Celebrating Australia's first Juvenile Arthrtis Week (JAW) at Birrarung Marr with Victorian kids & teens who have Juvenile Arthritis & their families - with The Royal Children's Hospital, Melbourne fab paediatric rheumatology team members nurse practitioner Sarah Wilson & Dr Georgina Tiller JAFA

Thanks to MPs Ged Kearney, Louise Pratt, Dr Mike Freelander, Helen Polley, Anne Webster and JAFA families for supporting the launch of the 1st national registry to build vital data to help Aussie kids with #juvenilearthritis. #jafa #juvenilearthritisweek

Nylah (middle) couldn’t make it this morning to Canberra but caught up with some friends and their siblings on the weekend. JAFA helps connect families affected by JA, sharing experiences is vital.

Wow!! Big news for kids and families living with juvenile arthritis. Thanks to everyone at Wests Tigers #juvenilearthritis. #jafa #juvenilearthritisweek weststigers.com.au/news/2023/03/2…

Great work raising awareness about your daughters' juvenile arthritis Adam Peacock and Michael Chammas. And thanks for spreading the word about what JAFA is trying to do for these kids.

Kate woke to the sound of her daughter screaming in agony honey.nine.com.au/latest/juvenil…

📣 In #Tasmania: No paediatric rheumatologist = costly trips to Melbourne. JAFA founders Ruth and Stephen Colagiuri with Helen Polley & Janie Finlay MP (📷 Apr 28) advocate for better care for kids with arthritis & rheumatic diseases 📷#ArthritisAwareness #JAFA

#JAFA grateful for $800K federal funds for 2023-24. Focused on boosting awareness and early diagnosis of childhood arthritis & rheumatic diseases. Aiming to lessen pain & disability. bit.ly/3LZAWX0 Ged Kearney Dr Mike Freelander Adam Peacock Prof Jane Munro

Met with NSW Health Minister Ryan Park discussing the shortage of paediatric rheumatology professionals. He's looking into the consumer-focused issues & seeking solutions. Encouraged by the positive dialogue More updates soon. Thanks Minister Park! @ryanpark_keira Adam Peacock

New AIHW report reveals up to 30k children & young adults in Australia live with juvenile arthritis, with a rise in hospitalisations and workforce shortages. More info: bit.ly/3ChbE26 #JuvenileArthritis #JAFA Australian Institute of Health and Welfare Arthritis Australia Felicity Moore

Delays in juvenile arthritis diagnoses causing kids to live in pain abc.net.au/news/2023-11-2…

Our national IMPACT report has identified major inequality for children with juvenile arthritis who suffer pain & wait a year for diagnosis. Thanks to Ryan Park MP & Dr Joe McGirr MP for launching the report & working for a better future for @JAFA kids bitly.ws/33Bje

JAFA Huge day for the JAFA cause with findings of an Impact Study released at NSW Parliament House. It contextualises the huge burden for families, and the kids themselves, and thanks to MP’s inc. Ryan Park MP for their time. Nylah handed a thank you to the minister 1/2

Warmest congratulations on your engagement Anthony Albanese and Jodie Haydon from everyone in the JAFA Community. We enjoyed spending time with you at The Lodge in 2022 and wish you happiness in the years ahead.

Sincere thanks Mark Butler MP & Dr Mike Freelander MP for announcing the first major federal gov’t investment in a national program to shorten delays in diagnosing juvenile arthritis. It’s vital to intervene early to prevent children from developing disabilities.

Why Laura burst into tears every time her own mum hugged her honey.nine.com.au/latest/juvenil…

Incredible news, finally kids in NSW have access to services to help them through the pain of Juvenile Arthritis. Been a long road to get to this point. Great work JAFA Ryan Park MP and Chris O'Keefe 🙌🏼🙌🏼

Children living with painful juvenile arthritis will benefit from a NSW gov’t budget investment of a record $6.9m in more specialist paediatric services. Thanks to Ryan Park MP for addressing this need and 2GB’s Chris O'Keefe for great support bit.ly/4b2vn4F

Important support from peak bodies & health groups backing our campaign to reduce delays in diagnosing children with juvenile arthritis. Thanks to all who’ve signed our consensus statement including The Pharmacy Guild of Australia RACGP Medicines Australia PSA jafa.org.au

Health Report features 8 yo Nylah talking about her Juvenile Arthritis journey along with her dad. Prof Stephen Colagiuri from JAFA talking with Norman Swan about Juvenile Arthritis & gaps in services in Australia. Health Report abc.net.au/listen/program… via ABC Australia