CHI

Improving the lives of babies, children, and adults with hyperinsulinism (HI) by supporting HI families, research, and awareness to prevent brain damage & death

Effie Parks

Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

Hyperinsulinism UK

Support Group, Fun Days, Conferences, Resources, Advocacy, Raise Awareness, Support Research. Supporting Hyperinsulinism families across UK & Ireland

CZI Science

Supporting the science and technology that will make it possible to cure, prevent, or manage all disease by the end of the century.

NORD

National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.