My head is spinning. What do I do for my son? In what order? Help apheresis? V9? Supplements? Biopsy for mast cells?Triple therapy? Nothing- &hope he just gets better. This is so hard for a non-medical person- who can I ask for help deciding?#TeamClots #LongCOVID #LongCovidKids

1) A project looking at microbial metabolites as disease-modifying factors in #LongCovid. 2) A project to unravel the pathophysiology of post-exertional malaise (PEM) in Long COVID and ME/CFS, including looking at blood and muscle biomarkers. 2/

3) A grant to characterize non-restorative sleep in post-viral disease. 4) A project to look at the impact of surgery for stenosis on ME/CFS symptoms. #MESpine 5) A project to look at altered T cell responses in #LongCovid and ME/CFS, including T cell exhaustion. 3/

6) A deep learning/computational modeling project to identify drugs to repurpose for #LongCovid. 7) A project on microclots, analyzing microclot burden in patients over time and looking at the impact of infection & vaccination on microclot levels. 4/

Today is International ME/CFS Awareness Day! ME/CFS is a complex multisystem disease with a wide range of disabling symptoms. Factsheet: What you need to know about ME/CFS is available to download for free via the link below: meassociation.org.uk/1n2w #pwME #MECFS #MyalgicE

"She didn't want to die. She had hopes and dreams and wanted to live." Channel 4 News spoke to Sarah Boothby and Sean O'Neill, the parents to Maeve, who died in 2021 at the age of 27 after suffering with ME since her early teens. Maeve's inquest began today in Exeter.

Fans convinced Lana Del Rey's 'curse' on female singers is complete metro.co.uk/2024/08/05/fan… via Metro