The study of rare diseases benefits everyone!

Thanks for joining our LMNA Patient Meeting (with LMNA expert Rogier Veltrop) today! We will share the presentation (recording), with everyone registered on the LMNA cardiac newsletter, soon. Also see: lmnacardiac.org/webinars/ for new and previous webinars/meeting.

The deadline to participate has been extended to June 12! Click here to take the 5-minute survey: app.onlinesurveys.jisc.ac.uk/s/oxford/cureh…

How will you support this DCM Foundation? There are three great ways to fundraise! Set one up today: dcmfoundation.org/donate

Please support Rare diseases by signing the Open Letter addressed to the European Commission! ❤️ form.jotform.com/241204310934343 #ActRare2024 #openletter #raredisease #ECRD #rarediseases #LMNA

Arrhythmias are abnormal heart rhythms and three categories of arrhythmias commonly occur in people with DCM. Learn more about these abnormal heart rhythms: dcmfoundation.org/dilated-cardio…

We’re proud to announce 📣 that we’re working together with ‘Connect My Variant’! More information and free signup: connectmyvariant.org/signup-form/lm…

Cardiomyopathy is a disease of the heart muscle that can occur at any age and can be passed down genetically. It is a predominant cause of sudden cardiac death in people under the age of 35. #ThinkCardiomyopathy #CardiomyopathyAwareness #Cardiomyopathy2024 #ThinkCM

Cardiomyopathy is a disease of the heart muscle that can occur at any age and can be passed down genetically. Think Cardiomyopathy! Visit globalhearthub.org for more information. #ThinkCardiomyopathy #CardiomyopathyAwareness #Cardiomyopathy2024 #ThinkCM

Global Heart Hub urges people to "Think Cardiomyopathy" with new Global Campaign. #cardiomyopathy #heart #heartdiseases #lamina #lmna #cardiology prnewswire.com/news-releases/…

Your support means the world to the DCM patients and families who benefit from everything the DCM foundation does. Donate or start a fundraiser today: dcmfoundation.org/donate

LMNA Cardiac is excited to share that we are building out a global network of partner labs to help us with collecting blood donations. This will be used to advance our understanding of LMNA cardiac diseases and improve patient care. More info: lmnacardiac.org/blood-donation

Our LMNA PRIORITY project awarded prestigious Leducq grant lmnacardiac.org/lmna-priority-… #research #grant #cardiology #LMNADCM #PRIORITYproject @LMNAcardiac Andrew Landstrom, MD, PhD Lammerding Lab Gisele Bonne @reggievolley  @leonschurgers @carimmaastricht HaiyuanYu Lab Ioannis Karakikes NL Heart Institute

What is PSIDER-Heart? LMNA heart disease is one of the studied diseases Learn more: lmnacardiac.org/psider-heart-a… #lamin #laminopathies #lmna #cardiology #psider #psiderheart #lamina #cardiologist #heart #heartdisease #research

Happy Birthday & 3-year Heart-iversary to DCM Foundation founder, Greg! To celebrate, he's having a fundraiser to support our work helping patients and families live better. Join Greg; he will match up to $15,000 in donations! Make an impact today: donorbox.org/gregs-2024-dcm…

Healthcare professionals 🏥 Help us reach as many people as possible by promoting #MyInsight - the Cardiomyopathy UK national survey. Find out more at cardiomyopathy.org/my-insight #PersonCenteredCare Picker

New research finds that patients show strong interest in genetic therapies for inherited cardiomyopathies, but opinions differ on participation in clinical trials, especially for children. Learn more: nature.com/articles/s4143…

Click this link and sign up to stay informed: lmnacardiac.org/research-studi… #lmna #lamin #cardiomyopathy #research #clinicaltrials #stayinformed #cardiovascular #lmnaresearch #lmnacardiomyopathy

Help Support Sean’s Heart Transplant Journey. gofund.me/b1470cb7

𝐎𝐮𝐫 𝐂𝐨-𝐅𝐨𝐮𝐧𝐝𝐞𝐫’𝐬 𝐔𝐩𝐜𝐨𝐦𝐢𝐧𝐠 𝐔.𝐒. 𝐓𝐨𝐮𝐫 - 𝐄𝐱𝐩𝐚𝐧𝐝𝐢𝐧𝐠 𝐎𝐮𝐫 𝐍𝐞𝐭𝐰𝐨𝐫𝐤! Read more on: lmnacardiac.org/stefans-us-tour #LMNA #laminopathies #cardiacdisease #UStrip #US #patients #researchers #USA #LMNAcardiac