Just now on the radio, Mariah Carey said she - ‘don’t want a lot for Christmas’, and that ‘all she wants for Christmas is me’.. I’m not sure that I 100% believe her...

😂👇🏼

Just flushed my port for the first time on my own. I’m basically a doctor now. #cysticfibrosis #portacath Okay so I may have missed once, too much Kaftrio fat to get thru 🤣

I’ve always battled addiction, even with the dangers of #cysticfibrosis, and I’m not proud of it. What I am proud of, is that as of this weekend I am now... 🙌🏼 FOUR MONTHS SOBER 🙌🏼 And have no plan or want to drink over Xmas and New year ☺️(🤞🏼) #admissions #FixMyLife

MPs and peers have demanded action to end the long wait for #kuvan for #pku. Thank you Liz Twist MP for your stalwart support and Chris Riches Daily Express for shining a light on this. NSPKU Marie Rimmer MP Tim Farron Ian Austin @EmmaLewellBuck

Have to retweet this again, one of my/our fav nurses at Royal Brompton and Harefield singing on our #cysticfibrosis ward for Xmas. Kind, funny, talented.... Merry Christmas all. 🎅🏼

Marta Boncompagni - (Everybody's Waitin' for) The Man with the Bag - Cover youtu.be/5Ny6qlfymyM via YouTube

I got fired from my job at the bank. A little old lady came in and asked me to check her balance. So I pushed her and she fell over. #dadjokes

The absolute scenes of the #CapitolBuilding riot in America... The new strain of #COVID here in the UK... So far 2021 is making me actually MISS 2020. I’m going back to bed.

Absolutely gutted to hear about MC Skibadee today. I’d love to think you’d be out there somewhere doin a b2b with Stevie Hyper D 🎤 #RIPSkibadee

Hi everyone, been a long time, how you been? Also CFers, how is life with #Kaftrio? I don’t want to jinx it but I haven’t been in hospital for 2 and a half years 😃 a new life record! Been back at work for nearly a year. #cysticfibrosis

Tickets in the bag 😃 ⚒ Cheers for adding the second night! Iron Maiden #FuturePastTour O2LondonTickets©

Kaftrio is a miracle drug. I’m being weaned off prednisolone and also having all vitamins removed from my prescription with only colecalciferol to take twice a week as my levels are where they should be along with a consistently stable LF Cystic Fibrosis Trust 😭💛

Just wanted to share with you all… While I was away from here, I got a #CysticFibrosis - #NeverGiveUp tattoo that I had been thinking about for a long time. Now permanently flying the flag (in my own little way), and we WON’T be beaten! 💪🏼😊 Cystic Fibrosis Trust #MentalHealthMatters ;

Dear Elon Musk as a former friend may I suggest that dealing with climate change and protecting democracy might be a better use of time and money than giving racists and antisemites a social media platform

Is too early to have got this #bagforlife at Tesco’s? I LOVE IT 🤣 #Xmas2022

Alex scott a women who has just come out and now is in a country where she she can be killed or imprisoned for being part of the community is wearing the one love armband, brave and powerful stuff from her

It’s that time of year again where we get to hear the best scream in cinema history 😂😂😂 And yes, that includes the Willhelm scream (fight me 😂) #HomeAlone #xmasjoy22 🎄🎅🏼

Hi! It’s Alex! I wanted to share my news. My Cancer checks are all clear! The abnormalities detected over the years in my bones haven’t changed at all for years so the Hospital is happy about that too and so am I! I will have an annual check for the next five years because we