Nadine Lipworth (@saving_sasha) 's Twitter Profile
Nadine Lipworth

@saving_sasha

Developing a world-first personalised (ASO) to save my daughter from a regressive genetic epilepsy, and to pave the way for other families facing rare diseases.

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calendar_today31-08-2025 03:52:10

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Nadine Lipworth (@saving_sasha) 's Twitter Profile Photo

Today is both Father’s Day and Dave’s birthday. 💔 What other families take for granted — the handmade cards, the “Happy Father’s Day, Dad” are the very moments we grieve over. We hold on to hope that this time next year, Sasha will have had her treatment 💜

Today is both Father’s Day and Dave’s birthday. 💔 What other families take for granted — the handmade cards, the “Happy Father’s Day, Dad” are the very moments we grieve over. We hold on to hope that this time next year, Sasha will have had her treatment 💜
Quanta Magazine (@quantamagazine) 's Twitter Profile Photo

Alexander Mordvintsev, a research scientist at Google, has created complex cell-based digital systems that use only neighbor-to-neighbor communication. These “neural cellular automata” could have promising applications in biology, computing and robotics. quantamagazine.org/self-assembly-…

Alexander Mordvintsev, a research scientist at Google, has created complex cell-based digital systems that use only neighbor-to-neighbor communication. These “neural cellular automata” could have promising applications in biology, computing and robotics. quantamagazine.org/self-assembly-…
Nadine Lipworth (@saving_sasha) 's Twitter Profile Photo

Every hospital visit is stressful. Parenting a high-needs child while grieving is beyond hard. Sasha’s ASO candidate will be discovered very soon, and we must be ready to launch safety & tox immediately. Please help us hit the ground running. 💜 👉 savingsasha.org

Nadine Lipworth (@saving_sasha) 's Twitter Profile Photo

Not just a pretty picture — these are Sasha’s cells, growing into the foundation of her treatment. Every glow = hope for her future. 💜 #SavingSasha #RareDisease #PrecisionMedicine

Not just a pretty picture — these are Sasha’s cells, growing into the foundation of her treatment. Every glow = hope for her future. 💜 #SavingSasha #RareDisease #PrecisionMedicine