Is psychology racist? Phil Banyard, Emeritus Professor of Psychology at Nottingham Trent University, thinks it is; and we seek your views. bps.org.uk/psychologist/p…

On my way to the RaDaR 15 year celebration event, really looking forward to these fantastic talks and meeting/catching up with everyone there! ☺️ #kidneyresearch #renalresearch #IgAN #IgAnephropathy ukkidney.org/rare-renal/rad…

Made it to Vienna and ready for the ERA - European Renal Association congress! 🇦🇹 #ERA25

Almost time for my focussed oral on the qualitative part of our work on loin pain in IgA nephropathy! Looking forward to sharing the insights from patients, family of patients, and healthcare professionals #ERA25

Recommendations from the MOODMAPS study led by Joe Chilcot #UKKW25 1. Funding for high quality trials 2. Routine assessment 3. Standardised care pathway 4. Empower the community 5. Workforce capacity 6. Culture and profile

There is a LOT we don’t yet know about severe mental illness and chronic kidney disease, but we do know they need support - excellent presentation from Dr Claire Carswell Really interested to see what comes next from the LINKS study!

“Where there’s a psychological practitioner embedded in the team this can have a big effect on patient outcomes - it would be really helpful to capture patient experiences in future research” - Mental Health and Kidney Disease panel #UKKW25

“There wasn’t a lot of psychological care when I was having treatment but I knew it was very limited” - Mental Health and Kidney Disease panel #UKKW25

“There was support in management and processes but there wasn’t a lot of support in mental health - we know it’s in the background but it’s not necessarily in our mother tongue/culture/faith as a concept so this can be difficult to discuss as a family” - MH in CKD panel #UKKW25

“There is not enough awareness of young people support groups - I wasn’t aware of them until two years after I transitioned, it was very lonely. Always comments from older people in dialysis units on how young you look, are you sure to have kidney disease?” - MH in CKD #UKKW25

“There are communities that do not have access to these conversations - this must be managed carefully due to stigma” - MH in CKD panel, such important points #UKKW25

Some units have more funding for psychological support than others, how can we address this? It’s critical to care with clear benefits. In other services (e.g. diabetes) psychological support IS integrated. Do we need a policy shift? MH in CKD panel #UKKW25

When would be the best time for support in CKD? Some factors: When first diagnosed, dialysis, and transplantation, diet, GCSE/college, transitioning to adult care, being a girl and teenager, friendship In adult care it wasn’t as colourful, it felt a lot more serious - #UKKW25

Best time for support for carer/family? Never offered, for the patient, informational support only but not psychological, doesn’t come to surface because you push it down Treatment, implication & impact, but careful of information overload - best if embedded for access #UKKW25

“When patients say ‘don’t worry, God will heal me’ - as a healthcare professional I freeze. How can we navigate this, and acknowledge faith? How can we make sure there is *time* for nurses to care about the patients?” - MH in CKD panel #UKKW25

Double the amount of severe mental illness in CKD compared to the general population suggested in this systematic review & meta-analysis - more targeted research and with inclusion of more diverse populations needed - Lauren Fitzgerald & Abigail Hucker #UKKW25

Talking Therapies - patients want to talk to people who understand the condition, understand the language used (e.g. fistula), and understand the impact. Needs to be routine, should patient/professional refer? Which points? Good patient feedback so far - Michaela Dicks #UKKW25

What do IgA nephropathy patients, family, and healthcare professionals in the UK want to see in future research? - Better methods of diagnosis - Treatment options - Advice on lifestyle factors - Mental health support - Accessible and consistent information #UKKW25

What mental health gaps and support needs in IgA nephropathy are raised by patients, family, and healthcare professionals? Factors to consider: 1. Personal impact of IgAN 2. Access and availability of information and support 3. Mental health and kidney outcomes #UKKW25