CONGRESS #EULAR2023 | Lou Kawka discussed the digital LEAF tool to assess fatigue in pts with #lupus. 1250 pts were included in the study, and 78.9% had significant fatigue. Fibromyalgia, clinical insomnia, and high stress levels were all associated with significant fatigue.

A new and innovative online tool (LEAF) used in 1250 #Lupus patients was able to measure fatigue and give recommendations, >90% considered it to be helpfull, very promising, ready for broader use? #EULAR2023 #Rheumatology #RheumTwitter #SLE

Lupus Europe has been part of LEAF! A tool that allows patients to assess their fatigue and find out what they can do to improve it. If you have lupus and want to try LEAF➡️ iamfatigued.limequery.org/584745?lang=en. Great work by Laurent ARNAUD and Lou Kawka presented at #EULAR2023!

Great talk by Lou Kawka showing results from the #LEAF study! Focusing on fatigue and its predictors using a digital tool can improve patient-physician-communication👏🏼patients find it helpful & would recommend the tool - very important work❗️AG Junge Rheumatologie Lupus Europe

Fatigue in SLE remains a challenge! Online digital tool - LEAF - Lupus Expert System for Assessment of Fatigue - assement of fatigue PROMs in 1250pts - 80% reported fatigue, 93% found tool helpful Dr. John Cush #EULAR2023 Need more tools to assess and manage fatigue! abst#OP0230

Not heard of this before but people might find it useful for ‘Fatigue in Lupus’ the ‘Leaf’ program. Link given below #EULAR2023 #Fatigue #Fibromyalgia . iamfatigued.limequery.org/584745

✅ Checklist for the new #EULAR2023 #Recommendations ✍️ for the treatment of systemic #Lupus, as presented by Boumpas 📺 last week for the taskforce 💪 We have been working VERY HARD to update & improve these reco compared to the previous ones (2019) 👍 #RheumTwitter #MedTwitter

Interested in Innate Lymphoid Cells? Check out our latest manuscript on Sjögren syndrome: ▶️ ILC1 associated with anti-SSA, ILC3 negatively associated with glandular swelling ▶️ ILC3 frequency elevated in infiltrates in minor salivary gland tissues 🔗 rmdopen.bmj.com/content/9/2/e0…

😍👍Envie de vous remettre à jour dans les traitements du #lupus systémique actuels et à venir❓ Ne manquez pas notre revue systématique 📰, publié dans #JointBoneSpine et ici traduite en Français, en version gratuite ! 🤩 ⏩authors.elsevier.com/a/1hOtr49-Jvo5… Section REF AJI

Lupus Europe World Health Organization (WHO) ✅ Very happy to tell you that one of our residents (Timotée M.) is starting his MD thesis about physical #activity 🏃 in #Lupus. He will analyze LEAF data about PA in #SLE 👍

✅ Very happy to report that the #LEAF manuscript, about the #digital management of #fatigue in #Lupus has just been ACCEPTED FOR PUBLICATION 🎉 Thank you very much to Lou Kawka & collaborators for the amazing work. Thanks to ALL OF YOU who have participated 👍 Lupus Europe

✅ Did you participate 🏥 to the #LUPUS Expert System for the Assessment of #Fatigue (#LEAF🍃) Study? If so, we would like to thank you very much 🙏 you can check 🔎 the full results of 1250 participants with #SLE using the following link: doi.org/10.1136/rmdope…

The LEAF study has just been published ⬇️⬇️⬇️ A huge thank you to everyone involved and to all participants !

✅ MAIN predictors of #FATIGUE in the #LEAF #LUPUS study: ➡️ Self-reported active #SLE ➡️ PAIN ++ ➡️ Fibromyalgia ➡️ Insomnia / sleep issue +++ ➡️ Stress LINK:doi.org/10.1136/rmdope…

✅ I'm very happy to announce that after 1 year of intense labor ⏱️ our #RECOMMENDATIONS 🧑‍🎓 for PHYSICAL ACTIVITY & EXERCISE 🏃🏋️⛹️🤸 for persons living with #LUPUS 🦋 are now ONLINE! For FREE, for all 👍 DIRECT DOWNLOAD LINK 📥rmdopen.bmj.com/content/rmdope…

✅ Latest paper by our National Reference Center CRMR RESO | PACIFIC by Renaud Felten & Lou Kawka as the main authors: The PIPELINE of immunomodulatory therapies in POLYMYALGIA RHEUMATICA and GIANT CELL ARTERITIS: A systematic review of clinical trials Link:doi.org/10.1016/j.autr…

Happy to share the results of our study: a nationwide analysis of 329,276 CTD and RA patients in France, assessing the factors associated with severity and mortality of #COVID19 ⬇️

✅ Which cs/b/tsDMARDs are associated with an increased or decreased risk of SEVERE #COVID19? LOT's of data about this BUT we did it using a NATION-WIDE analysis of all #autoimmune patients in the national French #healthcare database (n=329 276) LINK:doi.org/10.1016/j.jbsp…

Finally published: the EULAR Points to Consider on the use of targeted therapies in patients with arthritis and a history of cancer 👇 ard.bmj.com/content/early/…

✅ Levels of physical activity (PA) 🤸🤾🏋️🚴🧘 in a large cohort of patients with #Lupus. Strong association between LOW physical activity and pain, stress, depression, fatigue etc... 😢 📥 DIRECT (FREE) PDF DOWNLOAD: lupus.bmj.com/content/lupuss…