Dr. Avik Roy & co-authors examine orthostatic imbalance in people w/ #MECFS using an interesting new experimental model to dissect the metabolic missteps responsible for this effect. Read our summary of the Solve-funded study: ow.ly/PNCN50T85pk #MEAwarenessHour

Following concerns raised by #pwME, incl a formal complaint from S4ME, re. the Care & Support Plan recently shared, we've listened & have removed the resource from our website & stopped promoting it For transparency, we have shared our complaint response ow.ly/l0C950TcWTU

8. Holaaa 😍😍😍!!! Estoy implicada al 100% en la difusión y en la concienciación del Reto2024SolidarioEM que #Alberto y #Enrique van a llevar a cabo por visibilizar esta enfermedad: La #EncefalomielitisMiálgica. Reto en el que se dejarán la piel corriendo y realizando un recorrido

#NotJustFatigue is proud to join the chorus of federal legislators, expert researchers, and individuals around the country in calling on NIH to address federal funding for #MECFS, including incorporating #MECFS into the RECOVER Initiative

As the Senate Appropriations Committee advances a directive requiring NIH to incorporate #MECFS into the RECOVER Initiative, expert researchers are offering concrete recommendations on implementation

We tallied up some numbers from our Teach ME, Treat ME campaign to educate clinicians and medical students about ME, and the results are fantastic! Our impact continues & the campaign is ongoing! Full update here: meaction.net/2024/09/04/tea… #TeachMETreatME #PwME #MECFS

Read our Solve Science Spotlight summary of the JAMA study of #MECFS onset which compares risks after #COVID vs. other illnesses. #MEAwareness #MEAwarenessHour ow.ly/NHNL50TfRqe

🎉 We're thrilled by the amazing interest in our upcoming hybrid event on September 19th at LSHTM! To join us, please register by clicking the link: forms.office.com/e/HY35YL4u8a or scan the QR code below. We can’t wait to meet you, share our latest research, and answer your questions!

Discriminatory biomarkers Galectin-9 and Artemin in Long COVID with chronic fatigue syndrome: Correlation with inflammatory and cognitive markers frontiersin.org/journals/immun… #LongCovid #MEcfs #CFS #PwME

1) New blog post on 'catastrophizing' and why this concept risks blaming patients by mislabeling their symptoms as exaggerated negative thoughts. mecfsskeptic.com/catastrophizin…

Tom Kindlon I'm so grateful for this honest and insightful piece on living with ME. It's a must-read for anyone who wants to understand the daily struggles and triumphs of someone with this condition.

Join us for special screening of ‘Dialogues of a Neglected Illness’ with M.E. Expert Dr. William Weir Q&A pls share #MyalgicEncephalomyelitis #LongCovid Southern Trust Belfast Trust Western Trust Northern Trust South Eastern Trust Northern Ireland Assembly Committee for Health Mike Nesbitt eventbrite.co.uk/e/dialogues-of… @Eventbrite