
Marie-Claire Seeley
@mcseeley
Clinical Nurse, PhD, CEO of The Australian POTS Foundation, advocate for those with POTS and LongCOVID
ID: 361191746
http://potsfoundation.org.au 24-08-2011 11:55:13
293 Tweet
748 Followers
456 Following



#POTS might be underdiagnosed if doctors don’t test standing response long enough. Dr. Satish Raj’s Research Team research shows 5 minutes may not be sufficient. American Autonomic Society

That’s a wrap for #AAS2024! Thrilled to have received the trainee poster prize for our work on cerebral hypoperfusion in #POTS. Grateful for the recognition and the research shared this year! ADARC American Autonomic Society SAHMRI RBRC Uni SA



All PhD applicants and #POTS researchers in Australia. Applications for the 2025 Australian POTS Foundation research grant and scholarship call close on the 20th December.


Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability & QoL impacts for those with #POTS . 🙏 for the support of SAHMRI Heart Australian POTS Foundation ADARC Uni of Adelaide SA CVRN . Let’s drive change!


Love this from Prof Brendan Crabb Dr Michelle Scoullar (she/her) et.al. “increased awareness of the biomedical basis of #longCOVID should prompt clinicians to take patients more seriously.” insightplus.mja.com.au/2024/48/long-c…

An early Christmas present to all those with #POTS in Australia! Australian POTS Foundation


REVEALING the BRAIN'S HIDDEN STRUGGLE after SARS-COV-2 INFECTION : POTS (postural orthostatic tachycardia syndrome) Patients Show Reduced Cerebral Blood Flow Thanks thetranscendedman nature.com/articles/s4159…





New from Stanford Neurology & Neurological Sciences Among 491 individuals with no prior history of #autonomic disorders: 🔹 44% developed an autonomic disorder after COVID-19 🔹 75% of these had new onset POTS link.springer.com/article/10.100…


🚨 New research supported by Australian POTS Foundation published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use. Yet face longer diagnostic delays. Led by Marie-Claire Seeley Celine Gallagher Dennis H Lau 🔗bit.ly/4j3y0aH


New 🇦🇺 data from our POTS registry: teens & adults experience POTS differently. - Teens: worse orthostatic symptoms - Adults: more gut & bladder issues Both report = poor QoL. Proud to author this work. 👉 doi.org/10.5694/mja2.5… ADARC Dennis H Lau SAHMRI Australian POTS Foundation