Thank you faithgibson and @GoshOrchid for the opportunity to speak about the power of PPI in PPC research and thank you Jules from Katie Chappell 🌿 for a wonderful illustration of my talk #pedpc

Is your child receiving #PalliativeCare in the North East/Yorkshire? Do you know what to do if something goes wrong #OutOfHours? As part of a Marie Curie funded study researchers @UoYmhrc would like to hear your experiences to better understand care round the clock

When a child is seriously ill it is difficult for brothers or sisters to cope, as portrayed in tonight's #BestInterests episode. This resource helps parents talk to siblings about their brother or sister’s diagnosis and how this will affect them. togetherforshortlives.org.uk/get-support/su…

This powerful piece by bereaved parent Dan McEvoy explains what caring for a seriously ill child is like, and how #ChildrensPalliativeCare enabled his daughter Elisa to be comfortable and live her short life to the fullest inews.co.uk/opinion/daught…

Excited to be in Cardiff for the launch of our Dept Health Sciences report into prevalence and complexity trends for children and young people in Wales with life limiting conditions, in collaboration with Hope House & Tŷ Gobaith Children's Hospices, Tŷ Hafan Children's Hospice and palliative care experts from NHS Wales

Great to see this study making national news - time to prioritise high quality care for children with life limiting conditions Stuart Jarvis Together for Short Lives University of York Cicely Saunders Institute at King's Tŷ Hafan Children's Hospice #pedpc

Shared decision-making experiences in child long-term ventilation: the importance of clear and honest communication and the role of #ppc teams ⁦⁩ ⁦@Simonkenny14⁩ ⁦George Peat⁩ ⁦faithgibson⁩ ⁦Joe brierley⁩ ⁦Paediatric Critical Care Society⁩ err.ersjournals.com/content/32/169…

Is you child receiving #PalliativeCare in the North East/Yorkshire? Do you know what to do if something goes wrong #OutofHours? UoYppcrg would like to hear your experiences to better understand round-the-clock care. Contact details below 👇

Are you a parent of a baby or child who has died in the last five years after receiving care in #NICU and #PICU? UoYppcrg would like to hear about your experiences. Contact details below 👇

Are you a parent of a baby or child who has died in the last five years after receiving care in #NICU and #PICU? UoYppcrg would like to hear about your experiences. Contact details below 👇

Are you a parent of a baby or child who has died in the last five years after receiving care in #NICU and #PICU? UoYppcrg would like to hear about your experiences. 📧 [email protected] 📞 07384239136

Have you or somebody you know been affected by childhood cancer? If the answer is yes, we want to hear from you. We are setting up a new wellbeing retreat to support children and families affected by cancer. Get involved here: bit.ly/4aOQNSH

We are recruiting! Interested in #paediatricpalliativecare? Come and work with us UoYppcrg as a Research Associate. Full time £36,024-£44,263, Fixed Term for 12 months. For more info contact me: [email protected]. Apply by 27th June 2024 jobs.york.ac.uk/vacancy/resear…

New #HYMSresearch led by Fliss Murtagh and funded by Maria Helena Rubiano has highlighted inconsistencies in end-of-life support received at home. Find out how the study aims to address the gaps in #palliativecare: hyms.ac.uk/about/news/202…

Proud to be an author of this hard hitting report

Delighted to share this - a real team effort: Evaluating PPI activities within a paediatric palliative care research centre: Route map to impactful and meaningful engagement: UoYppcrg Julia Hackett, Jo Taylor, Andrew Papworth , Gabriella Walker, Lorna Fraser journals.sagepub.com/doi/full/10.11…

Exciting opportunity for qualitative researcher to join our lovely team UoYppcrg within Dept Health Sciences to work on a national study looking at experiences and needs of young people with a disability in the UK. Job ad: jobs.york.ac.uk/vacancy/resear… Study info: york.ac.uk/healthsciences…