Forever grateful for the care I received at The Hospital for Sick Children (SickKids) and it’s rather cool to see #Moyamoya featured for #RareDiseaseDay! Proud to advocate with Moyamoya Foundation Roxanne Houle MoyaMoya ISurvivor Lisa Deck!

Join us for #worldmoyamoyaday on May 6 for a virtual symposium about #moyamoyadisease. Current updates about research, #registry & living with a diagnosis from expert #neurologists, #neurosurgeons, #patients and #caregivers. Be ready for an important & exciting announcement!

Getting so excited for this event! There will be research updates on #moyamoya, an exciting announcement on #PatientEngagement, and a panel of patient, family, and medical experts. #RareDisease advocates are welcome as well! Link is below! #RareDiseaseTruth

Way to go Catherine Stratton, MPH Moyamoya Foundation !! Big news for the #moyamoya community!

There are still stipends available for this awesome #advocacy day! Join RDLA in #boston for an in person advocacy day!!

Please join our Twitter chat tomorrow with Erin Moriarty Wade and Terri Ellsworth for #ClinicalTrialsDay! #CTD2022

I’ll be attending the Rally for Medical Research in DC after attending a few years ago. Love using my voice for #advocacy & #policychange Who else will be at the #RallyMedRes #stroke #moyamoya

It was a pleasure to discuss the need for immediate access to #raredisease #patientrecords and protocols with @RD3602. bit.ly/3L4URTk

The winner is being pulled tomorrow! It’s your last chance to purchase #taylorswift raffle tickets to win two concert tickets! All to benefit @tri_countycheerleaders bid for Nationals! instagram.com/p/CmaLF-grlgv/…

Featuring Massachusetts stroke survivor and patient advocate ISurvivor Lisa Deck!

Today I am joining my State House colleagues in wearing red in support of #GoRedforWomen. Heart disease and strokes are the leading cause of death for women; please be aware of your health, and make your heart health a priority. MA Women's Caucus

Today I’m wearing red on #WearRedDay to encourage women of all ages to take charge of their heart health. Join me, the American Heart Association of Massachusetts, and the Massachusetts Caucus of Women Legislators in the fight against heart disease. #GoRedForWomen

And that’s a wrap! It was amazing to present at the #AAN2023! Very grateful for the opportunity to learn and to share this work with others. #AAN #AANAM2023 #moyamoya #RareDisease #registries #epidemiology

Thank you Senator Paul Feeney for meeting with me yesterday! I enjoyed our discussion about #CPRwithheart and #AED We appreciate your efforts to champion these important issues American Heart Association: Massachusetts #heartonthehill Sisters@Heart

Thank you Adam J. Scanlon for meeting with me yesterday! I enjoyed our discussion about #CPRwithheart and #AED We appreciate your efforts to champion these important issues American Heart Association: Massachusetts #heartonthehill Sisters@Heart

Football takes on Taunton this THURSDAY at 6pm at Beaupre. Please bring your donations for our Families in Need Drive collected at the ticket gates. @HockomockSchools North Attleborough Public Schools

Sisters@Heart presents first publicly accessible AED device to Town of North Attleborough   northstarreporter.com/2024/01/18/sis… via North Star Reporter

Congratulations - Featured in 2024 Winter #iPainLiving Magazine - #InternationalPainFoundation's Top 2024 #RareDisease #Advocates include - International Pain Foundation® Oktay I. Kaplan Keegan Johnson @kenraytaylor Kimberley Steele, MD, PhD Lene Jensen Lia_MedicalMama ISurvivor Lisa Deck Michele Rhee

Check out this gig! apply.savvy.coop/parents-covid-…