#MDA is pleased to announce a new research program called MDA Kickstart for Ultra-Rare Neuromuscular Disease Drug Development, in collaboration with @UCDavis and manufacturing partnership with Forge Biologics. Learn more: mda.org/press-releases… #Neuromuscular #RareDisease

In honor of #WorldDuchenneAwarenessDay, Barry J. Byrne, MD, PhD, Chief Medical Advisor, MDA, shared his perspective on both the real-world experience with Elevidys’ integration into clinical practice and his view on treatment decision-making. Learn more in CGTLive® ⬇️

💪 Join us for #30DaysOfStrength! 💪Together, we are Strong. And with your gift of $35 or more, you’ll receive this powerful tee that represents our connected, empowered, and strong community. Give today at mda.org/30days

Executive producer of the groundbreaking film #GoodBadThings, Steve Way, speaks with #MDA advocates before they head to Capitol Hill! 🎬 Steve is kicking off the day and encouraging advocates to make a positive impact. The perfect way to start our day on the Hill!

You can participate in events like these and raise your voice with us at MDA.org/Advocacy #HillDay #MDAonTheHill

We’re proud to announce the appointment of Barry Byrne, MD, PhD to our Board of Directors. His work as #MDA's Chief Medical Advisor will continue as he oversees the MDA Care Center Network. Learn more: mda.org/press-releases…… UF Powell Center Norman Fixel Institute for Neurological Diseases

We are so proud of this incredible group of #MDA advocates! We spent today on #CapitolHill advocating for legislative priorities for the #neuromuscular disease community. You can participate in events like these and raise your voice with us at MDA.org/Advocacy #HillDay

On this day of remembrance, #MDA pays tribute to the bravery and sacrifice of the hundreds of @fdny fire fighters and @iaffofficial members lost to 9/11. We stand in solidarity with all families impacted by 9/11, united in the belief that together, we are stronger. #NeverForget

🎮 Happy #NationalVideoGamesDay! 🎮 MDA Let's Play is a community united by the love of gaming. Throughout September, community-submitted photos and stories will be shown on Discord and Twitch channels each Saturday night at 7pm ET. Join in on the fun! twitch.tv/mda_letsplay

OPMD Association is thrilled to announce our OPMD Awareness Day event. Join us on September 23rd for a free OPMD Informational Webinar at noon eastern. Register here, opmd.ejoinme.org/register #OPMD #OculopharyngealMuscularDystrophy #OPMDawarenessDaySept23 #OPMDawareness

MDA's collaboration with Forge Biologics in the Kickstart Program advances #GeneTherapy development for #neuromuscular diseases, bridging the gap between academic science and drug development. Read more in BioPharma-Reporter: biopharma-reporter.com/Article/2024/0…

Over 100 advocates from 24 states convened in Washington, DC for #MDA #HillDay to move legislative policies for the #neuromuscular disease community forward. You can participate and raise your voice with us at MDA.org/Advocacy #MDAonTheHill24 MDA Advocacy

Earlier this week, we announced an initiative that brings hope to people living with ultra-rare #neuromuscular diseases. Introducing the MDA Kickstart program, designed to accelerate the development of #GeneTherapies for ultra-rare diseases. Learn more: mdaquest.org/mda-kickstart-…

Dr. Byrne, Chief Medical Advisor & Board member at MDA, discusses the expanding treatment options for #DMD and the challenges families face in decision-making. MDA plays a vital role in guiding families through these options. Read more in CGTLive®: cgtlive.com/view/byrne-mak…