Vertex Save Us
@vertexsaveus
Global campaign for equitable access to all Vertex CFTR modulator drugs which can extend & save the lives of people with cystic fibrosis (CF) wherever they live
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https://www.vertexsaveus.org/ 20-10-2020 11:27:42
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For 5 years, Vertex CEO Reshma Kewalramani has ignored #CysticFibrosis patients. 💰 She’s made $80M, but 000’s can’t access lifesaving #Trikafta because Vertex Pharmaceuticals price it at $326K/year. Take action with us: actionnetwork.org/letters/tell-v… Just Treatment 💊 actionnetwork.org/letters/tell-v…
In 2020, Prof Paul Quinton, CF patient and founding father of CF medicines, shared this video with us. Unconscionable that 5 years later, so little has changed. CEO Reshma Kewalramani & Vertex Pharmaceuticals must do better. Email Reshma here an tell her why: actionnetwork.org/letters/tell-v…
1,000 emails in 4 days have been sent to the Vertex Pharmaceuticals CEO, Reshma Kewalramani. 1,000 people who think that every CF patient should have access to #Trikafta. 1,000 people that think she can & must do better. They cannot be ignored. actionnetwork.org/letters/tell-v…
Advocates from Vertex Save Us & Just Treatment 💊 making a 3 minute statement today to the @who expert committee asking to have CF modulator therapies ivacaftor, tezacaftor & elexacaftor added to the global Essential Medicines List Incredible work👏 Donald M. Kreis CF Ireland @cfcarer
Today we urged the World Health Organization (WHO) Expert Committee to add CF triple therapy to the Essential Medicines List. Inclusion on the EML would help: 💰 Create leverage for fairer pricing 🔐 Unlock generic production 🌎 Guide policy decisions in countries currently left behind #Trikafta4All
💊 5 May: we were World Health Organization (WHO) in #Geneva to support an application for the triple combination CF drug to be added to the ‘Essential Medicines List’. ✍️ Supportive statements were signed by 35 national & international CF associations & 50+ human rights activists. 🌎#RightToBreathe
We are here at #ECFC2025 to speak out on behalf of thousands of CF families around the world that cannot access #Trikafta. 🫁💊🌎 Vertex Pharmaceuticals should be ashamed. #GlobalCFFamily #Trikafta4All #RightToBreathe
Our representatives were blocked from entering a ‘CF community’ meeting at the European CF Conference in Milan by Vertex Pharmaceuticals. Inexcusable & indefensible. #Trikafta4All #RightToBreathe
.@vertexpharma only want the 'CF community' from higher income countries that have access to their extortionately priced modulator therapy #Trikafta They don't want to answer questions from Vertex Save Us in a public meeting The reality: Tens of thousands don't have access
Gayle Pledger Vertex Pharmaceuticals Vertex Save Us Just Treatment 💊 So shameful. Bryon why won’t you meet with parents? This happened at @nacfc too
Thank you Vertex Save Us for your tenacity, your courage, and your righteous indignation. Until everyone who needs CF drugs has access to those drugs, the story of cystic fibrosis remains one of sorrow.
Vertex Pharmaceuticals hiding from the truth! #Cysticfibrosis
🚨 BREAKING: today #cysticfibrosis mums stage a powerful intervention at Vertex Pharmaceuticals’s stand. Gayle 🇬🇧, Urtė 🇱🇹 & Ajsela 🇦🇱 laid a wreath for children who died waiting for #Trikafta. Backed by clinicians, we demand Vertex Pharmaceuticals act now, access for all! #ECFC2025
A huge thank you to everyone that came & showed their support by placing a rose at the Vertex Pharmaceuticals stand at the European CF Conference in memory of CF children that have died without access to #Trikafta 💔 The global CF family standing together is an incredible thing ❤️🌎💊👊
It’s hard to believe what happened at #ECFC2025... Vertex Pharmaceuticals SHUT US OUT - three CF mums - from their "community meeting" for wanting to ask critical questions about #Trikafta access. But we didn't stop there… Read full blog to find out more ⬇️ righttobreathe.net/post/exposing-…