Because of #ChildhoodCancer, starting of the school year is a painful reminder of all the joyful opportunities taken away from kids & their families worldwide. Cancer will steal over 8,500 children worldwide this month alone, yet we call it "rare." CAC2 Happy Quail

During September we go gold for #childhoodcancerawarenessmonth Support us by following and sharing. Each day of September we will be posting a fact about DIPG to help to raise awareness of how devastating this cancer is. Fact 1 - DIPG has an average survival time of less than

Day 2 of #childhoodcancerawarenessmonth and another fact: The only treatment available outside of clinical trials for DIPG is radiotherapy. This is offered as a temporary relief from symptoms, isn’t always effective, and is the same treatment that was offered to children 60+

Day 3 of #ChildhoodCancerAwarenessMonth Fact 3: DIPG tumours are inoperable as they intertwine with healthy cells. Operating on that area of the brain stem would almost certainly be fatal, and it was described to us as trying to remove sand grains from jelly. We fundraise to

Day 4 of #ChildhoodCancerAwarenessMonth and another fact about #DIPG: Despite it being “rare”, DIPG is the leading cause of brain tumour related deaths in children. The average 5-year survival rate of children with brain tumours is 74%, however for DIPG in isolation, it is less

Day 5 of #ChildhoodCancerAwarenessMonth, and another fact: In the UK, around 40 children are diagnosed with #DIPG each year - despite being considered rare, that's a child every 9 days. With a 0% survival rate, that's 40 children facing a death sentence, and 40 families

Day 6 of #ChildhoodCancerAwarenessMonth, and another fact: Earlier this year, it was confirmed that only £15m of a £40m commitment to funding research into brain tumours had been spent in the UK. And that £6m of that £15m was ‘not easily identifiable’. Historically, only 1% of

🎗️Day 7 of #ChildhoodCancerAwarenessMonth, and another fact: There are currently 59 active trials for #DIPG across the world, and not one of these is available in the UK. In fact, to access these trials, families are forced to raise hundreds of thousands of pounds, sometimes

“And once the storm is over you won't remember how you made it through, how you managed to survive. You won't even be sure, in fact, whether the storm is really over. But one thing is certain. When you come out of the storm you won't be the same person who walked in.”

Day 8 of #childhoodcancerawarenessmonth🎗️ and todays fact is a little different - a little more positive. After Eva was diagnosed, we had nowhere to turn to. #DIPG was completely unknown to us and there was very little support. Today, we offer that support. Whether it’s a

Day 11 of #ChildhoodCancerAwarenessMonth 🎗️ and another fact about #DIPG: The “typical” age of a child upon diagnosis is between 5 and 7 years, and the average time that child will survive post diagnosis is less than 10 months. Based on the typical life expectancy of 80 years

Day 12 of #ChildhoodCancerAwarenessMonth 🎗️ The cause and pathogenesis of DIPG is poorly understood. No environmental, genetic, or behavioral factors have been identified. This means it can happen to anyone and cannot be tested for. It appears random. And there is nothing that

Day 13 of #ChildhoodCancerAwarenessMonth 🎗️ Following a #DIPG diagnosis, it is common practice overseas to take a biopsy of the tumour, allowing families to consider trial treatment programmes which are able to target any tumour mutations which may be identified. In the UK,

Day 17 of #ChildhoodCancerAwarenessMonth 🎗️ This week, 12 years after having to say “goodbye” to her daughter Abbie,Amanda Mifsud of Abbie's Army - Fight DIPG Brain Cancer was able to announce that a UK based clinical trial for CAR T Cell treatment is actively recruiting here in the UK. This trial is

Cancer isn't your problem, until it's your problem. When you or a close one are diagnosed, the ability to get treated at one of the most advanced cancer centres in the world becomes far more significant. Please sign to help reopen three in the UK. petition.parliament.uk/petitions/6447…

It's not long now until our petition closes ❕ We want to see change into brain tumour research, please sign our petition in hope to prompt a parliamentary debate to increase funding. Your signature could help change lives 📷 bit.ly/46779UL #BrainTumourPetition

The spookiest day of the year is almost here! 🎃 If it happens to you, #DIPG is such a scary reality with some of the direst statistics of all childhood cancers. #ResearchMatters

#DIPG Brain cancer uniformly causes more cancer death in children than ANY other cancer type. These statistics are a frightening reminder of the dismal outcome that we must try to overturn through the support of crucial research!

There is an active research field (now!) new treatment strategies, new modalities...it's still hugely limited and yet to yield real progress. We must keep going!

5⃣An #afcb community hub has been created at a #Bournemouth pub. Alexander Smith went to visit bournemouthecho.co.uk/news/24978193.…