Excellent work demonstrating the value of bowel prep in the MRI protocol for endometriosis. Congratulations Isabelle Thomassin-Naggara and team on the important publication

This today from a consultant gynaecologist about a 12yo with symptoms. So an adult will wait 8+yrs for a dx. A teen can clearly add 6 years before that clock even starts ticking. This follows NO GUIDELINE I am aware of. Shocking and wrong. #endometriosis #teens

Perfect thread on the AUS & NZ paper that is simply everywhere today. Poorly written, poorly reasoned and a complete step backwards. All my disease expertly excised. No more PPP. DD had all her disease expertly excised. No more PPP. #endometriosis #justsayin

Check out my latest article: ENDOMETRIOSIS : SOME LEARNING FROM OUR BRITISH CONSULTANTS THAT COULD IMPACT EFFICIENCY, BETTER OUTCOMES AND PUBLISHING. linkedin.com/pulse/endometr… via LinkedIn

This is an important petition and explanatory thread. We need good treatments, including good surgery. What we do not need are people using poor research to try to deny pts the choice of how they are treated. Ofc #endometriosis lesions cause pain! Please share and sign.

Nothing to do with #endometriosis is clear and easy but specialists and the MDT specialisms involved in care must work together. And more, the patient voice must be heard. We must move forwards.

I struggle to think of any other condition where you would identify a disease, then wait 20+ years to treat when it could result in organ loss or damage (kidney, liver). Make it make sense. #endometriosis

Another false dawn. The only thing different here is it is a daily pill but it is no different from other GnRH antagonists - chemical menopause. It carries all the same risks, notably significant bone density loss, plus no evidence it actually “shrinks” #fibroids #linzagolix

V important point: fibroid medication approval is a gateway access point for drugs to be approved for #endometriosis and #PMDD #linzagolix approval is currently stalled wrt FDA approval. It’s a mystery how it was approved so quickly here when it had less data than predecessors.

This is an important thread. The Guardian should do more due diligence and actually dig into the background before just reading a press release and excitedly announcing a “new” treatment. I know you think you’re helping but, er, no. There is no step forward here. It’s not “new”.

…and yes, just like not ensuring surgeons of sufficient skill operate on #endometriosis pts. Another false economy - ablation is quicker & easier (less costly) but results in repeat surgeries and a higher drain on NHS services, so actually more costly. *slow clap* #excision pls

This is really concerning and yet another example of monetising patients’ pain. That these tests should be offered alongside Botox is astonishing. Endometriosis needs specialist care in a specialist setting.

This is very worrying, like they are trying to slide the device in the back door by targeting private aesthetic and women’s clinics. There is no trial data, only two papers to support this device, both poorly designed, open and not RCT double blind. #endometriosis

Why are women treated as unreliable witnesses? #endometriosis pts experience this dismissal all the time at A&E’s across the UK. If a pt has a dx they are sent home with ibuprofen, treated like a drug seeker. If pre-dx told it’s anxiety or IBS. Drs need to do better.

“Clear scans”, with a 7cm endometrioma. I’ve seen this numerous times. Make it make sense. Why is awareness of clinical signs of #endometriosis so low? Why is any sort of pelvic pain so easily dismissed? While this disease isn’t malignant, neither is it benign.

Legal action re: #endometriosis is difficult to pursue (anywhere) for many reasons. Props to the Norwegian pt in tweet below. However there was an another successful case 4yrs ago in Nottingham. Things change but care hardly ever seems to improve. 🤷🏼‍♀️ bbc.com/news/uk-englan…

Once again (and again, and again…) why are women not treated as reliable witnesses regarding their own bodies? Stories like this are why it takes on average nearly 9 years for a diagnosis. #endometriosis #womenshealth #1in7 #excision #endo #bowelendo

The new tweaks to the NICE #endometriosis guidelines fail to significantly add further support for pathways to effective care, again. And not stating the correct definition is emblematic of the entire endeavour. NICE seriously, try harder.

Some comments on these articles misunderstand the term “medical misogyny”. It refers to a culture, an institutional issue. Women have been dismissed by female and male doctors when it comes to painful gynaecological issues. The dismissal is built into the system. #endometriosis

Hello 2025, I’m ready for more disappointment. I lied, I’m not. It’s concerning when someone in a position of influence essentially tells us #endometriosis is a period disease when it is not. Mirena can help manage symptoms (for some) but will not halt or treat the disease.