🧵 Today we have published Our vision for improving patient experience of diagnosis, supported by 58 members📢 The Vision sets forth nine key recommendations, which could significantly improve people’s experiences of diagnosis, and wider healthcare. 👉 nationalvoices.org.uk/project/our-vi…

We have joined 57 other health & social care organisations in support of National Voices’s Vision for improving patient experience of diagnosis📢 We believe these 9 proposals could significantly improve people’s experiences of diagnosis & wider healthcare. 👉nationalvoices.org.uk/project/our-vi…

Great team effort, challenge completed and over £1k raised for two great charities SRUK | Scleroderma & Raynaud's UK LUPUSUK 💙 RMCHosp 🏥 Alder Hey 💙

LUPUS UK would like to say a huge thank you and good luck to all runners taking part in the Saucony London 10k tomorrow! 💜🏅

IT'S JIA AWARENESS WEEK! 💜 Meet Isaac! 🌟 Diagnosed with JIA at 11, Isaac struggled with his condition growing up. However, at the age 16 he started receiving a biologic which eventually lead to him finding the courage to join a gym at 18. The rest is history! 💪 #ThisIsJIA

We are proud to be supporting JIA-at-NRAS awareness Week taking place from 15th - 21st July. This year's theme is #ThisIsJIA. Join us in raising awareness about Juvenile Idiopathic Arthritis (JIA). Though diagnosed in childhood, JIA impacts lives in many ways at different stages.

Day 2 of JIA Awareness Week! 💜 Meet Sfiyah! 🌟 At just 10 years old, she's been living with Juvenile Idiopathic Arthritis (JIA) for over a year and a half. 💪 Sfiyah is on a mission to advocate for young people, helping schools understand conditions like JIA.

Ricky was diagnosed with #lupus aged 25 and is now raising awareness and supporting others with the condition as a LUPUSUK 💙 Trustee. ✍️For Arthritis Digest, @Ricky_chotai explains the benefits of precision medicine research to the patient community. 🔗manchesterbrc.nihr.ac.uk/news-and-event…

Day 3 of #JIA Awareness Week! 🌟 Meet Lindsey, mother of Gertie, who was diagnosed with juvenile idiopathic arthritis (JIA) at age 6 early in 2023. Lindsey uses her social media to raise awareness about JIA, share their journey, and support others in similar situations. 💪👩‍👧💙

It was a great pleasure to write this article on #PrecisionMedicine with Ricky Chotai (he/him) from LUPUSUK 💙.

Reminder: Applications for our Autumn 2024 research funding round must be received by LUPUS UK before 5pm on Friday 30th August. Further information, including the application forms and conditions for grants can be found at lupusuk.org.uk/medical/grants/ #Lupus #LupusResearch #SLE

Thank you and well done to our fabulous runners who took part in the #SauconyLondon10k on Sunday 14th July! 💜#CharityRun #Fundraising #Lupus #SLE

Our website is currently down for maintenance, but we're still here to help! You can reach us via email at [email protected], call us on 01708 731251 or direct message us on our social media channels (between Monday – Friday, 9am – 4:30pm). Thank you for your patience.

Really please to share this event I have been working on with Andreas Panteli and the amazing Lupus Europe team. Please do share with men with lupus across Europe.

Applications for our Autumn 2024 research funding round must be received by LUPUS UK before 5pm on Friday 30th August. Whilst our website is currently under maintenance, please email [email protected] for application forms, conditions for grants and more information.

If you are aged between 13-16 years old, living with a #rheumatic condition and looking for some tips on looking after your wellbeing then come along to our #wellbeing webinar! Sign up here: forms.office.com/e/SBrJkjsZnw

Reminder: Applications for our Autumn 2024 research funding round must be received by LUPUS UK before 5pm on Friday 30th August. Please email [email protected] for more information, including application forms and conditions for grants. #Lupus #LupusResearch #SLE

5 DAYS TO GO! Applications for our Autumn 2024 research funding round must be received by LUPUS UK before 5pm on Friday 30th August. Please email [email protected] for more information, including application forms and conditions for grants. #Lupus #LupusResearch #SLE

Please take one minute to nominate us in the #MovementForGoodAwards. As a small charity, this grant will make a huge difference💜 The next draw will take place on the 23rd September. Nominate us here: lnk.bio/s/MovementForG…🔗 #Lupus #SLE #SmallCharity #Grant #LupusCommunity

You can help us at LUPUS UK by nominating us for a chance to win £1,000. This can really help us continue our mission of raising awareness for #lupus and providing support to our community. The next draw will take place on the 23rd September. lnk.bio/s/MovementForG…🔗