U.S. Census Bureau Household Pulse Survey finds ~4M US adults currently have long Covid that “significantly” limits day-to-day activities. (More robust tracking may find that # is inflated, but it’s our best current data.) I find it weird the article didn’t just… Give the number.

This piece by Jeff Wood, on his experience w postviral #MECFS and craniocervical instability is the most relatable account I’ve read to date. While my #PEM symptoms aren’t as severe the apparent #CCI ones are … mechanicalbasis.org/mystory

Beth was so kind. She had a quiet warmth that would put you right at ease and make you want to open up. When I first met her, I immediately felt like I had gained a friend. She had a genuine and understated brilliance and made a huge impact on the ME community.

Ppl will say "listen to your doctors" when what they mean is "obey your doctors". In actuality, listening to your doctors needs to include listening to how they talk to and about their patients -- because that will also tell you a lot.

I'm happy that Jeff Wood was able to present! Brainstem deformation could cause countless downstream effects.

We're going to have an awesome Research Roundtable next Friday (Oct 4, 1pm EDT)! Two additional speakers are joining Jeff Wood (Michael VanElzakker and Brayden Yellman from Bateman Horne Center) & Thomas F. Varley will moderate. 🎉 Register here: us06web.zoom.us/webinar/regist…

We're on a roll!

The Mechanical Basis model's first research roundtable! Thank you! Tess Falor, Ph.D. | Renegade Research Renegade Research Isabel Burnett | Renegade Research Thomas F. Varley youtube.com/watch?v=3ZapHZ…

More to come!

I agree, Tess. Testing a model takes a lot of research and commitment. The Mechanical Basis Model is still in a very early stage. More to come!

Thank you guys. I'm seriously blushing now. ☺️

An interesting read. frontiersin.org/journals/neuro…

We went over 2.5 hours again! There were really interesting presentations and great discussion among patients, caregivers, researchers, and clinicians. Thanks to everyone who came. 🙏 #MEspine2024

Mechanical Basis Research Roundtable: Part 2!

The central sensitization theory really ruined my life. I took all the wrong medications, didn’t avoid triggers enough, and all that time there was actual damage and inflammation in my body that was made worse because of that approach.

Blood vessels in the brain rhythmically constrict and dilate to drive waves of cleansing fluid through the organ go.nature.com/4g0IBkK