In this insightful video, a seasoned pharmacist Layne Oliff, with over three decades of experience in the pharmaceutical and biotech industries shares their personal journey with Amyotrophic Lateral Sclerosis (ALS). Watch here: f.mtr.cool/allzzcplkz

Jeff Vierstra was likely doomed by his DNA. A radical experiment gave him a chance to rewrite his fate — before ALS symptoms ever began. trib.al/BE0ztle

Have you seen our YouTube channel? Find hundreds of video clips with #ALS experts and people with lived experience at youtube.com/c/YourALSGuide Subscribe to stay up-to-date.

NIH plans to shrink the share of grant applications it will award for the remainder of the fiscal year, in some cases by more than half. trib.al/nnz0T7R

Congratulations to Merit Cudkowicz, MD, MSC, FANA on receiving the American Neurological Association (ANA) Award for Clinical and Scientific Excellence! American Neurological Association

Meet CNM-Au8® — our clean-surfaced, catalytically-active gold nanocrystal powering neuron energy & resilience. Advancing therapies for #ALS and #MS. clene.com/about-cnm-au8/ #NeuroScience #GoldNanocrystals

When you’re dying from ALS, it’s comforting to know the FDA just didn’t have the staff. FDA misses IND deadline for Coya’s ALS asset, cites lack of resources fiercebiotech.com/biotech/fda-mi…

Another one where they need to run another trial. A different endpoint will be interesting. HT @kickals.bsky.social businesswire.com/news/home/2025…

The first treatment for a form of #MND/#ALS has been approved in the UK. #Tofersen is now authorised for SOD1 MND, demonstrating the potential of gene-targeted therapies. UK MND Research Institute RI partners The University of Sheffield & Institute of Psychiatry, Psychology & Neuroscience contributed to the trials. ukmndri.org/2025/07/31/fir…

11 years ago, the #IceBucketChallenge made history—raising $220M for ALS research & awareness, including $4M for ALS TDI. 💧 Read how Anthony Carbajal helped spark this global movement & its lasting impact: als.net/news/anthony-c…

Slinggg batter batter

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ALL ALS is the big natural history study that we've needed in ALS Land for decades. NIH delivered for us. If you have ALS or are at genetic risk, please participate. vimeo.com/1099413678

Every year, the Brigance Brigade Foundation helps families affected by ALS prepare for the back-to-school season. This year, we’re rallying around one special family, the Proctor family, who recently lost their beloved father and husband, Terrence, to ALS... (1/2)

The ALS and FTD fields and those running trials must heed the growing consensus that presymptomatic C9orf72 expansion carriers can be included under certain biological readings in trials where the main test is in symptomatic patients. Learn more endthelegacy.org/latestnews

Access to genetic counselling and testing for ALS/MND isn’t equal—where you live, what language you speak, and available professionals all affect access. Our new Genetics Task Force is creating global recommendations to ensure equitable access worldwide. Grateful to Biogen

We need you Biogen Clene Nanomedicine Amylyx Alector AviadoBio Eli Lilly and Company Novartis and others to step up and give your drugs the best shot possible.

EUpALS Industry Partner Ionis provides an ALS community statement on completion of enrollment of the FUSION clinical trial with ulefnersen in FUS-ALS. With the trial now fully enrolled, IONIS estimates that it will reach primary completion date in the second half of 2026.

ALL ALS is a publicy-funded natural history study that we have needed for a long time. @NINDS stepped up for us. If we ever want to conquer ALS, we need a broad and deep study like this. It is in every individual's and organization's interest. 1/