I have lost the ability to talk with people who are disorganized thinkers. It quite literally makes my head explode — not with irritation but with inflammation. Can I ask people to be more articulate as a disability accommodation?

Oh my god. Alem was a true hero in the fight to expose the near-fraud of the PACE trial. I weep to see how much he has deteriorated. One can't say for sure it's because of the effort he expended in the fight, but we do know that severe PEM can cause lasting setbacks.

What a fantastic PSA! I can’t even remember when my bit of this was filmed but I’m glad these folks used it.

I rarely talk about the experience of this illness, bc it can sound self-pitying. Those who see it are shocked, but few do, bc we are shut away when we’re at our worst. Even I find it difficult to remember how impaired my really ill friends are, bc they’re so articulate online.

So glad to see this piece. This research seems highly relevant to ME/CFS.

In 1988, the CDC named the disease “Chronic Fatigue Syndrome”, which set in motion decades of stigmatization of those suffering. While the US government currently uses the term ME/CFS on their websites, the trivialization of the condition due the name still remains. Let’s

Thanks to STAT and Beth Pollack for putting THROUGH THE SHADOWLANDS: A SCIENCE WRITER'S ODYSSEY INTO AN ILLNESS SCIENCE DOESN'T UNDERSTAND on this year's heath and science summer reading list. statnews.com/2024/06/25/sum… #chronicillness #mecfs #longcovid

So glad to hear that @werklyshowpod is planning to cover Long Covid. It'sME(Jaime) would be truly excellent. She has expertise as a scientist, advocate and patient. She’s one of the informed, thoughtful, level-headed voices in this space.

Absolutely ! She could provide unparalleled context for Long Covid, explaining both the science and the history. It’s a bigger story than Covid itself, with roots of infection-associated illness going back centuries.

With fewer than 1/3 of medical school curriculums currently addressing ME/CFS and less than 1/2 of medical textbooks containing information about the disease, it’s undeniable that ME/CFS has slipped through the cracks of our modern medical system. This needs to change in order

This is such a valuable series of educational videos.

If you’re reading story after story about how local GOP elected officials could refuse to certify the election or otherwise undermine results & perpetuate chaos and you’re freaking out, a ~thread~ for you… theguardian.com/us-news/articl…

This piece is really excellent. I’m happy to be quoted in it.