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Brianna was addicted to social media: teens need online protection - today's front page from The Independent 📰 You can download a digital newspaper every morning with a subscription to Independent Premium Subscribe here 👉 bit.ly/3Q6bzWD

I'm in tears watching this and in awe of the bravery of the parents speaking up about how their children were failed by health and social welfare systems. The #Mecfs community is behind you, supporting you. We know you speak the truth and how long overdue this is.

Think it's time for V to see what life offers them as an adult and explore whether we can sort out some support that is better than children's services and education.

The absolute fucking cheek of a provision who say they can't meed need a week AFTER the EHCP annual review.

Thought for the day: why do parents get fined if their children don't attend regularly but schools don't get fined if they fail to teach children effectively and cause them trauma?

Brilliant article - spot on! ‘He hates failing’: mother describes lack of help for autistic son theguardian.com/society/2024/m…

"There is a psychological intervention that could improve the lives of people with ME/CFS: an apology and recognition of the harms they have suffered." Well said!! 👏👏👏👏👏

Interesting that this article implies a rise in special educational needs amongst children. I suspect what's happening is that mainstream schools are becoming less inclusive and that's what is driving the increase. theguardian.com/education/2024…

Very good article showing just how hard it is for families with chronically ill children with the current truancy laws. ‘She wants to go to school’: parents of unwell child fear truancy prosecution theguardian.com/education/2024…

So, about those stupid Acu Seed ear sticker things. Apparently they now help you cope with toddler tantrums as well as miraculously curing serious biomedical illnesses like ME. They really do help with everything in life! They're magic! All from little stickers on your ear!

Goodness me. And in 2019, I was fighting Derbyshire County Council for proper provision for my SEND child, a fight that would go on until I beat them at tribunal in 2021. So they were spending on tribunal fees, but not actual SEND provision.

No Steve Baker, you cannot be proud of your party's education sector achievements. You put results first and children second, and their mental health has suffered for it.

All-Party Parliamentary Group on ME Carol Monaghan Carol Monaghan, who was MP for Glasgow West and Chair of the APPG on ME, has lost her seat in the general election. This means that we will now have to find another MP who is willing to take on this role and re-establish the

The inquest into the death of my daughter Maeve, who had Severe ME, begins in full in Exeter on Monday (22nd). Some thoughts ⬇️ thetimes.com/uk/healthcare/…

We need to get #MyalgicEncephalomyelitis patients out of "chronic fatigue" services and into the hands of ME specialists who have multidisciplinary expertise that's capable of properly responding to a multi-system disease.

ME: we need more funding and more research theguardian.com/theobserver/ar…

‘I’ve been tired since I was 13’: ME patients hope harrowing inquest will change perceptions theguardian.com/society/articl…

‘The education system likes to put children in little boxes and if you don't fit in that box, you get pushed out’ In our special Woman’s Hour episode live from the BBC Radio theatre, 17-year-old Katie shared her experience of navigating the SEND system ⬇️

Well done Katie, you speak for so many of us. Thank you for putting into words exactly what is wrong with the current eduction system. I hope you find a way to learn that suits you, because you are amazing and deserve to thrive.

Ok, so sales have been ridiculously low for the past few weeks, with social media throttling our reach and fatigue kicking my butt. So I'm going to practice what I preach and ask for help. Can you give us a boost to help us stay afloat by: placing an order, sharing our posts, or