Imagine coughing up to 500 times each day. It's debilitating. It affects your daily life. It limits what you can do, where you can go. Our members talk about how they are stared at, especially since Covid. PF cough isn't contagious, but it is exhausting & frustrating 🥺

Imagine what life is like, fighting for each breath every minute of every day. As PF progresses, this is what it's like. Its exhausting & the effort put into breathing can result in weight loss because it's like doing a workout 24/7 🥺 Remembering those we have lost at TPFSG 💜

Hope for a cure, better treatment, a better future for PF Patients, can come with research. That is why our members put themselves forward for research, not to help themselves, but to help future patients.    One day, there WILL be a cure for PF. 💜 Raising awareness of PF!

The amazing Pulmonary Fibrosis Trust has helped many of our group members. We are extremely grateful for everything they do to help people live a more comfortable life. 💜💙

There are many explanations and sometimes no explanations as to why people find themselves being diagnosed with Pulmonary Fibrosis. Whether it's clear or not 'why,' it is a devastating diagnosis for the patient, and for their loved ones/friends. Raising awareness 💜

As the disease progresses, lung capacity is reduced. Many, including my late husband, have said it feels like suffocating slowly. Trying to get through each day & sleep at night while fighting for each breath, is exhausting. Raising awareness of PF 💜 #aroundtheworldwithtpfsg

Having a doctor who will listen to your chest, look beyond COPD & Asthma, & listen to your concerns about your symptoms, is something we don't all have. This can be 1 of the reasons for delays of a diagnosis & treatment. PF may be incurable but early treatment can prolong life 💜

Many of our group members have Pulmonary Hypertension along with PF. Could early screening for PH in PF Patients be done as standard? PH - another disease where early diagnosis and treatment can make a difference. 👍 Raising awareness 💜 #aroundtheworldwithtpfsg

🫁 It is harder to stretch lungs that have scar tissue (pulmonary fibrosis) - the body uses more energy to breathe. 🍲 Eating habits that worked before pulmonary fibrosis was diagnosed are likely no longer optimal. Anti-fibrotic medications can also influence appetite and food

Fighting for every breath is exhausting, debilitating, frustrating, & terrifying. Early diagnosis is necessary, to help improve quality of life. A diagnosis of PF is devastating. 😪 Raising awareness of PF 💜 #aroundtheworldwithtpfsg

The PFT helps people with PF live more independently Since 1 Jan 2025, we’ve provided 33 mobility scooters—giving people across the UK freedom & confidence in daily life. This is only possible thanks to YOUR donations #PulmonaryFibrosisAwareness #EveryBreathMatters

A day of reflection today remembering Geoff, Mavis, Kevin, Margaret, Douglas, Janet, Jack & Rob. 8 of the 66 members we have lost since 2018. Yes, 66 people in 89 months 🥺 A diagnosis of PF is devastating. Hopefully one day, with Research, that will change. 💜

Fancy joining our #aroundtheworldwithtpfsg challenge to raise awareness of Pulmonary Fibrosis an incurable lung disease 🤔 Just download our poster, print it or save it on your phone, have a photo taken with it & send it to us. Costs nothing but 2 minutes of your time 👍

As it becomes more difficult to breathe, the energy used in order to get air into the lungs can result in fatigue, low mood, & weight loss. Eating becomes more difficult. Standing up from a sitting position can feel like a workout. PF affects more than just your lungs 🥺

Can you believe that almost 9 out of 10 people hadn't heard of PF before being diagnosed! This is why we raise awareness. Not just in September, but from January to December. More awareness could result in an earlier diagnosis & earlier treatment. 💜