphan drug status to ISX9-CPC, an experimental stem cell therapy targeting heart problems in Duchenne muscular dystrophy. buff.ly/NnEvJTg #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

Columnist Betty Vertin acknowledges the mixed feelings of fear and pride as her youngest son with DMD begins with high school band. buff.ly/2r3sFcF #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD