Maddie's Vision is the only source of support to patients and families battling a Bone Marrow Failure Syndrome. We recently received some amazing feedback for our Tele-Support Service (formally Telehealth Nurse Service) and new Peer Support Program: loom.ly/v3GkqqY

We are excited to announce that registrations are now open for our next Patient and Family Educational Session on ‘Gene editing for inherited Bone Marrow Failure Syndromes’. Click here to find out more and to register: loom.ly/4sFoiUI

Maddie’s Vision is funding vital research to help reduce #bloodcancer risk by better understanding the indicators of disease progression & treatment response to support early intervention and a more personalised or tailored treatment for patients: loom.ly/AWDdy6Y

Maddie's Vision is funding research to improve Bone Marrow Failure Syndrome diagnosis, monitoring and treatment to reduce the number of children who progress to MDS and AML. Childhood Cancer Association Inc 🎗

Join the Maddie's Vision team at United Energy Around the Bay! There is still time to register ahead of the big day on Sunday 6th October. Use the code 'MRV10' for 10% discount on your registration. Look forward to seeing you there! 🚲💜 REGISTER NOW - loom.ly/NPDaMIU

There is still time to join the Maddie’s Vision team and #volunteer at the Event Village for United Energy Around the Bay on Sunday 6 October. Please register: loom.ly/ISsbDHQ @Bicycle_Network

This Blood Cancer Awareness month, we are sharing how our vital research is also working towards improved outcomes for those diagnosed with blood cancer. Learn more here: loom.ly/AWDdy6Y

Happy Birthday, Maddie 💜 Today we reflect on the incredible impact of your legacy. Thanks to you and your family, we are there for so many others battling a Bone Marrow Failure Syndrome diagnosis. We hope you know the extraordinary difference you have made – thank you.

This Childhood Cancer Awareness Month, we are highlighting the strong link between Bone Marrow Failure Syndromes and paediatric cancer. We're investing in innovative research that has the potential to also benefit other rare genetic disorders. Childhood Cancer Association Inc 🎗

Today is World Marrow Donor Day. Maddie Riewoldt was an incredible advocate for bone marrow donation. To help families battling a Bone Marrow Failure Syndrome, please contact our friends at #StrengthtoGive: loom.ly/R5UQzII #WMDD24

Peter, Dad of a one-year-old girl who has been battling Shwachman-Diamond Syndrome since birth, recently shared with us how important the Maddie's Vision Tele-Support Service has been for their journey. If you need support, please contact our amazing Nurse on 0477 884 955.

Only one week until United Energy Around the Bay!!! Use the discount code 'MRV10'. Visit us at the Event Village at Albert Park on Sunday 6th October, and help us raise vital funds and awareness for Bone Marrow Failure Syndromes. 💜 REGISTER NOW - loom.ly/yuCIOkU

This National Carers Week we would like to acknowledge and celebrate the invaluable contribution of parents, grandparents, siblings, family members, friends and all other caregivers who are supporting those battling a Bone Marrow Failure Syndrome diagnosis. @Carersaustralia

Maddie’s Vision is delighted to announce our fourth Patient and Family Educational Session for 2024. Hear from Australian experts presenting on psychological support and symptom management for young people undergoing a Bone Marrow Transplant. Register Now: loom.ly/c6JKrhU

Maddie’s Vision is thrilled to welcome MasterChef’s Andy Allen as our newest ambassador for Maddie’s Month! This November, support patients like Zahra by purchasing specially marked Flavorite packs available only at Coles! #MaddiesMonth #FightLikeMaddie #flavourforlife

Today is MDS World Awareness Day 2024. Myelodysplastic Syndrome (MDS) is a rare type of blood cancer where the bone marrow does not produce enough healthy blood cells. Reach out to Maddie's Vision if you need support. loom.ly/8Cu6KD0 #MDSWAD2024 #United4MDS #ThinkMDS

We were proud to host patients and their families to launch this year's Maddie's Month. This November, head to Coles for specially marked packs of Flavorite produce to support Maddie Riewoldt’s Vision! Andy Allen @coles #MaddiesMonth #FightLikeMaddie #flavourforlife

We’re thrilled to welcome our newest ambassador, the incredible Georgia Love! Please join us in welcoming Georgia to the Maddie’s Vision family! Learn more: loom.ly/gTYNEwE #FightLikeMaddie

Maddie's Month is officially underway! Show your support by purchasing Flavorite Mini Toms, Mini Caps, and Cherry Truss tomatoes. Stay tuned for inspiration from Andy Allen and head to your nearest @coles today! #MaddiesMonth #FightLikeMaddie #flavourforlife

Recently, our CEO Amy Coote, and Board Director Paul Gadomski, were hosted at Menzies Institute for Medical Research in Tasmania. Sincere thanks to the Gadomski family for their hard work and determination to honour Alex’s legacy through The Alex Gadomski Fellowship: loom.ly/SP-drpc