EPNS Membership- Make a difference! youtu.be/XEIVYH68_0Y New members welcome! Share with your colleagues! European Brain Council European Academy of Neurology @ERN_RND 🧠 EpiCARE ern euro_nmd Mac Keith Press SENEP Rajesh Ramachandran Nair, MD, FRCP, FAES,FRCPC European Academy of Childhood-onset Disability ERN-ITHACA #paediatricneurology #Neurology #childneurology

The RDRUK mTOR Pathway Diseases Node is holding a 1-day symposium, jointly with the MRC Centre for Neurodevelopmental Disorders (NDDs) on 'Tackling challenges in rare NDDs: an integrated perspective’ on 23rd April 2024! Information and registration ⬇️ eventbrite.co.uk/e/mrc-cndd-nih…

NEW! Our educational review on MCD is now online Diagnostic work‐up in malformations of cortical development - Rijckmans - Developmental Medicine & Child Neurology - Wiley Online Library onlinelibrary.wiley.com/doi/10.1111/dm… #brainmalformations #education #review

Getting ready for #RareDiseaseDay2024 #deeljekleuren #shareyourcolours #StrongerTogether

On my way to European Brain Council to raise awareness on rare diseases #RareDiseaseDay2024 #shareyourcolours #shareforrare #StrongerTogether EPNS

Connected to those living with or caring for someone with a rare disease #RareDiseaseDay #shareyourcolours #deeljekleuren #shareforrare #StrongerTogether

Super powerful testimony of Tim Buckinx at European Brain Council ‘Towards a Rare Brain Disease Ecosystem’ Rare Diseases come with an emotional and financial impact and risk for isolation for the individuals living with rare diseases as well as their families #RareDiseaseAwareness

Excited to share this labour of love, now out in Brain: 'The clinical and genetic spectrum of GPI anchor deficiency disorders'. 🔗 bit.ly/gpi-anchor Thank you Stephanie Efthymiou, PhD AFHEA🇨🇾🇬🇧 The Neurogenetics Lab ION and many, many others for this incredible collaboration!

Colleague recently had 2 papers accepted in Human Mutation life which remain untraceable in PubMed Online despite having a DOI. Publishers need to ensure science is and remains findable and accessible. nature.com/articles/d4158…

📅 17 MAY 2024 BSPN Spring Meeting Join us for an exciting day on the management of developmental and epileptic encephalopathies UZA Sarah Weckhuysen Rikke S. Møller Hannah Stamberger Program & Registration 👇 bspn.be/bspn/agenda/

Because of #brainawarenessweek2024, we are thrilled to share that the 3rd edition of #BrainMosaic24 is set to take place in Leuven on the 10-11 October 2024. 📅 More info here: vibbio.tech/3TBDXBG See you there? #neurodevelopment #neurodegeneration #computationalanalysis

WHO/Europe World Health Organization (WHO) Intersectoral Global Action Plan on Epilepsy & other Neurological Disorders #IGAP EPNS vision #childneurology voice heard epns.info/intersectoral-… European Brain Council European Academy of Neurology International League Against Epilepsy EpiCARE @ERN_RND 🧠 ern euro_nmd ICNApedia Anna Jansen ESNR @OneNeurology_

🗓️Friday 24 MAY 2024 2-5PM 📍Universiteit Antwerpen Join us for an informal get together on brain development research with a focus on brain malformations. Abstracts welcome! Submissions via [email protected] #exchange #connect #inspire

European Paediatric Neuroradiology Congress 13-16 Nov 2024 Budapest, Hungary. Organized by ESNR & European Society of Paediatric Radiology 1 day fetal imaging course 2.5 days of educational sessions on hot topics, as well as opportunities for scientific paper presentations esnr.org/event-details/…

To all who live with TSC ⁦TANDconsortium⁩ advocating for TSC at #ICNC2024 last week #worldtscday #15may #TSmatters ⁦E-TSC Association⁩ ⁦TSC Alliance⁩ ⁦TSC_International⁩

I’m attending the 12th European Conference on Rare Diseases and Orphan Products to discuss the TAND Toolkit! #ECRD2024 is the largest, patient-led, rare disease policy-shaping event held in Europe. Join the discussion! #careforrare TANDconsortium invt.io/1txb6e1m6e1

At the start of the INSAR meeting in Melbourne Australia today, INSAR’s president Petrus de Vries highlights the need for autism research to become more diverse, equitable ánd global. Must read 👇 #insar #autismresearch #lmic #mhgap thetransmitter.org/spectrum/autis…

However, the panelists also recognised that whilst our community is very powerful and proactive in its advocacy, we need to draw the line between which services fall to us and which we should be provided.

Getting ready for the EPNS @EACD2024 session on Creative Intervention in Paediatric Neurology with Philip Pearl, Christophe Mattys and Angels Garcia Cazorla

Happy #WorldBrainDay2024 Let’s join forces & champion #BrainHealthandPrevention Advocate for prevention & healthy behaviours across the lifespan from prenatal, children, young people to later life. Improving lives of patients & carers World Federation of Neurology (WFN) Anna Jansen @sameermzuberi