🌟 Today's panel was a fantastic experience! If you missed it and want to catch the recording, make sure to sign up using this form. We'll send it out next week! 🎥✨ Don't miss out! 🔗share.hsforms.com/1irC9oUDnRYyBI… #PanelDiscussion #CatchUp #LearnMore

#LongCOVID Community: Grateful to now be speaking at upcoming NIH RECOVER-TLC workshop, on interventional trial prioritization panel. I know many of us are too severe to even join online & want to ensure bring your perspectives to the meeting. What do you want to share on trials?

It takes only a moment to enter your zipcode, find your Senators, and message them for #LongCovidKids: actionnetwork.org/letters/long-c…

I made a few changes to make my letter more personalized, and it still took me less than 3 mins to send. Please write or call your Senators today to support Long Covid research funding bill.

Happening in just under an hour! #LongCovid #LongCovidKids

Just sent mine! Can you spare a minute to help let senators know about #LongCovidKids?

Long Covid Moonshot I tailored my call to Senator Warren’s office today to her focus on the economic issues families with children with Long Covid face. Especially the lack of national paid family medical leave and healthcare tied to employment.

“It’s a public health crisis for children.” Dr. Rachel Gross #Pediatriclongcovidawaressweek #PediatricLongCovid #LongCovid

🌟As we wrap up #PediatricLongCovidAwareness Week, let’s come together for a moment of reflection. 💬✨ Let’s share our stories and think about how we can uplift and support the children and families navigating #LongCOVID. Together, we can make a difference!💜 #LongCovidFamilies

Wow—I’ve just learned the Lyme Treatment Foundation has patient grants for testing (up to $1000) and treatment (up to $4000). Applications open now til Nov 1. N=1 but in my case it seems Covid may have activated Lyme and bartonella.

🌟 Millions of children face pain and fatigue from Long Covid, impacting their health and family life. Let's come together to push for improved support. Every child deserves to thrive. 💜 #PediatricLongCovid #InvisibleIllness #SupportFamilies #HealthAdvocacy

65 million people are unnecessarily suffering from neurodegeneration from long COVID without a single FDA-approved treatment. You can help them by taking a few seconds to show your support here: actionnetwork.org/letters/moonsh… Long Covid Moonshot

1⃣ YOUR community advocacy helped WIN fight to ask Senate to add Long COVID to list of conditions able to apply for CDMRP's $370 million potential FY25 research funding. If get through final Appropriations, Long COVID researchers could then apply to this new pool of funding! 2/x

I cannot begin to express the enormity of what these 2 women have done for the #LongCovid community through their tenacious advocacy. It was an honor to share a room with them this morning at the Standards of Care: Building Consensus Around the Study and Diagnosis of LC meeting.

📣ROLL CALL: Are you coming in-person to NIH RECOVER-TLC Bethesda meeting next week? If so can LongCOVIDCampaign: ✅Invite you to COVID-safe community meetup Monday night? ✅Meet any last travel stipend needs to ensure diverse attendance? ✅Be of local help to other patient-advocates?