Looking forward to kicking off the #FCSSummit2024 - safe travels to everyone! #livingwithFCS

We had the pleasure of joining the FCS community at the FCS Foundation Patient-Caregiver Summit. At Arrowhead, we know every day matters, and hearing directly from patients on the unmet need in FCS fuels our mission to improve lives through innovative #RNAi medicines.

BREAKING NEWS: We’re thrilled to share the U.S. FDA has approved TRYNGOLZA™ (olezarsen), cementing Ionis as a fully integrated commercial-stage biotech company. Read more: ir.ionis.com/news-releases/… $IONS

Familial chylomicronemia syndrome (FCS) has a profound impact on the lives of patients & their families. We're proud of our long-standing partnership & are honored to deliver the first and only treatment for adults #livingwithFCS in the U.S. Learn more: ir.ionis.com/news-releases/…

Today we announced the acceptance of a New Drug Application for #FCS by the U.S FDA based on positive results from our Phase 3 PALISADE study. Read more in our press release: bit.ly/4akR94E

How will you you support on Rare Disease Day this year? 💜🌍 Sharing a personal story, joining an event, or simply starting a conversation, every action is a step closer to equity for the 300 million people living with rare diseases. Find out more: rarediseaseday.org

On this #RareDiseaseDay we reflect on #livingwithfcs; as patients, caregivers, and advocates we ask you to take a minute to learn more about Familial Chylomicronemia Syndrome (FCS) by visiting livingwithfcs.org.

Thank you to our member partners: Foundation of the NLA National Lipid Association ASPC FCS Foundation AACE Learn more: nationaltriglyceridealliance.com

SIGN UP for the FCS Foundation Virtual 5K Help raise awareness for Familial Chylomicronemia Syndrome (FCS) a rare genetic disorder. 📅 June 11, 2025 📸 Share your pics with #livingwithFCS #FCS2025K 🔗 survey.alchemer.com/s3/8285972/202…

JOIN US on June 12th at 12pm ET with Seth J. Baum MD & Al Freedman for a webinar on #livingwithfcs topics include: -Symptoms, Diagnosis, & Genetics of FCS -Mental Health Red Flags: Depression, Anxiety, Burnout -Building Resilience & Self-compassion REGISTRATION LINK in bio

IT'S #FCS2025K Race Day! #livingwithFCS

THANK YOU to Scott Reavis and this entire group for supporting #livingwithFCS during our #FCS2025K!

2025 FCS Foundation Virtual 5K Run/Walk. strava.com/activities/147… #livingwithFCS #FCS2025K #RareDisease

Today, our 4 US sites are walking the @LivingWithFCS Virtual 5K to raise awareness for Familial Chylomicronemia Syndrome—a rare disease affecting as few as 1 in a million. 💙 We walk to fight for patients & families. Share your story: bit.ly/4jPshoS #FCS2025k

A special thanks to Seth J. Baum MD and Al Freedman for sharing your knowledge in assisting those #livingwithFCS on today's webinar. Missed it? Check out livingwithfcs.org for more information!

Join our partners National Triglyceride Alliance on July 1 (12PM ET) for a free 1-hour webinar on diagnosing + managing severe hypertriglyceridemia (sHTG). Case reviews + Q&A w/ Seth J. Baum MD & Dr. James Underberg Register now: nta.ampstream.io/nta1 #sHTG #Triglycerides #livingwithFCS

It is with deep sadness to let our community know about the passing of Fred Saremi. Fred was a patient who lived with FCS, a founding member and treasurer of the FCS Foundation, and above all, a dear friend. Lovingly known as the "Grandfather of FCS" we will miss him every day.

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