Keara (@kearbeara) 's Twitter Profile
Keara

@kearbeara

Mother | #Spinabifida , #Scoliosis , #Disability rights♿️ | Current affairs🌎 | Sports⚽️ | Travel✈️ | Arts🎨 | Full of beans ☕️💁🏼‍♀️

ID: 1586901395223072769

linkhttps://www.rte.ie/news/health/2023/0709/1393624-scoliosis/ calendar_today31-10-2022 02:02:59

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CM Haughey Solicitors (@cmhaughey) 's Twitter Profile Photo

Dear John Lee, with respect, how could you interview the Taoiseach & not raise his commitment to children with scoliosis? When he said, "I wouldn't be in politics if it wasn't for disability," did it not cross your mind? You had an opportunity to stand up for them #BackUs

Dear <a href="/leeofthemail/">John Lee</a>, with respect, how could you interview the Taoiseach &amp; not raise his commitment to children with scoliosis?

When he said, "I wouldn't be in politics if it wasn't for disability," did it not cross your mind? 
You had an opportunity to stand up for them #BackUs
The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

248 children are listed for surgery in Children's Health Ireland Out of the 248 only 18 have a date to come in. 230 children are listed for a #scoliosis op with no date for surgery - no timeframe. #BackUs

248 children are listed for surgery in <a href="/CHI_Ireland/">Children's Health Ireland</a>

Out of the 248 only 18 have a date to come in. 

230 children are listed for a #scoliosis op with no date for surgery - no timeframe. #BackUs
Dr Tom Clonan (@tomclonan) 's Twitter Profile Photo

CUTE DOG ALERT - University Senators Need To Be INDEPENDENT Senators - For An Effective Seanad - We Need Strong Independent Voices To Challenge Govt & Group-Think & Innovate Strong Rights Based Legislation - Please Ask Any TCD Graduates You Know To Vote TOM CLONAN No1 - ⁦#GE24

PatrickFreyne (@patrickfreyne1) 's Twitter Profile Photo

I went along to a rehearsal of No Magic Pill - which starts a new run in the Black Box in Galway this Thursday (written by Christian O'Reilly and inspired by disability campaigner Martin Naughton) irishtimes.com/culture/stage/…

Spina Bifida & Hydrocephalus Paeds Advocacy#backus (@sbh_pag) 's Twitter Profile Photo

No thought or support given to Education by Children's Health Ireland to the children whom they’ve failed so abysmally that the are being shipped out of the country for treatment Concerns raised with National Patient Safety Office that not a mention of how a child’s education will be supported The Scoliosis Advocacy Network #BackUs

No thought or support given to Education by <a href="/CHI_Ireland/">Children's Health Ireland</a> to the children whom they’ve failed so abysmally that the are being shipped out of the country for treatment

Concerns raised with <a href="/npsoIRL/">National Patient Safety Office</a> that not a mention of how a child’s education will be supported

<a href="/scolionetwork/">The Scoliosis Advocacy Network #BackUs</a>
Derrek's Bags (@derreksbags) 's Twitter Profile Photo

It's the last day to save 20% off all products in my Etsy shop! Sale ends at midnight tonight! etsy.com/shop/DerreksBa… #DerreksBags #shopping #shoppingonline #totebag #fannypack #catheterbag #catheterization #medicalsuppliesbag #pinbutton #etsy #etsyshop #DisabilityTwitter

Keara (@kearbeara) 's Twitter Profile Photo

As my son’s curvature is at 120 degrees, the international standard is that above 50 degrees is a priority. This means as soon as my son’s curvature hit over 50 degrees he should have been deemed an absolute *PRIORITY*! This may even have happened more than 5 years ago, but the

Mary Lou McDonald (@maryloumcdonald) 's Twitter Profile Photo

Our motion to scrap the means test for carers allowance has been passed tonight in the Dáil. A Sinn Féin government would ensure this change is delivered on day one! I have met with and listened to so many of our carers over the last while. Your stories are heartbreaking and

Úna Keightley (@unakeightley) 's Twitter Profile Photo

I’ve arrived in Brussels 🇪🇺 looking forward to enlightening Members of the European Parliament about what families of children living with Spina Bifida and/or Scoliosis experience under the Irish healthcare system #backus The Scoliosis Advocacy Network #BackUs Spina Bifida & Hydrocephalus Paeds Advocacy#backus

I’ve arrived in Brussels 🇪🇺 looking forward to enlightening Members of the European Parliament about what families of children living with Spina Bifida and/or Scoliosis experience under the Irish healthcare system

#backus

<a href="/scolionetwork/">The Scoliosis Advocacy Network #BackUs</a> <a href="/SBH_PAG/">Spina Bifida & Hydrocephalus Paeds Advocacy#backus</a>
Úna Keightley (@unakeightley) 's Twitter Profile Photo

Pleased to meet Billy Kelleher MEP on my trip & grateful for his time He’s long advocated for expanded newborn screening in Ireland🇮🇪 I raised the need for integrated care pathways across the EU 🇪🇺 With the highest rate of Spina Bifida worldwide, Ireland should be leading the way

Pleased to meet <a href="/BillyKelleherEU/">Billy Kelleher MEP</a> on my trip &amp; grateful for his time

He’s long advocated for expanded newborn screening in Ireland🇮🇪

I raised the need for integrated care pathways across the EU 🇪🇺
With the highest rate of Spina Bifida worldwide, Ireland should be leading the way
Ireland West Airport (@irelandwest) 's Twitter Profile Photo

Ireland West Airport is delighted to announce that the Connacht SBHI Branch (Spina Bifida Hydrocephalus Ireland), Dillon Quirke Foundation, Mayo Roscommon Hospice, Order of Malta (Knock Branch), The National Breast Cancer Research Institute and Western Alzheimers have been

Ireland West Airport is delighted to announce that the Connacht SBHI Branch (Spina Bifida Hydrocephalus Ireland), Dillon Quirke Foundation, Mayo Roscommon Hospice, Order of Malta (Knock Branch), The National Breast Cancer Research Institute and Western Alzheimers have been
Keara (@kearbeara) 's Twitter Profile Photo

Leaving a child to wait for surgery past recommended guidelines is unacceptable. Making families wait to know if/when they can access this surgery is also unacceptable.

Keara (@kearbeara) 's Twitter Profile Photo

Ireland West Airport Bumper Summer Charity Draw 2025! Join me on 25/07/2025 at Online. Get your tickets here 👉 eventmaster.ie/event/5EyoFQvs… eventmaster.ie/event/5EyoFQvs… #IrelandWestAirportBumperSummerCharityDraw2025 #spinabifida #connacht #irelandwestairport

Ireland West Airport Bumper Summer Charity Draw 2025! Join me on 25/07/2025 at Online. Get your tickets here 👉 eventmaster.ie/event/5EyoFQvs… eventmaster.ie/event/5EyoFQvs… #IrelandWestAirportBumperSummerCharityDraw2025

#spinabifida #connacht #irelandwestairport
Keara (@kearbeara) 's Twitter Profile Photo

18 months delay, and Christmastime when people are busy… that’s all they think of our disabled citizens! We praise athletes etc. of whom I also admire at times. But have you ever thought of what a disabled person or their body endures in a lifetime? They are the strongest people

Sinéad McGarry (@sineadmcgar) 's Twitter Profile Photo

We were promised this Govt finally understood and would prioritise the rights of people with disabilities. More delays, more of the same lip service Simon Harris TD