Jose Drabwell (@josedrabwell) 's Twitter Profile
Jose Drabwell

@josedrabwell

IPOPI Past President and #CVID patient. Raising awareness and improving diagnosis for #primaryimmunodeficiencies globally. All views are personal.

ID: 788682338297405440

linkhttp://www.ipopi.org calendar_today19-10-2016 10:04:57

1,1K Tweet

802 Followers

1,1K Following

IPOPI (@ipopi_info) 's Twitter Profile Photo

☀️ Welcome to Day 1 of the IPOPI Global Patients Meeting in Marseille! Our team is ready! Here's today's agenda: ipopi.glueup.com/event/xviii-ip… Stay tuned for live updates! #GPM2024

☀️ Welcome to Day 1 of the IPOPI Global Patients Meeting in Marseille! Our team is ready!

Here's today's agenda: ipopi.glueup.com/event/xviii-ip…

Stay tuned for live updates! #GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

📢 Exciting news! At this year’s Global Patients Meeting in Marseille, IPOPI will be showcasing new posters on Long COVID and the Global Stakeholders Summit. Join us to learn more and engage with our expert community on these crucial topics! #GPM2024

📢 Exciting news! At this year’s Global Patients Meeting in Marseille, IPOPI will be showcasing new posters on Long COVID and the Global Stakeholders Summit.

Join us to learn more and engage with our expert community on these crucial topics! #GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

🧊 Our team is breaking the ice with the attendees! Great energy in the room as Whitney Ayoub Goulstone, Otilia Stanga, and Miriam Ferreira lead the session. #patients #GPM2024 #Marseille #patientadvocacy #IPOPI

🧊 Our team is breaking the ice with the attendees! Great energy in the room as Whitney Ayoub Goulstone, Otilia Stanga, and Miriam Ferreira lead the session.

#patients #GPM2024 #Marseille #patientadvocacy #IPOPI
IPOPI (@ipopi_info) 's Twitter Profile Photo

🌐 Special keynote by Prof Steve Holland, titled 'CGD at 70: Where Have We Been and Where Are We Going?'. This presentation explores the advancements in CGD research, treatment, and patient care, offering profound insights into what the future holds. We proudly present this

🌐 Special keynote by Prof Steve Holland, titled 'CGD at 70: Where Have We Been and Where Are We Going?'. 

This presentation explores the advancements in CGD research, treatment, and patient care, offering profound insights into what the future holds. 

We proudly present this
IPOPI (@ipopi_info) 's Twitter Profile Photo

🎉 IPOPI launches LevelUp, a new board game designed to empower patient organisations to reach the next level! #GPM2024

🎉 IPOPI launches LevelUp, a new board game designed to empower patient organisations to reach the next level!

#GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

Congratulations to Teresa Español, former Chair of the #IPOPI MAP, the recipient of the ESID Honorary Lifetime Achievement Award! A well-deserved honour. 👏 #GPM2024

Congratulations to Teresa Español, former Chair of the #IPOPI MAP, the recipient of the ESID Honorary Lifetime Achievement Award! 

A well-deserved honour. 👏

#GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

🌍 We’re back for Day 2 at #GPM2024! Today’s sessions will cover newborn screening, fundraising strategies, and the importance of defining immunodeficiencies. Our team is ready to welcome you! Follow along for updates!

🌍 We’re back for Day 2 at #GPM2024! Today’s sessions will cover newborn screening, fundraising strategies, and the importance of defining immunodeficiencies. 

Our team is ready to welcome you!

Follow along for updates!
IPOPI (@ipopi_info) 's Twitter Profile Photo

▶️ Starting Day 2 with an in-depth session on newborn screening in the context of the genomic revolution. #GPM2024

▶️ Starting Day 2 with an in-depth session on newborn screening in the context of the genomic revolution.

#GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

🌐 Our 'Fundraising: Get Inspired!' session is underway, featuring creative ideas from all of the NMOs. #IPOPI #GPM2024

🌐 Our 'Fundraising: Get Inspired!' session is underway, featuring creative ideas from all of the NMOs. 

#IPOPI #GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

🔶️ Insightful discussions on the communalities of PIDs and SIDs with Prof Markus Seidel, Dr Jacques Rivière, Dr Virgil Dalm and Prof Felipe Suarez. #GPM2024 #IPOPI

🔶️ Insightful discussions on the communalities of PIDs and SIDs with Prof Markus Seidel, Dr Jacques Rivière, Dr Virgil Dalm and Prof Felipe Suarez.

#GPM2024 #IPOPI
IPOPI (@ipopi_info) 's Twitter Profile Photo

The IPOPI Toolkit is now live! 🎉 A must-have resource pack to help our members reach the next level. 🌟 In key topics like Advocacy, Awareness, Fundraising, Communication, Media, and more! Get to know our NMO Toolkit here: ipopi.org/nmos/nmo-toolk… #IPOPI #GPM2024

The IPOPI Toolkit is now live! 🎉 A must-have resource pack to help our members reach the next level. 🌟 In key topics like Advocacy, Awareness, Fundraising, Communication, Media, and more! 

Get to know our NMO Toolkit here: ipopi.org/nmos/nmo-toolk…

#IPOPI #GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

🌐 Final day of #GPM2024! We’re starting the day with the IPOPI Annual General Assembly. Stay tuned for updates from today’s sessions. #IPOPI

🌐 Final day of #GPM2024! We’re starting the day with the IPOPI Annual General Assembly.

Stay tuned for updates from today’s sessions.

#IPOPI
IPOPI (@ipopi_info) 's Twitter Profile Photo

Our joint session with INGID on mental health and PIDs has finished, with valuable insights from Mr Cédric Anchisi, Dr. Julia Hews Gerard and Ms Toya AI. #GPM2024

Our joint session with INGID on mental health and PIDs has finished, with valuable insights from Mr Cédric Anchisi, Dr. Julia Hews Gerard and Ms Toya AI.

#GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

🔷️ Exploring AI’s transformative role in PID treatment and diagnosis with Dr Nizar Mahlaoui, Dr Jacques Rivière, Dr Nicolas Garcelon, Martine Pergent and Rafael Graça. #GPM2024

🔷️ Exploring AI’s transformative role in PID treatment and diagnosis with Dr Nizar Mahlaoui, Dr Jacques Rivière, Dr Nicolas Garcelon, Martine Pergent and Rafael Graça.

#GPM2024
IPOPI (@ipopi_info) 's Twitter Profile Photo

🌍 What an incredible time at the Global Patients Meeting in Marseille! A huge thank you to everyone who made this event possible! 🙏 Thank you all for your commitment, passion, and dedication to improving the lives of patients with Primary Immunodeficiencies. Together, we are

🌍 What an incredible time at the Global Patients Meeting in Marseille!

A huge thank you to everyone who made this event possible! 🙏 

Thank you all for your commitment, passion, and dedication to improving the lives of patients with Primary Immunodeficiencies. Together, we are
IPOPI (@ipopi_info) 's Twitter Profile Photo

📷 The new Board of Directors of #IPOPI was recently elected by IPOPI’s National Member Organisations, and the results were announced during the Annual General Assembly at the Global Patients’ Meeting on October 18, 2024, in Marseille. Congratulations to Cynthia Olotch, Roberta

📷 The new Board of Directors of #IPOPI was recently elected by IPOPI’s National Member Organisations, and the results were announced during the Annual General Assembly at the Global Patients’ Meeting on October 18, 2024, in Marseille. 

Congratulations to Cynthia Olotch, Roberta
IPOPI (@ipopi_info) 's Twitter Profile Photo

🌟 The IPOPI community gathered at the Global Patients' Meeting on October 17, 2024, to honor outstanding contributions to the PID field through the IPOPI PID Champion Awards 2024. Visit our website know more: ipopi.org/pid-champions-… #IPOPI #PIDChampionAwards

🌟 The IPOPI community gathered at the Global Patients' Meeting on October 17, 2024, to honor outstanding contributions to the PID field through the IPOPI PID Champion Awards 2024.

Visit our website know more: ipopi.org/pid-champions-…

#IPOPI #PIDChampionAwards
IPOPI (@ipopi_info) 's Twitter Profile Photo

⚠️ Register for the event “PID Forum - Exploring The Impact of Medicine Shortages on PID Patients”, in collaboration with MEP Tomislav Sokol (EPP, Croatia) and IPOPI. 📅 When: 5 November 2024, 13:00 to 15:00. 📍 Where: European Parliament ASP 3H1, Brussels Register at:

⚠️ Register for the event “PID Forum - Exploring The Impact of Medicine Shortages on PID Patients”, in collaboration with MEP Tomislav Sokol (EPP, Croatia) and <a href="/ipopi_info/">IPOPI</a>.

📅 When: 5 November 2024, 13:00 to 15:00.
📍 Where: European Parliament ASP 3H1, Brussels

Register at: