1 day until GivingTuesday! lowesyndrome.org/donate/

It's zero days to GivingTuesday! Be a hero and add zeroes to your donation. Add a zero to your $10 donation to make it $100. Support medical research so that some day we have zero cases of Lowe Syndrome worldwide. Give now. Give today. lowesyndrome.org/donate/

How do you survive the holidays with a special needs child? undivided.io/resources/holi…

On this first day of Hanukkah, may the light shine very bright on your family this holiday season. Happy Hanukkah!

We wish your family a happy, safe, and healthy holiday season! Merry Christmas and a Happy New Year! 🎄⛄️

Wishing you good food, good company, and lots of love. Happy Boxing Day!

We know how much it takes to raise a family and a son with Lowe Syndrome. This is why it is so vital to keep our community connected with resources and support. From our LSA family to yours, we wish you a healthy 2023 filled with love and gratitude. Happy New Year!

January is National Glaucoma Awareness Month. #glaucoma Check and monitor your son's eyes regularly by a doctor. bit.ly/3id9Twi

On 1/25/23, at 9 am Pac for CA residents, LSA presents a webinar from the SSA! The SSA reps will introduce the basics, eligibility for Supplemental Security Income, and how to apply for benefits for your son with LS. Save the date! Stay tuned for a link!

Happy Lunar New Year! 2023 is the year of the Rabbit, an affectionate, multi-talented individual who forms close relationships and represents peace and harmony. We wish you luck and prosperity!

February is National Children's Dental Health Month! Regularly check your son's dental health.

February is Low Vision Awareness Month! Low vision and vision impairments affect daily life for our sons with LS. Make it a priority to visit his optometrist and ophthalmologist regularly.

From our LSA community to your family, we wish you a Happy Valentine's Day!

In recognition of Rare Disease Day on February 28, 2023, we share the hopes and dreams from an LSA family: "Through the devastation (the diagnosis) comes the knowledge and the ability to spread awareness, understanding, and acceptance." Brian, Keri, & Silas Kopp

Rare Disease Day is fast-approaching on February 28, 2023. "You are a blessing to have in this world, and I hope you know your smile, laughs, and love make this place worth living." ACM (Speech & Language Pathologist Asst)

In honor of Black History Month, the LSA community recognizes the African American people, history, and contributions to society.

Today we observe Rare Disease Day. There are 300 million people worldwide living with a rare disease. We are a unique community of parents, caregivers, physicians, and therapists who share our experiences & knowledge with each other. Donate now lowesyndrome.org/donate/.

March is National Developmental Disabilities Month. Together, we recognize that those with disabilities have countless abilities and strengths. Our sons, brothers, cousins, and uncles with LS are examples of how our world is a different and better place because of them.

March is National Women's History Month. We honor moms, sisters, grandmothers, aunts, etc. and their various roles in American history. Thank you for all that you do. We love you.

This is International Parental Mental Health Awareness Week. As parents, we spend all of our time and energy on our families. It's time to think about self-care. The more we take care of ourselves, the more we can be present for our families.