LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile
LUPUSUK ๐Ÿ’™

@lupusuk

LUPUS UK is the only national registered charity supporting people affected by #lupus and assisting those approaching diagnosis.

Reg Charity: 1200671

ID: 111548466

linkhttps://lnk.bio/LUPUSUK calendar_today05-02-2010 09:24:37

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LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

We have one filming slot available for our upcoming clinical trial video, aimed to help people better understand whatโ€™s involved in them. Please share with anyone who may be interested! For more information, contact [email protected] #ClinicalTrial #Lupus #Research #SLE

LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

Today marks the start of #LupusAwarenessMonth ๐Ÿ’œ This important month takes place during October every year in the UK and gives us the opportunity to raise awareness of #lupus amongst the public and medical profession. Get involved here: lupusuk.org.uk/lupus-awarenesโ€ฆ

Today marks the start of #LupusAwarenessMonth ๐Ÿ’œ

This important month takes place during October every year in the UK and gives us the opportunity to raise awareness of #lupus amongst the public and medical profession.

Get involved here: lupusuk.org.uk/lupus-awarenesโ€ฆ
Bath Institute for Rheumatic Diseases (BIRD) (@birdbathcharity) 's Twitter Profile Photo

October is #LupusAwarenessMonth Visit Lupus UK for advice and support. BIRD also has a series of #Lupus podcasts recorded with experts from the RNHRD RUH Bath ๐Ÿฅ. Find them here: birdbath.org.uk/lupus-podcasts

Md Yuzaiful Md Yusof (@yuz6yusof) 's Twitter Profile Photo

Itโ€™s #Lupus Awareness Month in the UK ๐Ÿฆ‹. What a better way to celebrate and increase awareness by exchanging knowledge and experience. Thank you Lupus UK for inviting me to deliver a talk on clinical trials update and new treatment ๐Ÿซถ๐Ÿผ. In Purple too ๐ŸŸฃ for extra awareness ๐Ÿ˜ƒ

Itโ€™s #Lupus Awareness Month in the UK ๐Ÿฆ‹. What a better way to celebrate and increase awareness by exchanging knowledge and experience. Thank you <a href="/LUPUSUK/">Lupus UK</a> for inviting me to deliver a talk on clinical trials update and new treatment ๐Ÿซถ๐Ÿผ. In Purple too ๐ŸŸฃ for extra awareness ๐Ÿ˜ƒ
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

Musculoskeletal (MSK) health is essential for a healthy, productive life. On World Arthritis Day, we are advocating for more collaboration health and social care to prevent and manage MSK conditions more effectively. #WAD #JoinedUpForJoints #WorldArthritisDay ARMA

Musculoskeletal (MSK) health is essential for a healthy, productive life. On World Arthritis Day, we are advocating for more collaboration health and social care to prevent and manage MSK conditions more effectively. #WAD #JoinedUpForJoints #WorldArthritisDay <a href="/WeAreARMA/">ARMA</a>
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

Itโ€™s #BoneAndJointWeek and weโ€™re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety & depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints

Itโ€™s #BoneAndJointWeek and weโ€™re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety &amp; depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints
Dalila (@dalilatm) 's Twitter Profile Photo

๐Ÿคฉ Since our 1st meeting in 2019, time has flown by! Fast forward to todayโ€™s meeting with 2๏ธโƒฃ wonderful guest speakers helping us understand roles & holistic care in #lupus Melissa Chieza ๐Ÿ™Œ Thanks everyone who has joined us on this journey & shared the many faces of lupus! #Cardiff

๐Ÿคฉ Since our 1st meeting in 2019, time has flown by! Fast forward to todayโ€™s meeting with 2๏ธโƒฃ wonderful guest speakers helping us understand roles &amp; holistic care in #lupus <a href="/mel_chieza/">Melissa Chieza</a> ๐Ÿ™Œ Thanks everyone who has joined us on this journey &amp; shared the many faces of lupus! #Cardiff
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

What is CAR-T cell therapy and what does it mean for people with lupus? You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post: lupusuk.org.uk/2024/11/08/carโ€ฆ

What is CAR-T cell therapy and what does it mean for people with lupus?
You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post: lupusuk.org.uk/2024/11/08/carโ€ฆ
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

What does good care & treatment for rare disease mean to you? The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease. Complete the survey on their site: rarediseaseqs.org Or read our FAQs: lupusuk.org.uk/2024/11/14/quaโ€ฆ

What does good care &amp; treatment for rare disease mean to you?
The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease.
Complete the survey on their site: rarediseaseqs.org
Or read our FAQs: lupusuk.org.uk/2024/11/14/quaโ€ฆ
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

Spare 60 seconds to take SRUK | Scleroderma & Raynaud's UK's online Raynaud's symptom test. See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma. sruk.co.uk/testme

Spare 60 seconds to take <a href="/WeAreSRUK/">SRUK | Scleroderma & Raynaud's UK</a>'s online Raynaud's symptom test.

See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma. sruk.co.uk/testme
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

Join over 9,000 people who have already spared 60 secs to take SRUK | Scleroderma & Raynaud's UK's online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions. sruk.co.uk/testme

Join over 9,000 people who have already spared 60 secs to take <a href="/WeAreSRUK/">SRUK | Scleroderma & Raynaud's UK</a>'s online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions. sruk.co.uk/testme
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study. Your participation will help in developing suitable support for SLE patients in the UK. Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0xโ€ฆ

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study.
Your participation will help in developing suitable support for SLE patients in the UK.

Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0xโ€ฆ
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study. Your survey response will help develop appropriate support for SLE patients in the UK. Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0xโ€ฆ

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study.
Your survey response will help develop appropriate support for SLE patients in the UK.

Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0xโ€ฆ
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

The National Office is now closed for the holidays and will re open on 02/01/25. THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus ๐Ÿ’œ

The National Office is now closed for the holidays and will re open on 02/01/25. 
THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus ๐Ÿ’œ
EATC for Children (@eatc4children) 's Twitter Profile Photo

Amongst friends for lunch and an information sharing discussion today, thanks so much to Lupus UK for braving this chilly weather to join us in the #instituteinthepark #alderhey We hope you enjoyed it! #bettertogether #partnership #lupus #childhoodillness #lunch #eatc4children

Amongst friends for lunch and an information sharing discussion today, thanks so much to <a href="/LUPUSUK/">Lupus UK</a> for braving this chilly weather to join us in the #instituteinthepark #alderhey

We hope you enjoyed it!
#bettertogether #partnership #lupus #childhoodillness #lunch #eatc4children
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!! For more information and to sign up, visit: lupusuk.org.uk/virtual-dog-waโ€ฆ #Lupus #SLE #VirtualDogWalk #Fundraising

Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!! 

For more information and to sign up, visit: lupusuk.org.uk/virtual-dog-waโ€ฆ

#Lupus #SLE #VirtualDogWalk #Fundraising
LUPUSUK ๐Ÿ’™ (@lupusuk) 's Twitter Profile Photo

Nominate LUPUS UK (Charity No 1200671) for a chance to win ยฃ1,000 in the #MovementforGoodAwards The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: lnk.bio/s/f35db๐Ÿ”— As a small charity, this grant will make a huge difference๐Ÿ’œ

Nominate LUPUS UK (Charity No 1200671) for a chance to win ยฃ1,000 in the #MovementforGoodAwards
The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: lnk.bio/s/f35db๐Ÿ”—

As a small charity, this grant will make a huge difference๐Ÿ’œ
RAIRDA (@rairda_org) 's Twitter Profile Photo

Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients ๐Ÿ‘‰rairda.org/publication/reโ€ฆ

Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients ๐Ÿ‘‰rairda.org/publication/reโ€ฆ