You are attending the #EHA2024 then don't miss the ERN EuroBloodNet Meeting on Thursday!

Wir sind natürlich dabei!

Our secretary Pascale Burmester presenting important results about the disparity in #access in #Europe to effective #PNH treatments #EHA2024

A great project we are proud to be part of!

Happy to share a link to my latest @BloodJournal commentary on an excellent paper by Gurnari addressing thrombosis in #PNH. You can find it here: authors.elsevier.com/a/1jPcX_9T5u7gy

Please support the PNH Global Alliance campaign to support PNH patients worldwide!

#PNH #AA lichterzellen Aplastische Anämie & PNH e.V. Hämatologie und Stammzelltransplantation, UK-Essen dgho.de/veranstaltunge…

Patients cooperate better if they understand everything the doctor wants to convey. You as a doctor can help by using lay language with patients. Your role is also crucial in early detection and #TreatingPNH by informing yourself or referring to a colleague who specialises.

Your role as a treating physician is crucial for patients to cope and live with the disease. Thank you!

If you are #TreatingPNH, consider testing patients with symptoms, such as unexplained thrombosis, bone marrow failure, hemolysis associated with anemia, coombs-negative hemolytic anemia or thrombosis in unusual sites accompanied by hemolysis for PNH. #PNHAwareness2024

If you're treating PNH please share!

Wenn Sie Patient:innen mit PNH behandeln, seien Sie sich bewusst, dass Patient:innen das Ausmaß, an dem sie unter Symptomen leiden, anders bewerten, als Sie es möglicherweise einschätzen…

If you are #treatingPNH please share. Tim Brümmendorf Jeff Szer Louise Arnold Alexander Röth Ferras Alashkar

Are you #treatingPNH ?

Stay informed if you are #treatingPNH

If you are a patient please take this survey to support the research on AA/PNH.

Progress in #treatingPNH ? You would think so, but only in a few privileged countries. Lets change that!

Important informations on how to manage BTH in #pnh from the anual IPIG meeting! #ASH24 Austin Kulasekararaj Phillip Scheinberg lichterzellen Aplastische Anämie & PNH e.V.