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i’m organizing the first ever covid-conscious mask-required concert in france for the release party of my third EP! i’m renting the venue at my own expense, organizing the event on my own with no label, no promoter and no sponsor. it’s a big venue and i hope people will show up!

BIG #LongCOVID MOMENT here at Senate HELP FY26 HHS Hearing: Chair U.S. Senator Bill Cassidy, M.D. first question to Secretary Kennedy, after noting ME/CFS & Office for Long COVID Research & Practice closure: U.S. Senator Bill Cassidy, M.D.: "I talk to people for whom Long COVID is seriously impacting their life." 1/x

In a few years, when Covid health issues are too big to ignore, many people will claim: “But we didn’t know!” 😭 🙄 Nah. They know. They just don’t want to face it because it’s inconvenient. And they think it won’t happen to THEIR kids. Ridiculous situation. #LongCovidKids

Pediatric Pathogenesis of Long COVID- from Yale Webinar today Its NOT rare in children! Cochrane Canada The Hospital for Sick Children (SickKids) Canadian Paediatric Society Health Canada and PHAC

Our Phase 3 FDA approved Long COVID/ PASC clinical trial at the University of Arizona is now on clinicaltrial.gov!!! Of note- Bruce K. Patterson MD, myself and our team made sure that EVERYONE involved in this study will be properly masked on site. I understand the politics behind

Every time I attend a networking event and share I have LC, at least one person I meet tells me their family member/co-worker/close friend/etc also has LC. EVERY TIME.

New study. Olympic athletes. Post-COVID outcomes. Researchers tracked 65 Olympic-caliber athletes from Germany’s National Olympic Training Center — not weekend warriors, but elite professionals at the top of their sport. Here’s what they found after confirmed SARS-CoV-2

March 15th, International Long Covid Awareness Day *Most rewarding & informative day of the past 6 years for my cohost, Dr. Joe Eastman, and I. After much dedication, time & creativity we were able to break up our 12-hr LC Marathon Space for everyone to hear. Thank You to

The WHO recent statistic report says that COVID has caused global life expectancy to decline by 1.8 years and says unless urgent measures are taken, “700,000 maternal deaths and 8 million child deaths between 2024 and 2030 could occur.” But the world has moved on they said.

I wrote a poem last night about losing myself to this shit illness. I am actually really amazed. I haven't been able to write a poem in years. It just popped into my mind.

Five years ago today the term #LongCovid was first used as a Twitter hashtag. A single tweet by a patient linked together a growing, grassroots movement of people who weren't recovering from Covid. Across the world, we were fighting for recognition and studying our own disease

Long COVID Health Justice Poll shows % of the participants identifying with different struggles: masktogetheramerica.org/blog.html#blog •HCW won’t mask —39% •Availability (distance, delay) — 46% •Diagnostic obstacles — 56% •Treatability — 63% •Gaslighting — 60% •Cost — 54% •Others

Starting Tomorrow for 4 days let’s flood social media with Covid and Long Covid related information. Use the hashtag #GetLoud and let’s make some noise. Let’s See how viral we can make the important info. Tag everyone.

Can we get international support for this Scottish petition 'Take action to protect people from airborne infections in health and social care settings'? Residents of any country can sign & please SHARE too!! Rareatives International Long Covid Awareness Prof Julia Lawton petitions.parliament.scot/petitions/PE20…

#GetLOUD

#GETLOUD

🧵For the past couple of weeks, my child, severely disabled by Long Covid since a Delta wave infection in her teens has been battling Covid, again. She called NHS 111 for help. NHS 111 said she was not eligible for Paxlovid and was too young to have a serious Covid infection...

“Covid isn’t just deadlier for people with diabetes, it’s also triggering the disease in many who didn’t previously have it. Even some children’s mild Covid cases can be followed by the swift onset of diabetes, scientists found.” #Diabetes #LongCovidKids fortune.com/2021/05/05/dia…

“The assumption that children and teens recover completely from COVID has been shattered by mounting evidence that their developing respiratory systems are uniquely vulnerable to long-term damage.” “What’s particularly alarming is that many had mild or asymptomatic infections.”

This is my daughter. She is 12. She made it outside for 10 minutes this week. The rest of the time? Bedbound. She got Covid. She didn’t get better. This is what paediatric Long Covid looks like. #LongCovidKids #LongCovid #covidinquiry