Lupus NI (@lupus_ni) 's Twitter Profile
Lupus NI

@lupus_ni

Lupus Northern Ireland is a voluntary support group of @lupusuk. Our aim is to raise awareness of the condition and provide support to people with #lupus in NI.

ID: 910235206107484160

linkhttp://www.lupusuk.org.uk calendar_today19-09-2017 20:12:39

275 Tweet

216 Followers

483 Following

Gerry Gormley (@drgerryg) 's Twitter Profile Photo

Lead by QUB Centre for Medical Education medical student Blaithin conducted this important person-centred research journals.sagepub.com/doi/full/10.11… with Collette McCourt @skin_dok about the impact sun exposure can have on those living with #lupus #cle & holistic insights to develop photoprotective behaviours

Lead by <a href="/QUBMedEd/">QUB Centre for Medical Education</a> medical student <a href="/blaithin45/">Blaithin</a> conducted this important person-centred research journals.sagepub.com/doi/full/10.11… with <a href="/MccourtCollette/">Collette McCourt</a> @skin_dok about the impact sun exposure can have on those living with #lupus #cle &amp; holistic insights to develop photoprotective behaviours
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

We've updated our info & guidance about #lupus and #COVID19Vaccines: lupusuk.org.uk/covid19-vaccin… There has been some confusion and misinformation regarding the AstraZeneca vaccine. We want to provide reassurance that this vaccine is considered safe for people on immunosuppressants.

We've updated our info &amp; guidance about #lupus and #COVID19Vaccines:
lupusuk.org.uk/covid19-vaccin…
There has been some confusion and misinformation regarding the AstraZeneca vaccine. We want to provide reassurance that this vaccine is considered safe for people on immunosuppressants.
Lupus NI (@lupus_ni) 's Twitter Profile Photo

This is shocking. Most people with lupus are diagnosed and treated by Rheumatologists, to have to wait SIX years for a first appointment allows a lot of time for damage to be done to the body that could be avoided by easily available medication.

LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Today is #WorldKidneyDay. The #kidneys are one of the most commonly affected organs in people with #lupus and early stages tend to have no obvious symptoms. It is important that urine is monitored regularly by a doctor. lupusuk.org.uk/wp-content/upl…

Today is #WorldKidneyDay. 

The #kidneys are one of the most commonly affected organs in people with #lupus and early stages tend to have no obvious symptoms. It is important that urine is monitored regularly by a doctor.

lupusuk.org.uk/wp-content/upl…
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Today is #WorldLupusDay! 💜 Did you know it takes an average of 7 years for a patient to receive a diagnosis of #lupus in the UK?

Lupus NI (@lupus_ni) 's Twitter Profile Photo

Do you know someone living with #lupus in #NorthernIreland? A Queen's University Belfast 🎓 student is carrying out a study as part of her thesis for Maastricht University into people living with lupus in NI during the pandemic. To find out more email [email protected]

Do you know someone living with #lupus in #NorthernIreland?

A <a href="/QUBelfast/">Queen's University Belfast 🎓</a> student is carrying out a study as part of her thesis for <a href="/MaastrichtU/">Maastricht University</a> into people living with lupus in NI during the pandemic.

To find out more email sr.bradley@student.maastrichtuniversity.nl
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Delyth (who has #lupus) spoke to BBC News (UK) about feeling abandoned as COVID restrictions are lifted. Many immunosuppressed people have less protection from vaccines. We must be aware of those who are more at risk and continue to protect them. #WearAMask bbc.co.uk/news/av/uk-578…

LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

With restrictions being eased, we urge everyone to consider those who are still clinically extremely vulnerable (like people with #lupus) and those who aren't protected by the vaccine.

With restrictions being eased, we urge everyone to consider those who are still clinically extremely vulnerable (like people with #lupus) and those who aren't protected by the vaccine.
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

The JCVI has issued a recommendation that COVID-19 booster vaccines should be offered to people at higher risk of severe disease from coronavirus infection this winter (including #lupus). We'll update our website to answer your questions shortly. gov.uk/government/pub…

Lupus NI (@lupus_ni) 's Twitter Profile Photo

💜 October is Lupus Awareness Month 💜 You can find information and resources at the Lupus UK website to share with your friends and family to help raise awareness: lupusuk.org.uk/lupus-awarenes…

💜 October is Lupus Awareness Month 💜

You can find information and resources at the <a href="/LUPUSUK/">Lupus UK</a> website to share with your friends and family to help raise awareness: lupusuk.org.uk/lupus-awarenes…
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

THANK YOU to Fiona Henry for hosting a coffee morning for LUPUS UK and the bereavement service at the Royal Victoria Hospital in Belfast. Fiona was diagnosed with #lupus in 2013 and has supported LUPUS UK previously, raising a fantastic £1,400 for the charity! 💜

THANK YOU to Fiona Henry for hosting a coffee morning for LUPUS UK and the bereavement service at the Royal Victoria Hospital in Belfast. Fiona was diagnosed with #lupus in 2013 and has supported LUPUS UK previously, raising a fantastic £1,400 for the charity! 💜
Lupus NI (@lupus_ni) 's Twitter Profile Photo

After taking a break during the pandemic we’re beginning to plan for the return of support group meetings. We want to hear your views on how these meetings should run. Please take a few minutes to complete our short survey before 05.08.22. #lupus surveymonkey.co.uk/r/VXHNXYH

After taking a break during the pandemic we’re beginning to plan for the return of support group meetings.

We want to hear your views on how these meetings should run.

Please take a few minutes to complete our short survey before 05.08.22.

#lupus  

surveymonkey.co.uk/r/VXHNXYH
Lupus NI (@lupus_ni) 's Twitter Profile Photo

If you’re interested in attending support group meetings, remember to fill in our survey to have your say on how they should run 👇🏻 #Lupus

LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Today kicks off #LupusAwarenessMonth! October is all about raising awareness of #lupus which affects around 1 in 1,000 people living in the UK. Let's support our community together! 💜

Lupus NI (@lupus_ni) 's Twitter Profile Photo

Lupus NI meet ups are back! First up on Saturday 8th April we’re organising a casual coffee get together at 2 Royal Avenue, Belfast at 11am. Don’t worry if you can make it, we hope to announce another meeting with a guest speaker soon! fb.me/e/2JSdYjPhB

Lupus NI meet ups are back!

First up on Saturday 8th April we’re organising a casual coffee get together at 2 Royal Avenue, Belfast at 11am.

Don’t worry if you can make it, we hope to announce another meeting with a guest speaker soon! 

fb.me/e/2JSdYjPhB
LUPUSUK 💙 (@lupusuk) 's Twitter Profile Photo

Today is #WorldLupusDay 💜 Lupus is a chronic autoimmune disorder where the immune system of the body attacks itself, affecting around 1 in 1,000 people living in the UK. Learn more about #lupus at lupusuk.org.uk.

Today is #WorldLupusDay 💜
Lupus is a chronic autoimmune disorder where the immune system of the body attacks itself, affecting around 1 in 1,000 people living in the UK. Learn more about #lupus at lupusuk.org.uk.
Lupus NI (@lupus_ni) 's Twitter Profile Photo

Join us this Saturday for our support group meeting and a chance to hear from Lupus Specialist Nurse Cathal Boyle. facebook.com/events/s/lupus… #lupus #BelfastHour

Join us this Saturday for our support group meeting and a chance to hear from Lupus Specialist Nurse Cathal Boyle.

facebook.com/events/s/lupus…

#lupus #BelfastHour