Lupus Trust (@lupustrust) 's Twitter Profile
Lupus Trust

@lupustrust

The Lupus Trust was set up as a registered charity in 1991. Its aim is to support lupus research at Guys Hospital & raise lupus awareness.

ID: 525498869

linkhttp://www.lupus.org.uk calendar_today15-03-2012 16:02:23

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Lupus Trust (@lupustrust) 's Twitter Profile Photo

You're not just surviving, you're thriving despite the chronic pain, fatigue, and uncertainty that comes with this unpredictable disease. Your strength and resilience are truly something to celebrate, so don't let anyone or anything make you feel otherwise. #Lupus #lupustrust

You're not just surviving, you're thriving despite the chronic pain, fatigue, and uncertainty that comes with this unpredictable disease. Your strength and resilience are truly something to celebrate, so don't let anyone or anything make you feel otherwise. #Lupus #lupustrust
Lupus Trust (@lupustrust) 's Twitter Profile Photo

😐 #chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #doctorsappointment #iluvmyheatingpad

😐

#chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #doctorsappointment #iluvmyheatingpad
Lupus Trust (@lupustrust) 's Twitter Profile Photo

We only show a fraction of what we actually experience with lupus. The truth is, living with lupus is a daily battle that's often invisible to the outside world. We put on a brave face, but behind closed doors, we're fighting a war against fatigue, pain and uncertainty. #lupus

We only show a fraction of what we actually experience with lupus. The truth is, living with lupus is a daily battle that's often invisible to the outside world. We put on a brave face, but behind closed doors, we're fighting a war against fatigue, pain and uncertainty. #lupus
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Even if your lupus seems to have calmed down it can suddenly start up again. I hadn't had a flare in a very long time then suddenly one day I didn't feel quite right, the next day I woke up to my lupus saying 'I'm back.....' and I was in a flare for days with no apparent reason.

Even if your lupus seems to have calmed down it can suddenly start up again.  I hadn't had a flare in a very long time then suddenly one day I didn't feel quite right, the next day I woke up to my lupus saying 'I'm back.....' and I was in a flare for days with no apparent reason.
Lupus Trust (@lupustrust) 's Twitter Profile Photo

We still keep going despite all our challenges as otherwise we'd have no life at all. #chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #keepgoing

We still keep going despite all our challenges as otherwise we'd have no life at all.

#chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #keepgoing
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Very true, unless you have lupus you'll never truly know what it's like. Every patient is different so you need to do whatever is best for you. #chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #dashofbadass

Very true, unless you have lupus you'll never truly know what it's like. Every patient is different so you need to do whatever is best for you. 

#chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #dashofbadass
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Accurate! 😆😎 #chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #sunsensitivity #photosensitive

Accurate! 😆😎

#chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #sunsensitivity #photosensitive
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Most of us are guilty of hiding the true extent of our illness, not wanting to be a burden to others or be seen as weak. We don't want to worry our loved ones, so we put on a happy face & pretend everything is okay. #lupus #lupustrust #chronicillness

Most of us are guilty of hiding the true extent of our illness, not wanting to be a burden to others or be seen as weak. We don't want to worry our loved ones, so we put on a happy face & pretend everything is okay. #lupus #lupustrust #chronicillness
Lupus Trust (@lupustrust) 's Twitter Profile Photo

People don't realise that the cost of chronic illness isn't just physical it goes way beyond that. #chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness

People don't realise that the cost of chronic illness isn't just physical it goes way beyond that. 

#chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness
Lupus Trust (@lupustrust) 's Twitter Profile Photo

I'm that person who's extremely sensitive to medication & I always seem to experience some kind of side effect, no matter how mild the drug may be. As a result, I have to carefully weigh the pros and cons of taking any medication. #lupus #lupustrust #lupusawareness #sideeffects

I'm that person who's extremely sensitive to medication & I always seem to experience some kind of side effect, no matter how mild the drug may be. As a result, I have to carefully weigh the pros and cons of taking any medication.

#lupus #lupustrust #lupusawareness #sideeffects
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Lupus is often misdiagnosed, the average time from first symptoms to diagnosis is 6 years which is appalling. 30 years ago I was misdiagnosed for 4 years with GP's telling me it was all in my head, so things sadly haven't improved at all since then #lupus

Lupus is often misdiagnosed, the average time from first symptoms to diagnosis is 6 years which is appalling. 30 years ago I was misdiagnosed for 4 years with GP's telling me it was all in my head, so things sadly haven't improved at all since then #lupus
Lupus Trust (@lupustrust) 's Twitter Profile Photo

All on point! 🫤 #chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #dearchronicpain

All on point! 🫤

#chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness #dearchronicpain
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Everyday you are a chronic illness warrior, fighting battles that most people can't even imagine. You wake up each morning despite the exhaustion, the pain & the uncertainty you keep going, pushing through the struggles to find moments of joy and beauty in the midst of the chaos.

Everyday you are a chronic illness warrior, fighting battles that most people can't even imagine. You wake up each morning despite the exhaustion, the pain & the uncertainty you keep going, pushing through the struggles to find moments of joy and beauty in the midst of the chaos.
Lupus Trust (@lupustrust) 's Twitter Profile Photo

My rheumatologist said that I looked pale - well yes of course I do, I stay out of the sun! I also wear factor 50 sunscreen whether it's sunny or not, partly for lupus but I admit also partly to prevent wrinkles. #lupus #lupustrust #lupusawareness #chronicillness

My rheumatologist said that I looked pale - well yes of course I do, I stay out of the sun! I also wear factor 50 sunscreen whether it's sunny or not, partly for lupus but I admit also partly to prevent wrinkles. 

#lupus #lupustrust #lupusawareness #chronicillness
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Even after all these years and all the flares I still always think 'oh this is how my body is now, I have to learn to live with it,' then weeks pass by and things calm down until I start the whole process again. #lupus #lupustrust #lupusawareness #lupusflare #chronicillness

Even after all these years and all the flares I still always think 'oh this is how my body is now, I have to learn to live with it,' then weeks pass by and things calm down until I start the whole process again.

#lupus #lupustrust #lupusawareness #lupusflare #chronicillness
Lupus Trust (@lupustrust) 's Twitter Profile Photo

Yep, sometimes I'd just like a little break from it all #chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness

Yep, sometimes I'd just like a little break from it all 

#chronicpain #autominnunedisease #invisibleillness #chronicillness #lupus #lupustrust #lupusawareness
Lupus Trust (@lupustrust) 's Twitter Profile Photo

This is really true, we live in a competitive society where your 'worth' is measured by how much you earn or how big a car you have & where illness is seen as a weakness & 'our fault' despite the fact we did nothing to cause it. #lupus #lupustrust #lupusawareness

This is really true, we live in a competitive society where your 'worth' is measured by how much you earn or how big a car you have & where illness is seen as a weakness &  'our fault'  despite the fact we did nothing to cause it.

#lupus #lupustrust #lupusawareness