It's the final countdown for #PxP24! ⏲️3 days, 19 hours and 36 minutes to go... 🤩Over 1000 people are already signed up! You can still register here for free: bit.ly/PxPConference-… #PPI #ConsumerInvolvement #PatientEngagement #PatientLed

Fantastic!! Well done and very needed research Nancy Henderson!

Fantastic!! Huge congrats to our patient partner Paralympic star ⭐️ 👏👏 🇨🇦 Trinity (she/her)

We.Need.More.Research on fibromyalgia - what causes it, how it can best be treated, can we prevent it etc. Our quality of life depends on it! #fibro #research

Let’s keep fighting for better research, treatments, and empathy for those of us navigating the challenges of chronic pain, fatigue, and cognitive difficulties Together, we can create a world where fibromyalgia is understood, and everyone feels supported #FibromyalgiaAwareness

Month 1 pearls from palliative fellowship: ⁃ allow silence, listen more than you speak - you know medicine but patients are the experts of their own body - you don’t decide how much pain someone is in - an “acceptable” way of living for a patient is not your choice/decision

Fibromyalgia Awareness Week This week #FAC will be posting videos from FAC committee members about symptoms they had that they didn't know were part of FM Listen & learn about symptom # 10 Would you like to be a FAC committee member? Join here fibrocanada.ca/en/volunteer/

Yes, this 👇 We have everything at stake as patients!! It is our lives and our quality of life. And clinical research exists to try help us get better and feel better. My viewpoint changed when I went from nurse and health executive to full time patient.

Thanks for all you do to teach us and support us Fibromyalgia Association Canada - you are awesome trudy and team 👏👏

Fantastic opportunity 👇

I am supporting Dress for Success Ottawa to help raise funds for their Fall campaign. I would be honoured if you have the ability to donate - the work they do is crucial to support women and non-conforming individuals for career success. 👇 zeffy.com/fundraising/fc…

As the semester starts, I am inviting my academic colleagues to take #LaurensPromise: laurenmccluskey.org/laurens-promis… If you are a University of Guelph student, please know my lab & office are safe places when you need help 📍1652 & 1642E OVC Lauren McCluskey Foundation #IWillListen #IBelieveYou #Stalking #IPV

Yes but let’s extend that to all research and all diseases. Patients should be involved with blue sky thinking, strategy, research question development, grant writing, protocol writing, and so on throughout the research cycle. Full patient co-partnership - the hill I will die on

Linda Hunter RN, MScN, PhD (C) I will join you in the Hill ❤️

Plain language communication - so necessary. Take up the challenge!!

“Psychological safety is a belief that one will not be punished or humiliated for speaking up with ideas, questions, concerns, or mistakes. So patients should have an environment where they feel secure contributing that lived experience and engaging fully without fear.” #PxP24

My Top 3 takeaways from today's For Patients By Patients Virtual Conference. Thank you for designing a fantastic event! PxP #PatientEngagement #PxP24

So important!!!

Best conference I’ve ever been ‘included’ in. Though unwell, this gave me a boost last night - the patient leadership movement is in good hands. Let’s build the network globally…. .PxP

So true - and also for siblings who lose their siblings to chronic complex disease. It is devastating and weird and nothing prepares you for it - and there is absolutely no support offered - at least when it happened to our family.