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Worth tuning in to this #airwaystenosis #breathe

Thank you to all the #laryngology, #ENT #Thoracic, #SLP and #SLT specialists who recommend their airway stenosis to join Living with #iSGS. You are the second highest source of members this year so far Dr Gemma Clunie @gemmaclunie.bluesky.social @ClinicLvs Inna Husain, MD Paul Bryson, MD MBA Al Merati 🇺🇸 🎸 RCSLT 💙

Thank you Dr Gemma Clunie @gemmaclunie.bluesky.social for recognising me in this post, it was a pleasure working with you, and I hope we can continue it in the future. Always happy to progress learning in the field of #airwaystenolsis #research #isgs

Another month ticks by and I need to again thank specialists who treat #airwaystenosis patients for referring them to facebook.com/groups/airways… - 13% of new members this year learned from their treating doctor or a member of their team #thankyou #breathe

My Living with idiopathic subglottic stenosis Facebook group (Facebook.com/groups/airways…) is the focus of this new BBC podcast: bbc.co.uk/sounds/series/…

And that’s a wrap. Thank you to everyone at #cuttingedgelaryngology for having me, so pleased so see such a focus on #airwaystenosis. Wonderful to reunite with old friends and make new ones

As the Living with iSGS support community is about to celebrate its 15th birthday, it is a great time to reflect on how our existence has impacted the research in this field #airwaystenosis #breathe #whensocialmediadoesgood

The Living with iSGS community had a boom month in October, with 162 new members! More than one in five (22%) was referred to the group by their Dr - thank you for helping your patients find help and support! #airwaystenosis #breathe

Doctors continued to be a fabulous source of new members during November, taking us up to 208 #airwaystenosis patients worldwide helped by joining our community this year #thankyou #breathe

Thank you for helping spread the word! #airwaystenosis #breathe #iSGS #SGS

Happy #RareDiseaseDay! Am busy raising awareness of #airwaystenosis today in the hope that we can reduce the 96% of people who are initially misdiagnosed (including myself - initially ‘asthma’, and then told ‘anxiety’). Please learn and spread the word!

A HUGE thank you to #airwaystenosis Doctors around the world - so far in 2025 you have been the main source of new patients joining Living with iSGS. Patients gain support, help and the chance to take part in airway stenosis related research #breathe

Just five more weeks until International #AirwayStenosis Day! A great opportunity to raise awareness of the signs and symptoms of Airway Stenosis while giving people a chuckle…May the 4th be with you! 96% of patients are misdiagnosed, mostly with asthma…let’s turn this around…

How did new members learn about the Living with iSGS community in April? In joint first place, we have searches on Facebook and recommendations from doctors, together accounting for 50% - Thank you! Don't forget International #AirwayStenosis Day this coming Sunday - May the 4th

Congratulations Al Merati 🇺🇸 🎸 this is a great achievement! Thank you on behalf of all the women you have lifted up in (and outside of) the Otolaryngology field #breathe #airwaystenosis

Happy International Airway Stenosis Day! May the 4th is when we like to raise awareness of a little known rare disease while giving people a chuckle. Please share and spread the word - it may save someone’s life! #airwaystenosis

Happy International Airway Stenosis Day! May the 4th is when we like to raise awareness of a little known rare disease while giving people a chuckle. Please share and spread the word - it may save someone’s life! #airwaystenosis

Happy International Airway Stenosis Day! May the 4th is when we like to raise awareness of a little known rare disease while giving people a chuckle. Please share and spread the word - it may save someone’s life! #airwaystenosis

🎉 Happy #May4thBeWithYou and #AirwayStenosis Awareness Day everyone. 🚨 To mark it, here's the great #GVTwitterTakeover Dr Gemma Clunie @gemmaclunie.bluesky.social did for RCSLT 💙. ▶️ Check it out: wakelet.com/wake/WT6iNefnu… 😊 Special thanks to Catherine Anderson for her input. x.com/GivingVoiceUK/…

Doctor recommendations slipped into second place this month, with most new members finding us through a search on Facebook. Regardless, 23 patients in May found their way to our online #airwaystenosis community via their specialist - so a huge thank-you on their behalf!