MDDA (@mdda_au) 's Twitter Profile
MDDA

@mdda_au

The Metabolic Dietary Disorders Association (MDDA) is an Australian self-help group supporting people affected by genetic inborn errors of metabolism

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linkhttp://www.mdda.org.au calendar_today24-02-2013 00:24:18

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Yesterday, June 28th, was International PKU Day! We hope that you spent some time celebrating all the great aspects of PKU that make you, YOU! Did you know?: - Robert Guthrie, the inventor of the newborn screening… instagram.com/p/CCANeWvnR-V/…

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New LowPro Inspo Video! – Ben & Bianca Make Coconut Sago Pudding! . After being a huge hit at our MDDA Retreat, you can learn how to make your very own Low Protein Coconut Sago Pudding at home! Watch The Grand Hotel… instagram.com/p/CCKiQY9Ht3X/…

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MDDA home Retreat Registrations NOW OPEN!! You might have seen in our most recent eNews that we have opened registrations for our first ever virtual home Retreat! To register for this year’s FREE event click the… instagram.com/p/CE0aAvtnV1P/…

Global Association for PKU (@gap_pku) 's Twitter Profile Photo

Join us for an around the world in a day virtual event experience. Registration is FREE but pre-registration is essential online here gener8.eventsair.com/gpkuc21/ #GPKUC21 #PKU #GAP #PKUCURE #RAREDISEASE #Phenylkenenuria

Join us for an around the world in a day virtual event experience.
Registration is FREE but pre-registration is essential online here gener8.eventsair.com/gpkuc21/

#GPKUC21 #PKU #GAP #PKUCURE #RAREDISEASE #Phenylkenenuria
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Check out everything that is going to happen at the GLOBAL PKU PATIENT CONFERENCE. Click here to find out - bit.ly/3yMMzbg

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MDDA Important Announcement: Ensuring treatment access for all Australians with PKU 30 March 2022 Read this announcement online: mdda.org.au/mdda-announcem… Join our online FB campaign page: facebook.com/MakeSomeNoisef…

MDDA Important Announcement: Ensuring treatment access for all Australians with PKU 
30 March 2022 
Read this announcement online: mdda.org.au/mdda-announcem…
Join our online FB campaign page: facebook.com/MakeSomeNoisef…
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Breaking News - The Power of Advocacy a win for equitable treatment for the PKU Community. Kuvan (saproterin) approved for all adults. For more information click here - mdda.org.au/breaking-news-…

Breaking News - The Power of Advocacy a win for equitable treatment for the PKU Community. 

Kuvan (saproterin) approved for all adults. 

For more information click here - mdda.org.au/breaking-news-…