Simon Sewart (@simonsewart) 's Twitter Profile
Simon Sewart

@simonsewart

Dad to 2 boys, 1 with #battendisease whose health declined whilst denied #brineura in the UK for 9 months.

ID: 777846048580665344

calendar_today19-09-2016 12:25:24

870 Tweet

207 Takipçi

529 Takip Edilen

Michael McConville (@reasonoverfear) 's Twitter Profile Photo

Have you lunatics not caught on yet? Man cannot control a virus. It’s the other way around. In the world of nature the virus is the apex predator, not us. Apex predators not only kill but alter the behaviour of their prey. Familiar? youtu.be/xPDe47IDwe8

Robert F. Kennedy Jr (@robertkennedyjr) 's Twitter Profile Photo

Now, with the WHO’s lower #PCR thresholds, it’s practically guaranteed that #COVID “case” numbers will automatically drop dramatically around the world. #TheDefender childrenshealthdefense.org/defender/who-a…

Spencer Morgan (@spencermorgan93) 's Twitter Profile Photo

We are currently in lockdown to protect the vulnerable. Gonna be weird when the vaccine has supposedly protected all of them and we’re... still in lockdown

Adam Afriyie (@adamafriyie) 's Twitter Profile Photo

The point of vaccination is to protect lives & allow people to live their lives. There’s no point to vaccinating if our country remains unable to open its schools & businesses, nor keep its people in work & free to socialise with family & friends. #Road2Recovery #vaccination

Peter Hitchens (@clarkemicah) 's Twitter Profile Photo

The way ‘Covid deaths’ are being counted is a national scandal. We have no idea how many lives have really been lost to the disease' . Distinguished Pathologist Dr John Lee in May: spectator.co.uk/article/the-wa… via The Spectator

Bob Moran (@bobscartoons) 's Twitter Profile Photo

Lockdowns do two things: 1. Slightly delay a relatively small number of inevitable deaths. 2. Directly cause a massive number of entirely avoidable deaths, widespread misery & economic devastation. This will soon be proven beyond any doubt. We must never do it again.

Peter Daou (@peterdaou) 's Twitter Profile Photo

BIDEN SHOULD HAVE BEEN DISQUALIFIED The Lincoln Project's cofounder, John Weaver, is rightfully being condemned for sexual harassment of 21 men. Meanwhile, Biden is POTUS despite multiple accusations of inappropriate behavior and years of groping girls.

Simon Sewart (@simonsewart) 's Twitter Profile Photo

Conductive Education Bristol is an amazing tiny charity that support children like Max, who has #battendisease, with gross & fine motor support, giving self-esteem & confidence. More than ever, these tiny charities need our support. Please do take a look cebristol.com.

Conductive Education Bristol is an amazing tiny charity that support children like Max, who has #battendisease, with gross & fine motor support, giving self-esteem & confidence. More than ever, these tiny charities need our support. Please do take a look cebristol.com.
Bob Moran (@bobscartoons) 's Twitter Profile Photo

Let it be remembered that as British democracy ate itself, Charles Walker shone out like a beacon of decency and an echo of our former greatness. x.com/mollygiles2015…

Simon Sewart (@simonsewart) 's Twitter Profile Photo

Would you or someone you know like a job helping 9 year old Max? Max is looking for a 2nd 1:1 teaching assistant to help him at school in Somerset near Bristol/Bath. There wouldn't be a dull moment with Max that's for sure! Please help spread the word! eteach.com/job/teaching-a…

Would you or someone you know like a job helping 9 year old Max?

Max is looking for a 2nd 1:1 teaching assistant to help him at school in Somerset near Bristol/Bath. There wouldn't be a dull moment with Max that's for sure!

Please help spread the word!

 eteach.com/job/teaching-a…
Simon Sewart (@simonsewart) 's Twitter Profile Photo

Batten disease is a devastating childhood disease for which there is no cure and only an effective treatment for a very small subset of children, like my beautiful son Max. Please remember these children, whether still here or gone, and pray for a cure soon #BattenDay2021

Simon Sewart (@simonsewart) 's Twitter Profile Photo

Here's our amazing son, 11 year old Max, helping to raise awareness of devastating batten disease at Great Ormond Street yesterday. Today is batten disease awareness day. There's no cure & only 1 effective treatment for a small section of children #battenday2022 BDFA

Here's our amazing son, 11 year old Max, helping to raise awareness of devastating batten disease at Great Ormond Street yesterday. Today is batten disease awareness day. There's no cure &amp; only 1 effective treatment for a small section of children #battenday2022 <a href="/BattenDiseaseuk/">BDFA</a>
Simon Sewart (@simonsewart) 's Twitter Profile Photo

Max doing some more to raise awareness today of batten disease with his brother Felix and his friends William and Freya at his Bristol ConductiveEducation session today. There's no cure & only 1 effective treatment for a small section of children #battenday2022 BDFA

Max doing some more to raise awareness today of batten disease with his brother Felix and his friends William and Freya at his Bristol <a href="/ConductiveE/">ConductiveEducation</a> session today. There's no cure &amp; only 1 effective treatment for a small section of children #battenday2022 
<a href="/BattenDiseaseuk/">BDFA</a>
Gloucestershire Cricket 🏆 (@gloscricket) 's Twitter Profile Photo

Gloucestershire players Chris Dent, James Bracey and Tom Lace had a brilliant time meeting the lovely families at Children's HospiceSW for Sibling Day today! We hope everyone at Children’s Hospice South West had a great time learning cricket skills and playing fun games! #GoGlos 💛🖤

Gloucestershire players Chris Dent, James Bracey and Tom Lace had a brilliant time meeting the lovely families at <a href="/CHSW/">Children's HospiceSW</a> for Sibling Day today!

We hope everyone at Children’s Hospice South West had a great time learning cricket skills and playing fun games!

#GoGlos 💛🖤
Simon Sewart (@simonsewart) 's Twitter Profile Photo

Here's Marvellous Max and some of his amazing team, wearing orange to help raise awareness of devastating Batten Disease. There's no cure & only 1 effective treatment for a small section of children #battenday2023 #showusyourorange BDFA

Here's Marvellous Max and some of his amazing team, wearing orange to help raise awareness of devastating Batten Disease. There's no cure &amp; only 1 effective treatment for a small section of children
#battenday2023 
#showusyourorange
<a href="/BattenDiseaseuk/">BDFA</a>
Jacob Rees-Mogg (@jacob_rees_mogg) 's Twitter Profile Photo

Today is Batten Disease Awareness Day.  Batten Disease is a rare, neurodegenerative disease that typically begins in childhood. Long-term followers will remember my constituent Max, who has the disease. I am delighted to report that he is continuing to do very well, thanks to the

Today is Batten Disease Awareness Day.  Batten Disease is a rare, neurodegenerative disease that typically begins in childhood.
Long-term followers will remember my constituent Max, who has the disease. I am delighted to report that he is continuing to do very well, thanks to the
Jacob Rees-Mogg (@jacob_rees_mogg) 's Twitter Profile Photo

Awareness of Batten Disease is crucial because, as the disease is so rare, it can take a significant amount of time for children to be diagnosed.  Please share to raise awareness. #BattenDay2024 #BattenDiseaseAwareness #BDFA

Edinburgh Castle (@edinburghcastle) 's Twitter Profile Photo

We're lighting up the castle in orange tonight for International #BattenDisease Awareness Day. 🧡 #BattenDay2024 #BattenAwareness #BDFA

We're lighting up the castle in orange tonight for International #BattenDisease Awareness Day. 🧡

#BattenDay2024
#BattenAwareness
#BDFA