We're proud to support the NorthStar Programme, which has been life-changing for families like Joe's. His dad shared: "Further investment in the NorthStar Programme has led to better care for boys like Joe and adults with Duchenne." Read more: loom.ly/wbw2zg4 #WDAD2024

🎉 The Northstar Network turns 20! We’ve invested £1.5M+ to advance Duchenne Muscular Dystrophy care, from creating the NSAA to discovering key genetic insights. Let’s keep raising our voices! 🙌 Read more: loom.ly/wbw2zg4 #DMDRaiseYourVoice #WDAD2024 #Northstar20

This groundbreaking study could transform our understanding & treatment of DMD. Read more this #DuchenneAwarenessDay: loom.ly/XXcKGtg

💸 How is the cost-of-living crisis impacting your finances? We're calling on YOU to help us shape the support from the UK Gov for people living with muscle wasting conditions. Your voice matters. Let us know how you're coping! Have your say: loom.ly/VQbjzUc

"Palliative care isn’t just end of life care"🌟 This #PalliativeCareWeek, Brian shares how his son Chris lived 36 years with Becker muscular dystrophy, supported by palliative care every step of the way. 💡 Read more: loom.ly/dOrik40

⏳ One week left! 🎙️ We’re thinking of starting a podcast and want your feedback! Imagine hearing inspiring stories, expert advice, and the latest updates from the MD community. Sound good? Let us know by Sunday, 15 Sept: loom.ly/lUcL6Ks #Podcast

Edinburgh Kiltwalkers... you know what to do! 👇💛

#FridayThe13th can be considered bad luck, but as Muscular Dystrophy UK prepare for the final #Kiltwalk of the year, I'd like to share some good luck to those taking part this Sunday. So far £11,976.65 has been raised from Kiltwalk events. Watch this space for joining in 2025 👀

Great to see more research in #Scotland

🚨 We're funding groundbreaking research on #FSHD Professor Giorgio Tasca & his team at Newcastle University are studying the molecular processes behind #Facioscapulohumeral muscular dystrophy. This could be a game-changer for understanding FSHD. Learn more: loom.ly/_yOsloI

Living with a muscle wasting condition can be tough, but you’re not alone. Our muscle groups are here for you! 🤝 Join our FREE sessions, online or in-person, across the UK. Connect with those who understand. Learn more: loom.ly/2GrLwtI

This #LimbGirdleAwarenessDay, Zoe shares her top tips for managing life with the condition: 🎙 Check out her new podcast, Dystrophy Diaries, where she talks all things LGMD – from relationships to mobility aids. Got questions? Drop them below! ⬇️ #LGMD #MuscularDystrophy

Great to see a story from Shetland and that this was the biggest Bake a Difference for the charity!

Our Local Muscle Groups are here for you! 🤝✨ These supportive spaces are available across the UK, offering a wonderful opportunity to share experiences and connect with others facing similar challenges. 👉 Don’t miss out: loom.ly/bV5vnFg #LocalMuscleGroups

So grateful to all 15 people participating and raising so far a total of £65,000

Today we’re delighted to publish our 2023/2024 Impact Report. This past year, we came together as a community to ensure that everyone living with a muscle wasting or weakening condition receives the healthcare, support, and treatments they need to grow stronger.

Scotland is letting down people with muscle wasting and weakening conditions. Our new report launched today has found an estimated 7,300 people with muscle wasting and weakening conditions are ‘missing’ from official NHS Scotland records. 1/4

🚨 Your donation has double the power this week! Every £ you donate will be doubled by our donors. Over 110,000 people in the UK live with muscle wasting conditions. It can be exhausting and lonely. Make a difference: loom.ly/yCGAwVE #GivingTuesday