When a Child is diagnosed with #DIPG the Parents are told to “go home and make memories with your child”. DIPG is terminal at diagnosis. We NEED to get LOUD & DEMAND better treatments for our Children! They are worth #MoreThan4

No words, no laughter, even no tears... Absence every single day.... Because of a lack of awareness, a lack of research funding & the absence of a cure... Logan was 3 when he died of #DIPG, others are a little older or a little younger, and all deserved better 🎗

Here we go again with report cards. Is it worth the time? I'm talking to teachers who are again writing report cards, they then have to read through another colleagues, then they are read by someone in admin. Is the time spent worth the information it provides?

Need a new t-shirt? Please consider this one! Nina’s name is among the 320+ and it’s always great to support Team Beans ♥️💜💙

More Children are dying to #cancer than any other disease & in fact, more than any other childhood diseases combined. Despite these grim facts, #ChildhoodCancer research remains underfunded. If we don’t advocate for our Children, nothing will change.

We made 77 new drugs for Adult cancers in only 6 years & it took 77 years to get 3 new #drugs for childhood cancers. Read it again👆🏼bc the more you know what a messed up system we have, the more you want to fight for our Children.

Giving our Children 4% vs. Adult cancers 96% of the National Federal Funding is not just wrong, it’s discrimination towards our Children. #RETWEET if you Agree.

H. Res. 404 is a Resolution that expresses support for the designation of DIPG (diffuse intrinsic pontine glioma) a terminal brain cancer & #ChildhoodCancer Awareness Day. Jack's Angels has been asking for 4 yrs. Happy Quail Ellyn Miller Mary lckc 🎗️ jacksangelsfoundation.com/?p=7263

💔 #DIPG (Diffuse Intrinsic Pontine Glioma), hasn’t seen ANY improvement in over SIX decades & has a near 0% survival rate. The average survival is just 9-11 months.

One RT for knowing what glioblastoma is would give me a indication of how many people have heard of it. My beautiful and only daughter died nearly 6 years ago from it.

“I know that I'm going to die, and I know this therapy will one day be the thing that cures other kids. Figure it out with me… I don't want it to be a 5-year-old who has to go first." (1/) scopeblog.stanford.edu/2022/02/07/fro…

Instead of calling it "rare," let's get everyone to call it a "priority" and actually DO something about it. Happy Quail Mary lckc 🎗️ Jan Halash 🌻💙💛 Judy Fulmer Lisa (Loehr)Spaulding Phalin CAC2 Rene Marsh Andy Kaczynski change.org/cancelchildhoo…

January 28, 1962: Neil Armstrong’s 2 year old Daughter died from #DIPG Brain Cancer. March 8, 2022: 99% of Children diagnosed w/ DIPG will not Live more than 11 months from diagnosis.

Fighting for life behind sand bags no hospital is safe #Ukraine

💔 #DIPG - Being fully alert while unable to Swallow, open your Eyes or close your Eyes, move a single Muscle, control when you go to the Bathroom & not being able to Eat… 💔 No one Deserves this Torture!

A Families World literally turns upside down in an instant when hearing the words… “Your child has cancer.” If you think this can’t happen to your own Child, I thought the same… 💔 💔 #ChildhoodCancer 💔 💔

Feeling unsteady is not a sign of instability. It's often a path to progress. Standing still feels secure, but gaining momentum to move forward requires tilt or sway. Walking is controlled falling. Being in equilibrium breeds comfort. Feeling off balance leads to growth.

Adult cancers are valued more than Children cancers which is odd, bc if Children were given the same funding as Adults, they would have a better chance of survival to live long enough to become Adults. Adults are given 96% & Children are ONLY given 4% of #cancer research.

Today on #DIPG/#DMG awareness day I’m wishing as much comfort as possible to all those families that have lost a child. To families with an affected child, we are working as hard, as fast, and as safely as possible at Seattle Children's to find a cure. #EndDIPG #EndDMG