
Keara
@kearbeara
Mother | #Spinabifida , #Scoliosis , #Disability rights♿️ | Current affairs🌎 | Sports⚽️ | Travel✈️ | Arts🎨 | Full of beans ☕️💁🏼♀️
ID: 1586901395223072769
https://www.rte.ie/news/health/2023/0709/1393624-scoliosis/ 31-10-2022 02:02:59
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Amazing work as always Dr Tom Clonan 👏🏼 #Disability #disability #disabledcitizens


248 children are listed for surgery in Children's Health Ireland Out of the 248 only 18 have a date to come in. 230 children are listed for a #scoliosis op with no date for surgery - no timeframe. #BackUs




No thought or support given to Education by Children's Health Ireland to the children whom they’ve failed so abysmally that the are being shipped out of the country for treatment Concerns raised with National Patient Safety Office that not a mention of how a child’s education will be supported The Scoliosis Advocacy Network #BackUs





I’ve arrived in Brussels 🇪🇺 looking forward to enlightening Members of the European Parliament about what families of children living with Spina Bifida and/or Scoliosis experience under the Irish healthcare system #backus The Scoliosis Advocacy Network #BackUs Spina Bifida & Hydrocephalus Paeds Advocacy#backus


Pleased to meet Billy Kelleher MEP on my trip & grateful for his time He’s long advocated for expanded newborn screening in Ireland🇮🇪 I raised the need for integrated care pathways across the EU 🇪🇺 With the highest rate of Spina Bifida worldwide, Ireland should be leading the way



#spinabifida #scoliosis 👏🏼 Úna Keightley







We were promised this Govt finally understood and would prioritise the rights of people with disabilities. More delays, more of the same lip service Simon Harris TD