Dritan Agalliu PANDAS PHYSICIANS NETWORK PANDAS Network - Official There is no ‘DOUBT’. #PANS #PANDAS is a neuro inflammatory disease. Thank you to the researchers for ending the controversy. NHS England parents in the U.K. are urging a review on treatment guidelines (currently NONE)

#PANS #PANDAS awareness 💜

What a moment this was!! Joined by my old clubs @exeterswimming and Woolacombe SLSC and the amazing @PandasPans families! I pictured this moment for months and it was better than I could have imagined! I wanted to run to my wife and kids but I couldn’t - My legs had gone!

vm.tiktok.com/ZMdWov9Q5/

Dr Keith Geraghty chng.it/P28DxJhP6W

thedesertreview.com/opinion/letter…

Here’s an idea. How’s about we lockdown down the government for a year to stop the spread of bullshit, lies, Manipulation & corruption. Leave us all the hell alone and let us get our lives back! 😊

I've just entered a prize draw to win £1000 of Whole Plant CBD Products from Savage Cabbage - bit.ly/cbddraw

#panspandashour as a direct result of the BPNA statement my Son is currently in hospital but being denied any PP treatment. He’s naked and been sleeping on the floor for 7 days, not eaten for 3 and not drank or used toilet for nearly 2. How is this happening in 2022? 💔💔

We are heartbroken to learn of the passing of Dr. Charles Ray Jones. Dr. Jones helped thousands of children who struggled with #LymeDisease He was a compassionate doctor who always said that every child was "fixable." RIP Dr. Jones. You will be missed💚 CanLyme ON Lyme Alliance

I’m excited to announce my next challenge. As part of the @pans_pandas_uk #ChooseYourChallenge campaign. I will be attempting to swim the length of Lake Geneva 70km non stop swim that will take around 24 hours. Please share and donate if you can! justgiving.com/page/matt-blyt…

NIHR outline grant on Lyme. See link below. This is our best effort so far. Fell down because the Lyme data on antibiotics is not published and the research team wasn't considered strong enough. For Lyme research this would have been a big step forwards. drive.google.com/file/d/17mOQxG…

Excited to be able announce we are planning to take on our first ever student work on PANS . We have £10 K from donations to start us off but require £25K per year to run the project: fees, living expenses and basic lab costs. More information to follow ! PANS PANDAS UK #PANs

UK parents/carers of children with OCD – we need your input! We’re working with the COrUS team The University of Manchester on vital research (funded by NIHR) to improve support for families. Take this short, anonymous survey (10 mins): qualtrics.manchester.ac.uk/jfe/form/SV_8t… #OCD #MentalHealth #Parenting