Jacquie Hellowell (@jacquiehello) 's Twitter Profile
Jacquie Hellowell

@jacquiehello

SLE @ 27. Proud wife + adoptive mum. DLBCL @ 57; CAR-T 2022. Child&Adult Safeguarding. BloodCancerUK volunteer. Vocal advocate for CAR-T 🙏 All views my own

ID: 2318949000

calendar_today30-01-2014 13:59:32

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Blood Cancer UK Research (@bloodcancer_res) 's Twitter Profile Photo

We’re teaming up with researchers at UWE Bristol to understand what blood cancer CNSs need most and to ensure CNSs get the support they deserve. Share your experience & shape the future. Take the survey 👉 bit.ly/bloodcancerCNS

We’re teaming up with researchers at <a href="/UWEBristol/">UWE Bristol</a> to understand what blood cancer CNSs need most and to ensure CNSs get the support they deserve. 
 
Share your experience &amp; shape the future.

Take the survey 👉 bit.ly/bloodcancerCNS
Jacquie Hellowell (@jacquiehello) 's Twitter Profile Photo

Such an important set of statistics for the government to understand. What a wonderful way to share this by the key organisations that support patients and gather the patients' voices to be able to understand improvements needed. Wes Streeting #cancer

Blood Cancer UK (@bloodcancer_uk) 's Twitter Profile Photo

We know what blood cancer takes, because we’ve lived it. But we also know what it takes to get through it ❤️ Share your story with us, and tag us so we can see it! Let us know your experience of what blood cancer takes below. #BloodCancerAwarenessMonth

DKMS UK | We Delete Blood Cancer (@dkms_uk) 's Twitter Profile Photo

🚨 URGENT: Please share - Heidi needs YOU. 🚨 Heidi is just 9 years old and urgently needs a lifesaving stem cell donor. She is depending on the stem cell register to find that crucial match. Register at dkms.org.uk/heidi_tw and SHARE this post to help find Heidi’s hero!

🚨 URGENT: Please share - Heidi needs YOU. 🚨

Heidi is just 9 years old and urgently needs a lifesaving stem cell donor. She is depending on the stem cell register to find that crucial match. 

Register at dkms.org.uk/heidi_tw and SHARE this post to help find Heidi’s hero!
Helgason Lab (@helgasonlab) 's Twitter Profile Photo

Research is never a solo effort. It takes teamwork. It takes belief. It takes collaboration across disciplines, institutions, and communities. We know what it takes to beat blood cancer. #BloodCancerAwarenessMonth Blood Cancer UK UofG Cancer Sciences

Research is never a solo effort.  
It takes teamwork. It takes belief. It takes collaboration across disciplines, institutions, and communities.
We know what it takes to beat blood cancer. 
#BloodCancerAwarenessMonth
<a href="/bloodcancer_uk/">Blood Cancer UK</a> 
<a href="/UofGCancerSci/">UofG Cancer Sciences</a>
Blood Cancer UK (@bloodcancer_uk) 's Twitter Profile Photo

Looking well, doesn't always equal feeling well. Blood cancer can take an invisible toll - what do you wish other people understood better? Tell us in the comments below. #BloodCancerAwarenessMonth

Looking well, doesn't always equal feeling well.

Blood cancer can take an invisible toll - what do you wish other people understood better? Tell us in the comments below. #BloodCancerAwarenessMonth
Jo Buckton (@bucktoj) 's Twitter Profile Photo

Blood cancer took -my time with my baby during treatment -my ability to walk at times -my hair It also took -a clinical trial -friends & family -doctors/nurses/researchers -blood donors -stories of hope THAT'S WHAT IT TAKES TO BEAT IT 💓Blood Cancer UK #BloodCancerAwarenessMonth

Blood Cancer UK (@bloodcancer_uk) 's Twitter Profile Photo

Yesterday, our campaign lit up in Birmingham New Street station! 🚂 Every 14 minutes, someone in the UK is diagnosed with blood cancer. Raising awareness means more people will know about us, find support, and help fund the research we need to beat it.

Yesterday, our campaign lit up in Birmingham New Street station! 🚂 

Every 14 minutes, someone in the UK is diagnosed with blood cancer. Raising awareness means more people will know about us, find support, and help fund the research we need to beat it.
Lisa Whittaker (also on Bluesky) (@lisawhittaker02) 's Twitter Profile Photo

I’ve been lucky enough to facilitate some really important #PPI group discussions recently, with research teams applying to our innovative large-scale clinical trial funding scheme & also researchers applying for our Early Career Advancement Fellowships Blood Cancer UK Research

Blood Cancer UK (@bloodcancer_uk) 's Twitter Profile Photo

Check us out on BT Tower!! 🤩 Blood cancer is the 5th most common cancer, and this Blood Cancer Awareness Month, we're shouting it from the rooftops! Tag us in your photos if you see it.

Check us out on BT Tower!! 🤩

Blood cancer is the 5th most common cancer, and this Blood Cancer Awareness Month, we're shouting it from the rooftops! 

Tag us in your photos if you see it.
Edward Pinches (@ed_pinches) 's Twitter Profile Photo

Blood cancers are notoriously difficult to diagnose because the symptoms are so vague. And blood cancer is the UK's third largest cancer killer. Read expert commentary from Blood Cancer UK on the use of AI in routine eye tests 👇 dailymail.co.uk/health/article…

Edward Pinches (@ed_pinches) 's Twitter Profile Photo

Too many people face delays before a blood cancer diagnosis The new Jess' rule means if you see a GP 3 times with no clear answer or worsening symptoms, they should look again It could help tackle the delays we hear about all too often @BloodCancer_UK bbc.co.uk/news/articles/…

Jacquie Hellowell (@jacquiehello) 's Twitter Profile Photo

This will be such important guidance for blood cancer patients. It took a lot of GP visits and GP treatments before I was referred to the local hospital Medical Assessment Unit. I had my first CT scan after 2 visits there. Well done by the family for pushing this through 🙏

Jacquie Hellowell (@jacquiehello) 's Twitter Profile Photo

What a huge positive outcome for Emily. I was privileged to be 1 of the first 400 adults in the UK in 2022 to have the amazing CAR-T cell therapy. My little trained T cells did the big job of killing the cancerous B cells in 28 days! Amazing to experience. CAR-T also cured my SLE

Jacquie Hellowell (@jacquiehello) 's Twitter Profile Photo

I've just read about a global CAR-T trial for Multiple Sclerosis, SO very good to read! As a CAR-T cell recipient for Lymphoma in 2022-but also diagnosed with Lupus 30 years ago-my trained T cells cured me of both. Really pleased to hear of another illness that could be cured 🙏

Blood Cancer UK Research (@bloodcancer_res) 's Twitter Profile Photo

We’d love to hear from people from Black or Pakistani communities based in the UK to help us improve awareness and access to clinical trials. 💬 Take our survey bit.ly/3J5vGDR

We’d love to hear from people from Black or Pakistani communities based in the UK to help us improve awareness and access to clinical trials.  

💬 Take our survey  bit.ly/3J5vGDR
Blood Cancer UK (@bloodcancer_uk) 's Twitter Profile Photo

Did you know Raymond Briggs had a personal connection to Blood Cancer UK? His wife Jean died from leukaemia in 1973, and he supported our work every year afterwards. Now, we’re giving away a copy of The Strange House - back in print after 40 years 🎁 bit.ly/47Tdq97

Did you know Raymond Briggs had a personal connection to Blood Cancer UK? 
His wife Jean died from leukaemia in 1973, and he supported our work every year afterwards.
Now, we’re giving away a copy of The Strange House - back in print after 40 years 🎁 
bit.ly/47Tdq97
Edward Pinches (@ed_pinches) 's Twitter Profile Photo

Expert warns that blood cancer data in Wales is extremely poor and this compromises patient care on a daily basis. As Blood Cancer UK call on the next Welsh Government, to deliver a long-term Cancer Strategy bloodcancer.org.uk/news/blood-can…